Recent fluoroscopy and digital motion Xray confirmed atlantoaxial instability, lending support to the mechanical hypothesis of #MECFS , #LongCovid , & #PostVac . This finding underscores the profound insights of intuition—since the onset, I suspected a mechanical origin in the neck

Today! Free webinar with a neurosurgeon who listens. Spain's Vincente Gilete MD is star of Renegade Research 1pm EDT Clinician's Roundtable, #medtwitter & pts. CCI, Chiari, TC, Syringomyelia, spinal instability & deformation, esp + connective tissue disorders.
us06web.zoom.us/webinar/regist…

Hey #longcovid - do y’all ever get weakness in your neck/base of neck that feels like it’s too hard to hold up your head? Or like you have been using your neck to lift weights?

When something grows to the point that an organ fails or a person dies, it's called cancer. The doctors aren't the problem. The nurses aren't the problem. The patients are not the problem.

Researchers found viral RNA in “the connective tissue where immune cells are located” up to 2 years post-acute infection.

Could this have anything to do with the relationship between joint hypermobility and #longcovid ?

WHAT is causing our immune systems not to clear the virus?

Hey, #mespine , please help with a recommendation for Dianna if you can:

This is actually the worst traffic I’ve ever seen in central Vermont

So I've got q a query for #PwME . I've been struggling to hold my head up. It feels too heavy and my neck feels so weak and painful. Has anyone else had this? In 2007, I was dropped out of a hoist and damaged my neck, so it's always been weaker but I'm at a loss of what to do!

Study finds COVID-19 worsens #POTS symptoms in most patients. They found that 93% of patients showed symptom escalation post-infection. The majority of patients recovered within 6 months of additional therapy, but 29% persisted with worsened symptoms.
sciencedirect.com/science/articl…

I can't believe my eyes! 👏👏👏

Lead author Dr Jessica Eccles said 'Our study shows, for the first time, that the presence of generalised joint hypermobility (GJH) is a risk factor for long COVID, and that those with hypermobility are likely to have even greater levels of fatigue.' 2/

miragenews.com/joint-hypermob…

1999 article about possible relationship between ME and Chiari/spinal cord compression.

It’s almost unbearable to think of the suffering that might have been spared if anyone in power has bothered to follow up on this.

#MESpine

Except for this one. Multiple hundreds of ME/CFS patients diagnosed with Craniocervical Obstructions since 2019. pubmed.ncbi.nlm.nih.gov/32982905/. Infections can degrade connective tissue in a subset, esp those with connective tissue disorders. NIH session on this recently.

🩻Research shows that many patients with #LongCOVID and #MECFS are also diagnosed with 1 or more connective tissue or structural disorders.

🚨Are you a #pwLC or #pwME and think you might have one of these conditions? Click on the link to learn more!
rthm.com/articles/conne…

After 4 long years of dealing with #LongCovid , I finally got the diagnosis from a specialist at UT Southwest in Dallas and it’s what I thought

Ehlers Danlos Syndrome

Quite surreal despite already “knowing”.

#NotVaccinated so dont start

Renegade Research & RemissionBiome MECFS/LongCovid Self-Experiment live webinar with Dr. Rowe on #MEspine #CCI #MCAS starts now! Follow below for live tweeting the highlights after some time for introductions!

New from Kyle Fargen and his colleagues at Wake.

“Characterizing a new clinical phenotype: the co-existence of cerebral venous outflow and connective tissue disorders”

#MEspine
pubmed.ncbi.nlm.nih.gov/38269002/

”COVID-19 may exacerbate…fibromyalgia & connective tissue diseases such as Ehlers Danlos syndrome, Marfan, & other hypermobility syndromes…These conditions are known to be associated with… ME/CFS, mast cell activation syndrome, and dysautonomia.”
publications.aap.org/pediatrics/art…

I can't believe I'm actually here.

In the fall of 2020, 15 yrs into undiagnosed chronic illness, I came across Jennifer Brea🦒's TEDx talk & I felt 🤯. I met the criteria for #MECFS .

I looked up how Jen was doing & found out about her remission after surgery for #CCI & #tetheredcord

heather — k1llstreakz.bsky.social lolol I’m just thinking about this again bc like, does she think where the head & neck meets is not a joint? The atlanto-occipital is literally the most mobile joint in the human body even if you don’t have EDS/HSD