Join us at the Boston Convention Center for the World Orphan Drug Congress USA 2024, April 23–25. Dr. Harsha K Rajasimha, Ph.D., founder of IndoUSrare, will speak on 'AI & Digital Health for #RareDiseases : Ensuring Inclusive Data.' Don't miss it.

#Indousrare #WODC #DataInclusivity #healthconference

@IndoUSrare assists #raredisease patients globally.

Need support?

Fill out our patient assistance form: bit.ly/patient_contac….

Our committed team will always support you navigating your RARE journey!

#indousrare #patientsupport #patientconcierge #bridgingrare #bridge4rare

Advisory planning committee announced!!!

Introducing our esteemed advisory planning committee members for the most anticipated event of the year.

Stay tuned for more updates:

buff.ly/4aGUWs9

#bridgingrare #RareDiseaseSummit #indousrare #bridge4rare   #rarediseases

Join the Indo US Bridging RARE Summit 2024 in New Delhi from Nov 16-18 to showcase #raredisease research. Last date for #posterabstract submission: May 15, 2024. Register now:
buff.ly/49meoco

#IndoUSrare #summit2024 #BridgingRARESummit #bridgingrare #bridge4rare

On #WorldHemophiliaDay , let's unite rare disease experts to improve lives battling #bleedingdisorders . Together, we raise awareness, share knowledge, & advocate for better healthcare, research, and resources globally.

#BetterLives #TogetherWeCan #RareDiseases #GeneticDisorders

Exciting news: MitoAction joins our Patient Alliance family, supporting individuals with #rarediseases thru' understanding, empowerment, & solidarity.
Join us at: bit.ly/patientallianc…

For donations: buff.ly/3Q0KYK2

#indousrare #allianceforrare #patientalliancemember

11000 #rarediseases exist globally. Organizations like @RareDiseasesInt & Udninternational work to ace #therapydevelopment . #decentralizedtrials is trending in #patientcare . Learn more:
buff.ly/3TXGLYX
Join us: buff.ly/3PZaxeM
To donate: buff.ly/3Q0KYK2
#indousrare

Learn about #PompeDisease , a rare genetic disorder causing muscle weakness. Join IndoUSrare to raise awareness, advocate for early diagnosis, & support underserved patients.

Donate to make a meaningful impact: buff.ly/3Q0KYK2

#RareDisease #togetherwecan #indousrare

Join the movement & support @IndoUSrare in eradicating rare diseases like OCNS!

Contact us to find out how you can get involved: buff.ly/3PZaxeM

Let your donations make a meaningful impact, click here: buff.ly/3Q0KYK2

#indousrare #rarediseases #OCNS #roar4rare

Join the @IndoUSrare Patient Alliance Member program & contribute to accelerating the discovery of diagnoses & cures, providing #raredisease patients with ample hope for treatment.

Connect with us here: bit.ly/patientallianc…

#PatientAlliance #Collaboration #Impact #indousrare

Planning committee announced!!!
Introducing the esteemed Summit Planning Committee for our highly anticipated event of the year! - Indo US Bridging RARE Summit 2024!
Stay tuned for further updates regarding this transformative event!
#BridgingRARESummit #bridgingrare #bridge4rare

Check out Peter Marks, Director of U.S. FDA's Center for Biologics Evaluation & Research, discussing #rarediseases , #globalcollaboration , & #genetherapy at the Indo US #BridgingRARESummit 2023. Watch this: buff.ly/43VTbFd

#indousrare #bridge4rare #bridgingrare

Attention #RareDisease experts! Share your ground-breaking work at the #BridgingRareSummit 2024.
Don't miss this chance to connect with patients, caregivers, advocates, & industry leaders.
Submit your abstract now: bit.ly/bridge4rarespe…

#bridge4rare #bridgingrare #IndoUSrare

Dr. Dave Pearce, President of Innovation & Research at Sanford Health, to keynote Indo US Bridging RARE Summit 2024 in New Delhi, Nov 16-18.

Join for global rare disease collaboration. Register: buff.ly/4aGUWs9

#RareDisease #IndoUSrare #BridgingRARESummit

Join the IndoUS #BridgingRARESummit 2024 to explore key themes in rare diseases. Submit your poster abstracts here: buff.ly/49meoco.
Submit your speaker abstracts here: buff.ly/3U2fVQJ.
Take part here & connect with the global rare disease community.

#IndoUSrare

Join @IndoUSRare's global community to support rare disease patients worldwide! Fill out our patient assistance request form & be a part of our collaborative research & advocacy efforts. Don't let anyone face the challenges alone.
Join us now! buff.ly/4cERxvL

#indousrare

Your feedback matters! Share your experience with @IndoUSrare on Great Nonprofit to help others understand our community impact. Honest reviews empower us to expand our services. Click here to review: buff.ly/3PLPVGG

#Indousrare #NonProfitReview #CommunityImpact

Attend the #WODC2024 in Boston from April 23rd to 25th & hear Dr. Harsha K Rajasimha, founder of the Indo US Organization for Rare Diseases, talk about 'AI and digital health for rare diseases: Making data inclusive.'

@Orphanconf

#Indousrare #HealthcareConference

Rare Disease Funds Sit Unused. Urgent Action Needed!

Millions remain untapped while patients wait. Let's demand better access and raise awareness. Together, we can bring hope.

Source : timesofindia.indiatimes.com/city/delhi/rar…

#RareDiseaseFunding #RaiseAwareness #PatientSupport #indousrare

Join us in revisiting the discussion on Trisomy Tales with Dr. Kruti Varshney, a leading pediatrician and clinical genetics fellow! As part of Trisomy Awareness Month.

Watch the video - youtu.be/A7JWsoJKPbQ

#bridgingrare #bridge4rare #indousrare