Good morning everyone, How are you guys today???? I hope all of you have a amazing Monday You all are so so amazing ❤️❤️❤️ #22q I am so glad to be back #22q
As Someone who has a Disability one day I eventually want a part time job do you guys have faith in me I could do it? Im thinking maybe like a Grocery store or something like that #22q
Today I have the Dentist, The reason why I need to Take meds before I go is so I don’t get a infection because with 22Q it’s easier to get infection #22q
Things in life lately have been so so amazing and wonderful I can’t tell you guys I’m so happy I’ve been doing a lot of amazing things and stepping outside my comfort zone and my health/Cardiac has been super healthy I’m so blessed #22q
Hey everyone, Headed off for the night have not been feeling the best today sorry if I haven’t been feeling the best hope all of you understand ❤️❤️❤️ #22q
I’ll tell you what’s really challenging. Raising my kid. The types of problems that have zero solutions. The kind of medical conditions that have no cures.
The issues of heart defects and type 1 Diabetes. Autoimmune; things that affect every day activity.
Did the same 22 years ago, she is 40 now and still being reviewed for medical card. And yes, she grew up not out of #22q The mind boggles at the amount of admin & unnecessary cost of all this senseless bureaucracy.
