I have never met a #pwME (or #pwLC ) that have showed resistance to considering alternative diagnoses.

They would love nothing more than to have either the totality of their symptoms (or even some part of them) to be treatable or curable. But that is often not the case.

To solve the problem.

People with HIV shouldn’t have focused on the virus (they get PEM, well before antivirals that is)?

I shouldn’t have focused on Chronic Bartonella that I had 11 years with PEM? Treating that is only what led to PEM going bye bye 👋🏽.

🧵

#LongCOVID #pwLC

In D.C. we saw 🚨🪧'Both of my daughters have Long Covid. More research $$ now!!' We heard calls for #AntiviralsNow #ViralLoadTestsNow $28B+, for NEW legislation.

LCAP listened & took action.
Tell Bernie Sanders HEAL is the way. #HELPHEALUS

Sign ✅ actionnetwork.org/letters/tell-b… #pwLC

Please sign this letter asking for $28 billion a year for #LongCOVID . The current proposed legislation is inadequate.

Make your voice heard #pwLC . Ask for what’s necessary, not for too little. Put patients first.

Must be done today by work day close.

actionnetwork.org/letters/tell-b…

Brilliant.

Now how do we enforce this when an entire medical system is working against most of these for #pwME and #pwLC 🤷‍♀️

#ME #ME cfs #LongCovid #MyalgicEncephalomyelitis #pwME #pwLC #MedTwitter
sciencedirect.com/science/articl…

What does the platelet activation and the glycolytic switch have to do with Long Covid?
This might be why #pwLC have persistently high lactate levels, pain and PEM. Their mitochondria are switching to glycolysis and producing lactate. >

Where did the $1 billion dollar a year penny tray collection plate come from originally?

Anyone remember?

#LongCOVID #pwLC #LC

Do not sell yourself short #pwLC . There is no universe in which $1 billion/yr is an adequate amount for 10s of millions with #LongCOVID .

Sign this letter & let Bernie know it’s not good enough. He was will to spend $40 billion/yr on free tuition, why not on our wellbeing?

Volunteers needed for Dunnes Cornelscourt on May 11th for an hour or two to collect.
#Dublin #pwME #MyalgicEncephalomyelitis #pwLC #LongCovid

We wrote a formal letter to the HELP Committee regarding #LongCOVID legislation. You can view that below.

The work is just beginning and the time is now for a robust #LC bill that has adequate funding for all that’s needed for #pwLC that have been suffering.

Patients first.

Call to #Dublin based #pwME VOLUNTEERS NEEDED to collect for an hour or 2 at Dunnes Cornelscourt Saturday May 11th to raise funds for Tom Kindlon-IrishME charity (May 15th Awareness Day). Charity's been incredibly supportive of #LongCovid cause! Many #pwLC patients have ME diagnosis also

uhm. guys. can ya do me a favor and check this out. thoughts?? 😳👀

prospecbio.com

specifically where they’re located out of too & what they sell…? i got here from looking up info about the genes that were shown to be most affected in #pwLC & vax injury ….😐🫠

We need antivirals no matter what anyone thinks #LongCOVID is caused by.

Get that ingrained in your mind people. They’re still needed for COVID, reinfections, & to prevent new Long Haulers no matter how much you push back against chronic COVID.

#pwLC #LC #TreatChronicCOVID

Everyone wants all pathologies & avenues explored with #LongCOVD , but you must prioritize.

If #pwLC want everything explored properly, ask Bernie Sanders & the Help Committee for more $$ by signing this letter, because $1 billion a year is way too low.

actionnetwork.org/letters/tell-b…

#pwLC #pwME #NEISVoid you can get involved…

Do you or someone that you know have #LongCovid or #MECFS ?

I am running a study to assess the feasibility of using dietary nitrate from beetroot juice to improve cardiovascular health markers in #pwLC and #pwME - no exercise required.

For more information please reach out!