Amazing 2 days in Wash DC representing #scarringalopeciafoundation and patients living with a skin disease. Important meetings held with legislators to advocate for #SafeStepAct and #AllCopaysCount plus increased research funding to the NIH. #csdonthehill #patientadvocacy

Honored to spend a day with leaders from Coalition of Skin Diseases, advocating on the Hill for skin diseases. Highlights: Speaking at a Congressional Briefing about #pachyonychia , meeting Dr. Isaac Brownell from NIAMS, talking with health reps from the House & Senate.
#CSDontheHill

So great to advocate for access to care and research funding for the skin disease community with my National Eczema colleagues on the Hill this week! #SafeStepAct #AllCopaysCount #CSDontheHill

Thrilled to have spent the week with my National Eczema colleague, Lisa. We have the best job, advocating for patients!

#csdonthehill #eczema #patientadvocacy

PeDRA's Executive Director, Mike Siegel, PhD, is proud to be advocating for patients with skin diseases alongside PC Project and other advocacy partners at the 2023 Coalition of Skin Diseases Hill Day! 🎉

#csdonthehill #PeDRA #pedraresearch #dermtwitter

PC Project reps joined the Coalition of Skin Diseases and Mike Siegel from PeDRAResearch to advocate for patients with debilitating skin diseases. #CSDontheHill #SafeStepAct

Thrilled to be in Washington DC with my National Eczema colleagues! We've been meeting with legislators for their support on #SafeStepAct and #AllCopaysCount !

#csdonthehill

Lisa Butler National Eczema shared #atopicdermatitis out of pocket cost data at today's Congressional briefing. Cost of care, prescriptions and non prescription result in patients spending thousands each year! This is why we support
#safestepact #allcopayscount #csdonthehill

45 patient advocates and representatives from two dozen skin disease organizations participated in 80 meetings with the offices of 80 senators and representatives during the 2nd annual Coalition of Skin Diseases day. #csdonthehill #safestepact #allcopayscount

Thank you Jessica McNeice from Senator Dick Durbin's office for speaking with us about the needs of the 84million living w/ #skindisease #sarcoidosis #CSDonTheHill #allcopaysmatter #SafeStepAct #NIAMS FSR Coalition of Skin Diseases

That’s a wrap! What an honor to be at a congressional briefing at #csdonthehill and sit on a panel with PC Project, healourskin, HSconnect.org - HS Connect, and National Eczema to raise awareness for #skindiseases ❤️

#coalitionofskindiseases #PeDRA #pedraresearch #dermtwitter

Thank you to Ashley Shelton from Rep. Rick Crawford office for speaking with us about the needs of the 84million living w/ #skindisease #sarcoidosis #CSDonTheHill #allcopaysmatter #SafeStepAct #NIAMS FSR Coalition of Skin Diseases

Thank you Jessica Liu from Senator Tammy Duckworth's office for speaking with us about the needs of the 84million living w/ #skindisease #sarcoidosis #CSDonTheHill #allcopaysmatter #SafeStepAct #NIAMS FSR Coalition of Skin Diseases

PC Project's Executive Director, Janice Schwartz, speaks about PC at a Congressional Luncheon in Washington DC. #csdonthehill #PainfulCalluses #RareDisease youtu.be/RI_z9bc5qiE