TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

Did you know we have a resource library to help you and your family learn more about how to live your best life with Marfan syndrome? buff.ly/3tkcSc8 Syndrome

account_circle
Dr Alla Gopala Krishna Gokhale(@DrGokhaleAGK) 's Twitter Profile Photo

What is ? How Does It Affect ?

Marfan Syndrome is a rare genetic disorder affecting connective tissues. It notably impacts the heart, leading to , , and .

Know more at: drgokhale.com/blog/what-is-m…

What is #MarfanSyndrome? How Does It Affect #Heart?

Marfan Syndrome is a rare genetic disorder affecting connective tissues. It notably impacts the heart, leading to #aorticaneurysms, #valveissues, and #arrhythmias. 

Know more at: drgokhale.com/blog/what-is-m…
account_circle
TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

Is your teen trying to navigate their diagnosis? Share advice from other teens living with Marfan syndrome: buff.ly/3Tk6hcc Syndrome

Is your teen trying to navigate their diagnosis? Share advice from other teens living with Marfan syndrome: buff.ly/3Tk6hcc #Marfan #MarfanSyndrome
account_circle
TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

Are you ready to learn how the practice of meditation and breathing can contribute to your overall well-being? Who will we see at our next webinar? buff.ly/4dfragf Syndrome

Are you ready to learn how the practice of meditation and breathing can contribute to your overall well-being? Who will we see at our next webinar? buff.ly/4dfragf #Marfan #MarfanSyndrome
account_circle
TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

It’s Mental Health Awareness Month. We’re here for you! Check out our daily calendar of affirming activities: buff.ly/3xYfhLA Syndrome

account_circle
TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

Do you need a place to talk about the every day issues related to living with a connective tissue condition? Join us for A Time to Talk: Monday Matters! buff.ly/4blXjAM Syndrome

Do you need a place to talk about the every day issues related to living with a connective tissue condition? Join us for A Time to Talk: Monday Matters! buff.ly/4blXjAM #Marfan #MarfanSyndrome
account_circle
Family Giving News(@FamilyGiveNews) 's Twitter Profile Photo

Anemia vs. Hemophilia Explained 🩸 Dr. Y. Raghavendra Rao [Video] Anemia: Lack of red blood cells or hemoglobin, leading to oxygen transport issues.Hemophilia: Deficiency in clotting… dlvr.it/T6Q3JV

account_circle
TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

It can be hard to ask for help after a surgery or just while you're living your every day life. Use these worksheets to communicate the kind of support you need: buff.ly/3uydxah Syndrome

account_circle
TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

Are you interested in participating in a study? Learn about current research studies seeking participants: buff.ly/487BVOC Syndrome

account_circle