NET Cancer Day(@netcancerday) 's Twitter Profileg
NET Cancer Day

@netcancerday

Worldwide NET Cancer Awareness Day is an awareness-raising event coordinated by INCA, the International Neuroendocrine Cancer Alliance.

ID:173149290

linkhttps://incalliance.org/ calendar_today31-07-2010 15:35:40

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📢Updates on International Guidelines for Management of Patients – now you can watch the recording of this insightful webinar from Pheo Para Alliance Alliance with world renowned experts Dr. Karel Pacak and Dr. David Taieb: incalliance.org/pheo-para-webi…

📢Updates on International Guidelines for Management of #Pheo #Para Patients – now you can watch the recording of this insightful webinar from @PheoPara Alliance with world renowned experts Dr. Karel Pacak and Dr. David Taieb: incalliance.org/pheo-para-webi… #LetsTalkAboutNETs #MedEd
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Functioning ( ) can present with common symptoms like high blood sugar levels and high blood pressure.
We support HCPs to know about ACC for early detection with in 11 languages: incalliance.org/net-info-packs/

Functioning #AdrenocorticalCarcinoma (#ACC) can present with common symptoms like high blood sugar levels and high blood pressure. We support HCPs to know about ACC for early detection with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #EndoTwitter #MedEd
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On we put the spotlight on the uncommon neuroendocrine cancer of the ovary. Symptoms can be the same as the common ovarian cancer.
🎯We call for HCPs to consider NETs with in 11 languages: incalliance.org/net-info-packs/
World Ovarian Cancer Day & WOCCoalition

On #WorldOvarianCancerDay we put the spotlight on the uncommon neuroendocrine cancer of the ovary. Symptoms can be the same as the common ovarian cancer. 🎯We call for HCPs to consider NETs with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs @OvCancerDay
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👉Prof. Strosberg on “Practice-Changing Research in NETs”: I would like to see more trials for cell therapy - an area with a potential for long-term remission, not just controlling disease for a short period.
☑️Watch the video: incalliance.org/prof-jonathan-…

👉Prof. Strosberg on “Practice-Changing Research in NETs”: I would like to see more trials for cell therapy - an area with a potential for long-term remission, not just controlling disease for a short period. ☑️Watch the video: incalliance.org/prof-jonathan-… #LetsTalkAboutNETs #MedEd
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On , let’s remind the and that lung neuroendocrine cancer can be disguised in asthma-like symptoms.
We help HCPs to not be misled.
☑️Get your in your language: incalliance.org/net-info-packs/

On #WorldAsthmaDay, let’s remind the #pulmonologists and #generalpractitioners that lung neuroendocrine cancer can be disguised in asthma-like symptoms. We help HCPs to not be misled. ☑️Get your #NETInfo in your language: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #LungTwitter
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Merkel Cell Carcinoma (MCC) accounts for about a third of rare skin cancers.
👉Mariska (the Netherlands) was lucky to get a diagnosis in 6 weeks. Her GP suspected something uncommon and sent her for biopsy.
✅Watch Mariska’s story: incalliance.org/stories/marisk…

Merkel Cell Carcinoma (MCC) accounts for about a third of rare skin cancers. 👉Mariska (the Netherlands) was lucky to get a diagnosis in 6 weeks. Her GP suspected something uncommon and sent her for biopsy. ✅Watch Mariska’s story: incalliance.org/stories/marisk… #LetsTalkAboutNETs
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Genetic NETs are most commonly misdiagnosed for a psychosomatic type of condition. Being aware of NETs can help HCPs to mind the zebra through common symptoms.
☑️We help clinicians with in 11 languages: incalliance.org/net-info-packs/

Genetic NETs are most commonly misdiagnosed for a psychosomatic type of condition. Being aware of NETs can help HCPs to mind the zebra through common symptoms. ☑️We help clinicians with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #EndoTwitter #OncTwitter
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Delayed genetic NETs diagnosis is a significant challenge. Almost half of Gen NET patients were initially misdiagnosed ( ).
🎯We help HCPs to have NETs in mind through common symptoms with in 11 languages: incalliance.org/net-info-packs/

Delayed genetic NETs diagnosis is a significant challenge. Almost half of Gen NET patients were initially misdiagnosed (#SCAN). 🎯We help HCPs to have NETs in mind through common symptoms with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #EndoTwitter
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👏Kudos to AMEND CEO Jo Grey 🇺🇦🇪🇺🇬🇧– the first ever patient to present the patient perspective at the 2024 Seoul International Congress of Endocrinology & Metabolism (SICEM).
Find out more: incalliance.org/amend-presents…

👏Kudos to @AmendInfo CEO @JoGrey2022– the first ever patient to present the #MEN patient perspective at the 2024 Seoul International Congress of Endocrinology & Metabolism (SICEM). Find out more: incalliance.org/amend-presents… #LetsTalkAboutNETs #MultipleEndocrineNeoplasia
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Adriana from Uruguay spent 10 years with symptoms and visited 6 psychologists, a psychiatrist, an internist, a neurologist and an oncologist.
She calls for more awareness about NETs among HCPs.
Watch Adriana’s story: incalliance.org/stories/adrian…

Adriana from Uruguay spent 10 years with symptoms and visited 6 psychologists, a psychiatrist, an internist, a neurologist and an oncologist. She calls for more awareness about NETs among HCPs. Watch Adriana’s story: incalliance.org/stories/adrian… #LetsTalkAboutNETs
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👏Let’s support NeuroEndocrine Cancer Australia (NECA) in their efforts to support patients with Von Hippel-Lindau (VHL)! NECA asks all Australians with across the globe to share their story.
☑️Find out more here: incalliance.org/neca-vhl-patie…

👏Let’s support @NECancerAus (NECA) in their efforts to support patients with Von Hippel-Lindau (VHL)! NECA asks all Australians with #VHL across the globe to share their story. ☑️Find out more here: incalliance.org/neca-vhl-patie… #LetsTalkAboutNETs #EndoTwitter
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( ) is a cancer that starts in the outer layer of the adrenal gland. Symptoms might include swelling and weight loss.
☑️We support HCPs for early detection with in 11 languages: incalliance.org/net-info-packs/

#AdrenocorticalCarcinoma (#ACC) is a cancer that starts in the outer layer of the adrenal gland. Symptoms might include swelling and weight loss. ☑️We support HCPs for early detection with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #EndoTwitter #MedEd
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The April 2024 issue of the INCA Monthly Newsletter on NET projects and news across the globe is out now.
📲Subscribe to our newsletter to get the global NET community news in your inbox: incalliance.org/inca-monthly-n…

The April 2024 issue of the INCA Monthly Newsletter on NET projects and news across the globe is out now. 📲Subscribe to our newsletter to get the global NET community news in your inbox: incalliance.org/inca-monthly-n… #LetsTalkAboutNETs
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PNETs can produce # VIPoma. It results in very watery, frequent diarrhea, changes in blood potassium levels and low stomach acid.
👉Consider the uncommon NET if symptoms persist.
☑️Download in 11 languages: incalliance.org/net-info-packs/

PNETs can produce # VIPoma. It results in very watery, frequent diarrhea, changes in blood potassium levels and low stomach acid. 👉Consider the uncommon NET if symptoms persist. ☑️Download #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #GITwitter
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🎯“Patients need to be involved in trial design to both refine and answer the right questions, to produce good quality results.”
📲Watch the insightful presentation by Prof. Michael, recorded for INCA: incalliance.org/prof-michael-m…

🎯“Patients need to be involved in trial design to both refine and answer the right questions, to produce good quality results.” 📲Watch the insightful presentation by Prof. Michael, recorded for INCA: incalliance.org/prof-michael-m… #LetsTalkAboutNETs #clinicaltrials
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🎯“Patients need to be involved in trial design to both refine and answer the right questions, to produce good quality results.”
📲Watch the insightful presentation by Prof. Michael, recorded for INCA: incalliance.org/prof-michael-m…

🎯“Patients need to be involved in trial design to both refine and answer the right questions, to produce good quality results.” 📲Watch the insightful presentation by Prof. Michael, recorded for INCA: incalliance.org/prof-michael-m… #LetsTalkAboutNETs #clinicaltrials
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👏Great experience from Neuroendocrine Cancer New Zealand Unicorn FoundationNZ!
👉A patient education event was held on the similarities and differences in GI NETs treatment in Canada compared with New Zealand.
☑️Find out more: incalliance.org/new-zealand-pa…

👏Great experience from Neuroendocrine Cancer New Zealand @UnicornFoundNZ! 👉A patient education event was held on the similarities and differences in GI NETs treatment in Canada compared with New Zealand. ☑️Find out more: incalliance.org/new-zealand-pa… #LetsTalkAboutNETs
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👉Julian from Germany spent 2 years with symptoms of weight loss, flushing and diarrhea. The NET diagnosis came after visiting a third doctor. He already had metastasis to the liver.
📲Watch Julian’s story: incalliance.org/stories/julian…

👉Julian from Germany spent 2 years with symptoms of weight loss, flushing and diarrhea. The NET diagnosis came after visiting a third doctor. He already had metastasis to the liver. 📲Watch Julian’s story: incalliance.org/stories/julian… #LetsTalkAboutNETs #GITwitter #OncTwitter
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