Global MPN Scientific Foundation(@gmpnsf) 's Twitter Profileg
Global MPN Scientific Foundation

@gmpnsf

Global MPNSF is a non-profit foundation, which empowers MPN patients worldwide by raising awareness, advocating for their needs and supporting research. #MPNsm

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linkhttps://hopp.to/gmpnsf calendar_today23-05-2022 13:40:56

199 Tweets

138 Followers

70 Following

Global MPN Scientific Foundation(@gmpnsf) 's Twitter Profile Photo

📢As the 4th MPN Spring Symposium draws near, we’re thrilled to introduce you to our esteemed speakers who will share their expertise & insights at this highly anticipated event.

📲Visit our website to read our blog!
gmpnsf.org/post/meet-the-…

Lucia Masarova, MD Ruben A. Mesa, MD

📢As the 4th MPN Spring Symposium draws near, we’re thrilled to introduce you to our esteemed speakers who will share their expertise & insights at this highly anticipated event. 📲Visit our website to read our blog! gmpnsf.org/post/meet-the-… @MDmasarova @mpdrc #GMPNSF
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🔬📚 Explore the core of the 2024! 

👉🏻 From the Netherlands, participants shared the multifaceted impact of MPNs on mental health, quality of life, and daily resilience. 

📲 Full video: gmpnsf.org/post/mental-he…

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🌟 Discover the highlights from our in Italy, featuring Antonella Barone, president of @AIPAMM, and MPN patients from Italy. 🇮🇹

📲 Learn more about their discussions and AIPAMM's empowering initiatives in our video: gmpnsf.org/post/women-s-h…

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🧠 Discover the importance of mental health and adaptation in MPN care! 

📣 At the , individuals with MPNs shared their stories, shedding light on the challenges they face. 

📲 gmpnsf.org/post/mental-he…

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🔓 Unlock the latest Post-ASH insights from the event organized by MPN Voice!

👉🏻 Join to unravel valuable updates from experts like Prof. Claire Harrison, Dr. Beth Psaila, Dr. Jon Lambert and Dr. Natalia Curto

📲 Watch the video: gmpnsf.org/post/unlocking…


📸 ASH

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📣 Discover insights from the Canadian where caregivers, patients, and advocates unite to empower those with MPNs. 

👉🏻 Learn about cheryl petruk's advocacy for awareness and support in the MPN community. 📲 gmpnsf.org/post/empowerme…

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📣 Dive into the insights from the

🩺 Explore the discussion on treatment challenges, patient education, and the potential of long-term Interferon therapy. Learn about allele burden and its impact on MPN care.

📲 gmpnsf.org/post/interfero…

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🌟 Join us for the inaugural episode of the series, where we delve into the inspiring stories of people affected by MPNs. In this first episode, we explore the remarkable journey of our president Peter Loffelhardt, as a PV patient.

📹 gmpnsf.org/post/mpn-hope-…

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💭 Curious about the discussions from the on Fatigue and Mental Health? 

👉🏻 Hear from patients as they share their stories about the mental health challenges they face.

📲 Full video: gmpnsf.org/post/fatigue-a…

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Global MPN Scientific Foundation(@gmpnsf) 's Twitter Profile Photo

📣 Discover vital insights on holistic health in MPNs from France's

👉🏻 Karin Tourmente 💉💉💉💉💉, president of Vivre Avec Une NMP, emphasized the critical importance of holistic care. 

📲 Full video: gmpnsf.org/post/holistic-…

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Global MPN Scientific Foundation(@gmpnsf) 's Twitter Profile Photo

🔬Curious about ?

👉🏻Join Dr. Stefanie Schier-Mumzhiu, Director and Global Program Operational Head at MorphoSys, for an insider's look at the phases, safety protocols, and toxicity evaluations 🩸

📲 gmpnsf.org/post/exploring…

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🌐 On International Women's Day, let's shine a light on the resilience of women with Myeloproliferative Neoplasms (MPNs). 🩸

💜 Explore some empowering stories in our latest blog! 📲 gmpnsf.org/post/empowerin…

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📢 How can and help your emotional well-being? 🧘🏼

👉🏻 Dive into our latest blog to explore the transformative benefits of these practices for managing stress and enhancing emotional resilience in MPNs. 

📲 Discover more: gmpnsf.org/post/enhancing…

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📣 Exciting news! Peter Loffelhardt (Peter Loffelhardt) introduces our new video series inspired by the 2024.

👉🏻 Join us as we explore mental health in the MPN community around the world. 

📲 More details in the new video: gmpnsf.org/post/upcoming-…

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📣 Thrilled that our founder, Peter Loffelhardt, joined AOP Health's session at the GasteinForum! Highlighting our dedication to and Myeloproliferative Neoplasms (MPNs), types of rare blood cancer. Let's amplify awareness together! 🩸

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European Hematology Association(@EHA_Hematology) 's Twitter Profile Photo

As many hematologic disorders are in the rare disease category, for , we focus on the importance of education, research, & advocacy to ensure better patient care.
Learn more:
eha.fyi/Advocacy
eha.fyi/education
eha.fyi/research

As many hematologic disorders are in the rare disease category, for #RareDiseaseDay, we focus on the importance of education, research, & advocacy to ensure better patient care. Learn more: eha.fyi/Advocacy eha.fyi/education eha.fyi/research
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🌟 2024: Shining a Light on MPNs 

🩸 MPNs are a group of rare blood cancers that cause an overproduction of one or more types of blood cells. 

📲 Read more: gmpnsf.org/post/rare-dise…

 

🌟 #RareDiseaseDay 2024: Shining a Light on MPNs  🩸 MPNs are a group of rare blood cancers that cause an overproduction of one or more types of blood cells.  📲 Read more: gmpnsf.org/post/rare-dise…  #MPNsm
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🩸 Explore the intricacies of MPNs with us – together, let's raise awareness! Unlock insights into MPNs. 

🌟 Empowered understanding fuels impactful action. 📲 Know more about MPNs on our website: gmpnsf.org/mpns

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