Arvind was already used to living with heat intolerance, joint pain & exhaustion as a child.

He was used to living with #Fabry Disease .

April is #Fabry AwarenessMonth & is our opportunity to spread awareness, as #Fabry is hugely underdiagnosed in India.

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Early diagnosis and timely treatment can significantly improve the quality of life
#raredisease #raredisease day #raredisease awareness #BharatKeLiye

On World #RareDiseaseDay today, the need for equity permeates those living with RDs (Rare Diseases) the most.
With the broadest & widest portfolio of our RD therapies, we're driven by #EquityInInnovation to make our medicines available in India.
OPPI India
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Millions with #RareDiseases go unnoticed for their needs.
~96mn live in India. By creating registries, building capacity like fellowship programs, setting up Centres of Excellence, we're committed to #EquityInSupport . Learn more. linkedin.com/posts/sanofi_d…
OPPI India Anil Raina

As we lead up to the commemoration of #RareDiseaseDay (29th February), watch Alka's story to see how #EquityinAccess can transform the lives of those living with these debilitating disorders.

Read more here: linkedin.com/posts/sanofi_w…

Sanofi India OPPI India Anil Raina

While there is no cure for #MultipleSclerosis (MS), existing treatment options can help slow its progression.

On #WorldMSDay today, see Avantika's story to know how much there is to be done still, to help improve the lives of those living with MS.

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On #MPS AwarenessDay today, we celebrate 20-years of the 1st #EnzymeReplacementTherapy for #MPS I – over two decades of producing a definitive treatment for this disorder, which is the only therapy for MPS I as on date.

See how it transformed Akash's life.
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#MPSAwarenessDay is approaching.

It spreads awareness of #Mucopolysaccharidosis (MPS), a genetic #lysosomalstoragedisorder caused by the body’s inability to produce a specific enzyme.

The journey to its diagnosis is difficult, so let’s cut to the chase.

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On #InternationalPompeDay we stand by those courageous people who tell us their stories of living with Pompe, to help shape the way the world sees this disorder!
Early diagnosis & timely treatment can make a huge difference in their lives.
See 1 such story
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April is Pomp Awareness Month:
It is a rare, progressive illness that shares symptoms with other neuromuscular conditions. Because of this, delays in diagnosis are common. Increasing awareness & education on #Pompe disease is vital to accelerate diagnosis.
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April is #Fabry AwarenessMonth , a hugely underdiagnosed disease in India. See how Dr. Arvind battled #Fabry & how early diagnosis and timely treatment can help.

Read more here: sanofi.in/en/about-us/em…

See Dr. Arvind's story: linkedin.com/posts/sanofi_d…

#RareDiseaseDay matters! RDs are life-threatening & require long-term, specialized mngt. Working with key decision makers, policy shapers & opinion leaders have set wheels-in-motion; but a 'Roar for Rare' is needed to make them a public health priority.
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#EveryLifeIsPrecious

Awareness of rare diseases needs improvement as is the diagnosis. This is true for all states and truer for NE states. Supplementing with the Centre's efforts, #ASSOCHAM is deliberating among experts to set out the way forward.

#health care #health #raredisease #NPRD

#EveryLifeIsPrecious

This month, Sanofi Specialty Care celebrates over 30-yrs of treating #GaucherDisease .

We stand together with the rare global community to commemorate 3 decades of brining hope to the lives of many; to reflect and recognize this important milestone.
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'Prajwal now lives a happy and healthy life' – Vanitha

Over 3 decades since we launched the 1st Enzyme Replacement Therapy for #Gaucher .
Over 30 years of existence of our Humanitarian initiative.
Countless moments of feeling proud of being a Sanofian.
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'I live a normal life!' - Deepesh

Over 3 decades back since Sanofi's 1st treatment for #Gaucher was approved by the USFDA in 1991, it has been years of tireless efforts to ensure we provide standard of care treatments to people with #Gaucher Disease.
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Today is #InternationalMPSAwarenessDay .

The journey to an MPS diagnosis is long & complex. The sooner we all #ChaseTheSigns , the faster we help people with MPS.

Today, let’s cut to the chase. You too, can identify MPS & help in early diagnosis & timely treatment.

#ChaseTheSigns to diagnose MPS soon!
In the race between symptom progression & diagnosis, there’s not a moment to lose.
Help more MPS patients Cut to the Chase and Chase the Signs of MPS.
See Lavanya’s story on conquering MPS I.

#InternationalMPSDay #EveryLifeIsPrecious #15April