Today is #HoFH AwarenessDay .
People living with homozygous familial hypercholesterolemia remain undiagnosed and misdiagnosed worldwide.
In sharing her journey, Maria urges early detection of #HoFH to avert and manage premature heart disease: worldheart.org/heart-heroes/m… #Unite4HoFH
🔴 2024 Clinical practice recommendations on lipoprotein apheresis for children with #HoFH : An expert consensus statement from ERKNet and ESPN #OpenAccess Atherosclerosis
atherosclerosis-journal.com/article/S0021-…
#CardioEd #cardiology #cardiox #CardioTwitter
HSVI, as a member of FH Europe Foundation is supporting their first #HoFH AwarenessDay .
HoFH is the rare & severe form of FH, a genetic lipid condition that causes high #cholesterol .
If you have #HoFH , we would love to hear your #PatientVoice 👉 heartandstrokevoice.ie
#Unite4HoFH
4 de maig dia de conscienciació sobre la hipercolesterolèmia familiar homozigòtica (HoFH)
#Unite4HoFH per a:
➡️ Educar la comunitat
➡️ Millors opcions de detecció i tractament
➡️ Donar suport a les persones que viuen amb HoFH
👉 lc.cx/O8l26B
#ascahifa #UniteHoFH
📆 Día de la #hipercolesterolemia familiarhomocigota #HoFH
#Maythe4thbewithyou !
Es una forma rara de #hipercolesterolemia , que afecta la salud cardiovascular, mental y calidad de vida.
Se puede prevenir
fhef.org/hofh-awareness…
#Unite4HoFH FH Europe Foundation
#KnowHoFH #FindHoFH
HoFH affects beyond health, impacting self-perception & opportunities. Despite challenges, resilience shines. Empowerment through education & advocacy can improve outcomes. #Unite4HoFH #RareDisease #UseHeart to #KnowHoFH and #FindHoFH #Maythe4thbewithyou
#Unite4HoFH 4 de maig dia de conscienciació sobre la hipercolesterolèmia familiar homozigòtica (HoFH)
Per a:
➡️ Educar la comunitat
➡️ Millors opcions de detecció i tractament
➡️ Donar suport a les persones que viuen amb HoFH
👉 lc.cx/O8l26B
#xulacatalunya #UniteHoFH
Managing #HoFH requires a lifelong, multi-faceted treatment approach. Access to care and affordability remain global challenges. #Unite4HoFH #RareDisease
#UseHeart to #KnowHoFH and #FindHoFH #Maythe4thbewithyou
The ERKNet/ESPN recommendations on LA for children w/ #HoFH advise to start LA as early as possible if LDL-C is >300 mg/dL despite optimal LLT. In children w/ HoFH and evidence of ASCVD, starting LA is advisable for LDL-C>130 mg/dL (despite optimal LLT)
👉 atherosclerosis-journal.com/article/S0021-…
High LDL cholesterol in HoFH progresses rapidly, causing early artery blockage, heart attacks, and strokes. Early detection is crucial for treatment. #Unite4HoFH #RareDisease #UseHeart #KnowHoFH #FindHoFH #Maythe4thbewithyou
Join our logo competition: fhef.org/news/hofh-logo…
Every day, somewhere in the world, a child with a rare & a severe form of genetic high #cholesterol is born.
If not detected & treated, the child is at a high risk of developing serious❤️heart health issues. #HoFH is a #raredisease but can be effectively diagnosed! #Unite4HoFH
In children w/ HoFH, the risks of liver transplantation and post-transplant immunosuppressive therapy should be carefully ⚖️ against the risks of persistently ⬆️ LDL-C, and the benefits of the new potent LLT
👉atherosclerosis-journal.com/article/S0021-…
#KnowHoFH #FindHoFH #Unite4HoFH #UseHeart
One Galaxy, One Heart, United for HoFH
youtube.com/@fheurope-thee…
We have shared our message to raise awareness regarding HoFH. Check it out Mutaz Al-Sabah International Atherosclerosis Society (IAS) European Atherosclerosis Society