We’re honoured to be recognised alongside Sarcoma UK in the #SPAGN2024 Advocacy in Action Awards for our collaborative funding call looking to #AdvanceDiagnosis of bone & soft tissue sarcomas. We are advocating for improved diagnosis through research. ow.ly/lCBi50RoO55

Reflecting on an inspiring weekend at #SPAGN2024 , learning from fellow sarcoma patient advocates from across the world. A huge thank you to SPAGN for bringing our global community together & hosting such an important meeting. Collectively, we will make a difference.

It was a pleasure to lead the SPAGN Bone Sarcomas Track together with my co-chair ZoeDavison from Bone Cancer Research Trust. Excellent speakers brought patients up to date on the advances regarding #bonesarcomas ,Thank you ALL!

📢 #MarkUrCalendars ! ESMO - Eur. Oncology #VirtualPlenary for May 2024: Results from randomized study of 6yrs vs. 3yrs of #adjuvant #imatinib in #highrisk #GISTs presented by Jean-Yves Blay. Expert commentaries by #internationalexperts from #US / #Europe & #AsiaPacific . Don't miss this!…

Previous at Spagn conference in Rome.
Visiting doctors in the USA next week for collaboration in the field of phyllodes.

We have attended annual conference organised by SPAGN in #Rome , #Italy .

Rashi Kapoor Got the opportunity to present work on desmoid tumors in our country.

Thanks to Dr Sameer Rastogi Lakshay Nagpal Bijila Saji, all patients and caregivers for their support.
#SPAGN2024

TGCT Support SPAGN Emanuela Palmerini Mehdi Brahmi Thank you Sydney Stern, PhD, MS TGCT Support SPAGN for inviting me! It was a crowded session, very insightful and helpful for all the TGCT patient community! Brilliant future for new projects and collaborations!

SPAGN 👏👏👏

instagram.com/p/C5_IuXWg7T3/…

#SPAGN2024 #bonesarcomas

April is #EHEawareness month. Please like and share these facts!

📌 EHE is characterized by two gene fusions: WWTR1-CAMTA1 and YAP1-TFE3.
Approximately 90% of EHE cases are marked by fusion of the WWTR1 and CAMTA1 genes, with10% marked by fusion of the YAP1 and TFE3 genes.

Delighted to gather with sarcoma advocates at the #SPAGN2024 Annual Conference. Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of national Sarcoma Patient Advocacy Organizations. #GISTeducation #ThrivingTogether

The Bone Sarcoma Alliance is open and welcomes bone sarcoma patient groups/networks which wish to be part of it and share its values.For more information: [email protected]
#SPAGN2024 #bonesarcomas

Proud of the amazing turnout for the #TGCTTrack for #SPAGN2024 . Our community is mighty 💪🏻thank you Uli Deck, Artis Photography, for capturing the event!

SPAGN Thank you Sarcoma Patient Advocacy Global Network for organizing a tremendous conference to bring us all together and for the travel award. It was an honor to attend, connect with and learn from passionate leaders in the global sarcoma community. #SPAGN2024

How does #molecular #diagnostics apply to #sarcomas that show an intrinsic biological complexity and different types of genetic and molecular alterations?Excellent speech by prof Prof.Wardelmann at SPAGN annual conference
#SPAGN2024

SPAGN Deutsche Sarkom-Stiftung Thanks SPAGN for having me with you in your meeting, a great opportunity for me to learn while listening to you and discussing #sarcoma research

#SPAGN2024 comes to an end with closing remarks from our Board Chair Markus Wartenberg. Thanks to everyone who came out to celebrate #15YearsOfSPAGN ! Already can't wait until next year!

We close out Day 3 of #SPAGN2024 with a fascinating conversation on AI. Maria Brandt of Deutsche Sarkom-Stiftung talked about using ChatGPT & AI assisted tools to save time creating content & increase your reach. And Dr. Sandro Pasquali spoke about using AI to support #sarcoma research.

This weekend Spagn conference in Rome. Where Marloes and Frederieke van Duijnhoven Antoni van Leeuwenhoek gave a presentation about phyllodes tumors.