NephCure(@nephcure) 's Twitter Profileg
NephCure

@nephcure

Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.

ID:1275081975968210945

linkhttp://nephcure.org calendar_today22-06-2020 15:03:41

934 Tweets

1,5K Followers

1,0K Following

NephCure(@nephcure) 's Twitter Profile Photo

In 2024, there is $370 million available in research funding to advance impactful medical research in Congressionally-directed topic areas, including Focal Segmental Glomerulosclerosis and Nephrotic Syndrome.

Learn more and register for the webinar!
us02web.zoom.us/webinar/regist…

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Sampson Lab for Kidney Genomics(@TheSampsonLab) 's Twitter Profile Photo

On Monday, April 22nd at 3pm ET, we’re hosting a special webinar with NephCure and Dr. Matthew Sampson, a Pediatric Nephrologist at Boston Children's and @HarvardMed

Join us as we delve into the world of and nephrotic syndrome research. sampsonlab.org

On Monday, April 22nd at 3pm ET, we’re hosting a special webinar with @nephcure and Dr. Matthew Sampson, a Pediatric Nephrologist at @BostonChildrens and @HarvardMed Join us as we delve into the world of #kidneyomics and nephrotic syndrome research. sampsonlab.org
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NephCure(@nephcure) 's Twitter Profile Photo

NBA All Star, Alonzo Mourning, is one of the many people affected by APOL1 Kidney Disease. He talks about the impact of seeing your doctor every year, ask for kidney disease screenings, and to understand the signs.

Find out ways you can spread the word!
resources.nephcure.org/apol1

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NephCure(@nephcure) 's Twitter Profile Photo

This is the most amazing news, it's truly remarkable how treatments have advanced! Wishing Richard every bit of wellness and good health! 💚

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Shivam Joshi, MD(@sjoshimd) 's Twitter Profile Photo

Our paper is finally out online and in print!

'Plant-Based Diets for Kidney Disease: A Guide for Clinicians'

Thank you to Kam Kalantar-Zadeh, MD, MPH, PhD, @Veg_MD, Holly Kramer, MD, MPH, and AJKD!

The paper is free for the next 48 days in case anyone wants to download.

authors.elsevier.com/a/1cRi-z-QW7Pk…

Our paper is finally out online and in print! 'Plant-Based Diets for Kidney Disease: A Guide for Clinicians' Thank you to @kamkalantar, @Veg_MD, @kramer_holly, and @AJKDonline! The paper is free for the next 48 days in case anyone wants to download. authors.elsevier.com/a/1cRi-z-QW7Pk…
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NephCure(@nephcure) 's Twitter Profile Photo

Minimal Change Disease (MCD) is a disorder affecting the filtering units of the kidney (glomeruli) that can lead to symptoms associated with nephrotic syndrome.

Here are some fast facts about MCD that you may not have known:

resources.nephcure.org/kidney-month-2…

Minimal Change Disease (MCD) is a disorder affecting the filtering units of the kidney (glomeruli) that can lead to symptoms associated with nephrotic syndrome. Here are some fast facts about MCD that you may not have known: resources.nephcure.org/kidney-month-2…
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Sampson Lab for Kidney Genomics(@TheSampsonLab) 's Twitter Profile Photo

Kidney research welcomes everyone! Whether you have kidney disease or not, your participation is crucial.

Family members’ genetic information helps identify patterns contributing to a deeper understanding of genetic factors. sampsonlab.org/get-involved

Kidney research welcomes everyone! Whether you have kidney disease or not, your participation is crucial. Family members’ genetic information helps identify patterns contributing to a deeper understanding of genetic factors. sampsonlab.org/get-involved
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Matt Loughlin(@MattLoug) 's Twitter Profile Photo

Kidney disease affects 31 million Americans including Mike, the son of my dear friends Dave & Diane Cappiello. They are holding an event in April to raise funds for NephCure and its mission to find better treatments and a cure for rare kidney disease. give.nephcure.org/event/a-night-…

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Sampson Lab for Kidney Genomics(@TheSampsonLab) 's Twitter Profile Photo

Finding strength and support is crucial on the nephrotic syndrome journey. Organizations like @NephCure and Nephrotic Syndrome Foundation are beacons of knowledge and empathy.

They stand as pillars for patients and families affected by nephrotic syndrome.

Finding strength and support is crucial on the nephrotic syndrome journey. Organizations like @NephCure and @NephroticF are beacons of knowledge and empathy. They stand as pillars for patients and families affected by nephrotic syndrome. #PedNeph
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NephCure(@nephcure) 's Twitter Profile Photo

This Kidney Month, NephCure is partnering with Sampson Lab for Kidney Genomics to bring you important resources and information on kidney genomics!

If you want to learn more about BIGKiDs, visit sampsonlab.org/bigkids or email [email protected]

This Kidney Month, NephCure is partnering with @Sampson Lab for Kidney Genomics to bring you important resources and information on kidney genomics! If you want to learn more about BIGKiDs, visit sampsonlab.org/bigkids or email bigkids.biobank@childrens.harvard.edu
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NephCure(@nephcure) 's Twitter Profile Photo

Please reach out to your Member of the U.S. House of Representatives and ask them to immediately sign-on to a key bipartisan letter from the Co-Chairs of the Congressional Kidney Caucus, Larry Bucshon, MD and Rep. Suzan DelBene!

aakp.org/center-for-pat…

American Association of Kidney Patients

Please reach out to your Member of the U.S. House of Representatives and ask them to immediately sign-on to a key bipartisan letter from the Co-Chairs of the Congressional Kidney Caucus, @RepLarryBucshon and @RepDelBene! aakp.org/center-for-pat… @KidneyPatients
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NephCure(@nephcure) 's Twitter Profile Photo

On , NephCure is leading the charge by sharing educational materials, patient stories, and more throughout March! We invite you to join us in advocating for 'Kidney Health for All.'

Here are some fast facts for you to share during World Kidney Day!

On #WorldKidneyDay, NephCure is leading the charge by sharing educational materials, patient stories, and more throughout March! We invite you to join us in advocating for 'Kidney Health for All.' Here are some fast facts for you to share during World Kidney Day!
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TampaPigJig(@TampaPigJig) 's Twitter Profile Photo

Have you entered our 50/50 raffle? Your participation fosters community here in the local area with those currently those battling kidney diseases like FSGS. Get your tickets by this Friday and you could win a TPJ merch pack including this t-shirt!

🔗: rafflebox.us/raffle/tpj

Have you entered our 50/50 raffle? Your participation fosters community here in the local area with those currently those battling kidney diseases like FSGS. Get your tickets by this Friday and you could win a TPJ merch pack including this t-shirt! 🔗: rafflebox.us/raffle/tpj
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NephCure(@nephcure) 's Twitter Profile Photo

What is nephrotic syndrome?

Nephrotic Syndrome is a collection of signs and symptoms characterized by dysfunction in the part of the kidney that filters blood (glomeruli).

Learn more here!
resources.nephcure.org/kidney-month-2…

What is nephrotic syndrome? Nephrotic Syndrome is a collection of signs and symptoms characterized by dysfunction in the part of the kidney that filters blood (glomeruli). Learn more here! resources.nephcure.org/kidney-month-2…
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