📢 Exciting News Alert! 🌟 We're thrilled to announce the beginning of a groundbreaking initiative: The development of UK clinical guidelines for PANS and PANDAS!

Read the full blog post here: panspandasuk.org/post/work-begi…

#PANS #PANDAS #Healthcare #ClinicalGuidelines #UKHealthcare

Thank you so much Notes to my boy ✉️

🌟 Join Us for Our Monthly Support Group Event in Doncaster! 🌟

🗓️ Date & Time: Saturday, April 27th | 11:00 am - 1:00 pm
📍 Venue: Bawtry Mayflower Primary School
Station Road, Bawtry, Doncaster, DN10 6PU

#PANSPANDASSupportGroup #DoncasterCommunity #TogetherWeThrive 💙

Notes to my boy ✉️ NB I really, honestly wish there was something, anything that I can do to help you and your families. Noone, not a soul, should go through this nightmare. Will always keep you in my thoughts with hope to hear some good news one day. Until then, stay strong, stay sane. Much love, e

Notes to my boy ✉️ I, like him, never heard of it…even with 18 years in Nursing. You are definitely teaching us through your notes to your boy. 💙🙏🏼💙

Another day another lovely DM. Thank you to the open minded and positive Neuroscientist who sent me this lovely message. We always have hope ❤️

Notes to my boy ✉️ One of the beautiful things for your son to see after his recovery will be the “Notes” you wrote him. What an amazing father you are !!! Stay positive 💙 Your son is coming back soon !!!

I’ve just had this lovely message thru on DM. Such a positive (and similar) story. Gives me lots of hope that we can get our beautiful boy back 🙏 a big thank you to the person who has sent it. ❤️

Notes to my boy ✉️ Thanks. Was so sad to read about your boy.

🏴󠁧󠁢󠁳󠁣󠁴󠁿 SECONDARY TEACHERS IN #SCOTLAND 🏴󠁧󠁢󠁳󠁣󠁴󠁿
Now that the seniors have gone on study leave, if you have capacity for 1 hour of FREE #CPD join one of #PANS #PANDAS UK CPD sessions. Pertinent for all teachers - but especially pastoral care and #ASN

#Pans #Pandas is such a debilitating & 💔 illness - there needs to be more awareness & improved treatment pathways 🙏🏻💚 #Pans PandasHour

Ok so this is a last attempt! My baby girl is so lonely right now. It's her 13th birthday tomorrow and her friends have ditched her. Her #anxiety & #ocd are consuming her 🥺 I just want her to be happy on her birthday

More than 1m people have read this post about a boy with PANS/PANDAS, a rare and poorly recognised condition that with prompt attention is very treatable.

Read my article about PANS/PANDAS from last year...

Notes to my boy ✉️ please contact me if you can/want too and I will send you my number or Snapchat or whatever’s easiness for you ❤️ keep fighting for your family and friends bc we all love you ❤️xx 4/4

Notes to my boy ✉️ You’re not alone Issac . I promise you now what you’re going through and how you feel is normal for PANDAS kids . You will find your way out of this dark tunnel you’ve fought this far and baby steps are the way to go ❤️
Too anyone who’s reading this there is support out there 3/4

Notes to my boy ✉️ This was me (on the left) around 2 years ago when my ocd was horrendous and I was petrified of myself . I was worried I was going to hurt my family or my friends and I isolated myself from the world just like how you do .
This is me now (on the right) 3 years later 2/?

Notes to my boy ✉️ Hey Issac I’m not sure if your reading this or not but I had the pleasure of meeting your dad Mark today and what an incredible man he is ❤️ I also have PANDAS and have for 3 years.
I wanted to reach out on here in hopes you see it and I can tell you that you’re not alone 1/?

Notes to my boy ✉️ OH my God. The trying to jump out of moving cars and the begging to 'Let me die' will haunt me forever. It was the absolute worst thing with my son.

Very lucky today to be asked to contribute by PANS/PANDAS UK as a parent of a child with PANS PANDAS as we try to put in place UK clinical guidelines for our children. I 🙏 that change is coming. I love you Son ❤️

Watching your previously happy, confident child change after a #Strep infection is 💔😢. Seeing them struggle with painful motor & vocal tics & other debilitating symptoms.
This is our 2nd time with a 4 year gap in onset - still the lack of awareness is shocking #PansPandasHour