We are delighted to host a #learndis and #EoLC workshop today for SE London professionals led by phoebe mooney and @suemarsden6 and welcoming as speaker Lloyd Page. Starting the afternoon with lunch!

Another wonderful event at St Christopher's CARE! 🌞This time about palliative care and learning disability. Andrea Bruun gave a talk about our project - and our toolkit already had an impact! Thank you Sue Marsden 💙, phoebe mooney, and Emma for the invite and a great day #learningdis #EoLC

Reasonable adjustments like:
- Visiting a hospice before an appt / stay
- adaptations to home to enable somebody to stay there (moving to ground floor/additional care)
- skills to break bad news and support discussion of end of life care
- MDT working with LD teams & pal care

Soooo excited at the next #LD and #EOLC project coming out of Kingston University and Irene Tuffrey-Wijne and many others (supported by NIHR Research ) . Such an incredible project!!

If you work in SE London (and Croydon) we are holding a learning disability and palliative care workshop at St Christopher's CARE
Sue Marsden 💙
Sign up below 👇🏽

stchristophers.org.uk/course/closing…

It’s been super fun to work with a fantastic group using arts based methods to help co-produce our next easy read ‘planning ahead’ booklet 🙌🏾

Can’t wait!!
Real honour to have been a part of it

Think I must have watched this 10 times already
🙌🏾🙌🏾🙌🏾👊🏻👊🏻👊🏻

The PCPLD Network ethos is that people with a learning disability should receive the coordinated support needed in living their lives to the full, until the end of their life.
Please nominate us below 👇🏽👇🏽

Thousands of women with incurable HER2-low secondary breast cancer have been denied access to Enhertu.

Thank you to everyone who helped us reach 100,000 signatures in less than 1 week in our #EnhertuEmergency petition.

You can still add your name: action.breastcancernow.org/enhertu-emerge…

❤️

How are we still seeing ‘learning disability’ / ‘Down’s syndrome’ for a reason on a DNACPR form
People do not die from having a learning disability

Death may occur as a consequence of co-occurring physical disorders and serious health events..a learning disability isn’t fatal

Learning disability annual health checks are still important if somebody has a life limiting diagnosis.
They help to find other health problems early & identify other possible unmet health needs

Fab evening at the CharityComms #inspiringcomms awards night. Feeling very grateful to have been shortlisted for our easy read St Christopher's booklet for people with a learning disability!

Was also lovely to meet colleagues from Demelza Charity comms team!

We're nominated for a CharityComms award tonight for phoebe mooney and our Comms team's work in creating this Easy Read version of our patient and carer booklet stchristophers.org.uk/booklet-welcom…

Good luck to all the nominees 😀

#InspiringComms

Use these books a lot in practice for people with learning disabilities & can’t recommend enough. The pictures tell the story of the death of a parent in a simple but moving way.
Helpful for pre and post bereavement

booksbeyondwords.co.uk/bookshop/paper…

Today is #EpilepsyDay

Out of every 100 people with a learning disability, around 22 also have epilepsy

At the end of life a person will need to have their usual anticonvulsant meds changed when the oral route is lost (e.g unable to swallow)

Something to be aware of 💭

How are shocking things like this still happening?? 😢

bbc.co.uk/news/uk-englan…

All of us in the office were profoundly moved by Stuart’s story, who lived every moment of his life until he died - and had planned for this. Thank you to his team for sharing it and PCPLD Network for hosting today’s webinar. Missed it? Catch up here bit.ly/4bl5eiC

The Royle family - Queen of Sheba is quite possibly my favourite episode of anything. Ever 💕💕💕