#ICYMI Rachel Plachcinski Rachel Plachcinski is an Oxford-based researcher specializing in parent, patient & public involvement in #HealthCare . Her #HealthDataForAllOfUs keynote, Public Involvement & Engagement in Data Intensive Research, is now online!
➡️ youtu.be/C4AK9AuwMwgl
Follow along with the rest of the forum by following HDRN Canada - RRDS Canada or checking out #HealthDataForAllOfUs !
CEO of HDRN Canada - RRDS Canada Kim McGrail - It is our job to design an system with the innovation we want rather than wait for the innovation to come. #HealthDataForAllofUs
Open Access ~> 'Healthcare systems: typologies, framework models, and South Africa’s health sector' in International Journal of Health Governance doi.org/10.1108/IJHG-1… #HealthInsurance #Canada #Germany #UK #SouthAfrica
In our panel Making Health Data an Ally for All of Us - Stephanie Sinclair of First Nation Health & Social Secretariat of Manitoba discusses the impact of doulas on the wellbeing of Indigenous mothers & babies using nation-based indicators to measure health #HealthDataForAllofUs
Recommendation 2: Jurisdictions demonstrate support for data sovereignty across geographies with distinctions-based approach #healthdataforallofus
Attendees identifying and discussing the most important problems data-intensive health research should focus upon #HealthDataforAllofUs
What should the collectors, holders, and users of administrative health data do to overcome these barriers?
#HealthDataforAllofUs
Integrating climate action is essential to build a resilient health system. WHO announces an urgent call for climate action to build resilient and sustainable health systems.
who.int/news/item/24-0… #climate #ClimateAction #publichealth #HealthEquity #HealthForAll #healthcare
Did you catch this session at yesterday's #HealthDataForAllOfUs forum? Read their article: How can health data be used for public benefit? 3 uses that people agree on - theconversation.com/how-can-health…
This word cloud was created through audience participation, online and in-person, at the #HealthDataForAllOfUs Forum. The audience was asked what are the 2 most important problems data-intensive health research should focus upon? HDRN Canada - RRDS Canada
#ICYMI Dr. Kim McGrail Kim McGrail is the HDRN Canada - RRDS Canada Scientific Director & CEO. Check out her recent talk on the #HealthData ecosystem & #HDRNCanada + all recordings from our #HealthData ForAllOfUs forum
➡️ youtu.be/1OXJ9h2euNA
The final session of #HealthData ForAllofUs is underway! @maureenchats explains why multi-jurisdictional #HealthData access is critical for rare disease research.
Next up - Dr Amy Freier will be facilitating a discussion on patient public priorities for HDRN Canada - RRDS Canada and data-intensive research #HealthDataForAllofUs
Hani Ataan Al-Ubeady, member of HDRN Canada - RRDS Canada Public Advisory Council: Data collectors must understand cultural dynamics & create dialogue using culturally trusted ambassadors to engage with the community or group from whom the data is being gathered #HealthDataForAllofUs
Making health data an ally for all of us. @maureenchats discuss Rare Diseases Data top 5: 1. Need interoperability; 2. Are we measuring what is important for pts?; 3. Need data to improve care; 4. Importance of pt registries 5. Concerns with privacy issues
#HealthDataforAllofUs
Up next at #HealthData ForAllofUs , alison paprica (she/her) Julia Burt Annabelle Cumyn & Roxanne Dault discuss their research on #SocialLicence for uses of #HealthData
📖 theconversation.com/how-can-health…
