„Bei der Begutachtung von Förderprojekten des BMBF entscheiden #Patientenvertretende immer mit.“ Alexia Parsons, Leiterin des Referats Nationale Dekade gegen Krebs, in der #PEAK -Session beim #DKK2024 . Aspekte der Patientenbeteiligung in Forschungsanträgen werden diskutiert.
#XgegenKrebs

Suche great pleasure and honor to contribute to your important research project Teodora Lalova-Spinks Robbe

„Ich bin sehr stolz, was in den ersten 5⃣ Jahren der #XgegenKrebs geschaffen wurde. #Patientenbeteiligung ist überall dabei. Wir haben viel erreicht', so Jan Geissler.

Interesting presentation of Andreas Hochhaus at #ASH23 about 8 year Asciminib data of phase-I study of Asciminib. With median treatment of -6yrs, only 13% patients discontinued due to AEs. No increased risk of AEs with longer exposure, no new safety signals

Look at these survival curves on CML as presented by Andreas Hochhaus at #ASH23 . Who still remembers the 30% survival curves of the pre-TKI era?

CML expert Andreas Hochhaus presenting data of the CML TIGER study at #ASH23 . 95% 8year survival in this study of newly diagnosed CML patients. Amazing how far we have come in 2023, CML outcome and survival was still so different when I first attended ASH in 2008…

Patient Advocacy at #ASH23

This is what it feels like on a typical #ASH23 evening after 13.49km and 18.012 steps at the San Diego Conference Center, chasing between meetings and sessions all day. The Acute Leukemia Advocates Network (ALAN) team at the ASH’s Annual Meeting calls it a day for today :)

Heute Talk aus Anlass der Unterzeichnung der Bund-Länder-Vereinbarung zur #NCT Erweiterung. #Patientenbeteiligung in der #Krebsforschung im NCT ein wichtiger Aspekt. Gemeinsam mehr Erfolg für uns Patienten.

Krebserkrankungen gehören zu den größten Herausforderungen für die moderne Medizin. Unser stärkstes Mittel dagegen ist exzellente Forschung. Mit dem #NCT -Ausbau wollen wir den Durchbruch für die personalisierte Krebsforschung und -medizin schaffen. #XgegenKrebs

💊 Whether it's antibiotic cycles, the regimen for your chronic conditions, or a recommended vitamin supplement, you may have at some point neglected your medication plan.

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⌛ As a dedicated medical professional, we understand that your daily life is often a whirlwind of time constraints and substantial workloads.

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Jan Geissler Patvocates 🗣 'Navigating the healthcare system as a patient is hard, especially when healthcare professionals are not speaking together. We need to break down the silos to ensure the benefit of the patient, from early #detection to #treatment to #QualityOfLife '.

Thank you Ms Bettina @StarkWatzinger, German Federal Minister of Research and Education BMBF, for your wonderful opening keynote of our global CML Horizons conference, hosting around 100 patient advocates from 57 countries in Berlin this weekend! #CMLHZ23 #XGegenKrebs

Main messages of Andreas Hochhaus to doctors treating CML patients:
1st- think about anti-leukemic effect
2nd- know the toxicity profile of all drugs
3rd- consider previous comorbidities
4th- any adverse event adds up on comorbidity
— presented at #CMLHZ23

Great presentation of Fabio Efficace Fondazione GIMEMA at #CMLHZ23 about systematic measurement and reporting of Quality of Life in CML. So important for a cancer patient community where current treatments provide survival close to normal population but most need to take drugs life-long!

To celebrate #CMLHZ23 , the Brandenburg gate has dressed up for us today :-)

Collecting feedback from the community on the work of @CMLnet can be FUN! #cmlhz23