Update! I def have exogenous #CushingsSyndrome & moving into secondary #AdrenalInsufficiency as a result of #Paxlovid and inhaled #Fluticasone #ArnuityEllipta #Flonase interaction!
π§΅re #NIHRecover Vital trial experience! 0 stars!
#NIHRecover #LongCovid #CYP3A4
I am looking forward to representing the Sabra Klein Lab by presenting my postdoc #LongCOVID research on #sexdifferences for the Keystone Symposia on the Pathogenesis and Treatment of PASC. I will be presenting a poster and short talk this evening #KSLongCOVID24 #NIHrecover
Iβm excited to share my poster at Keystone Symposia #LongCOVID and #PASC of #SARSCoV2 Pathogenesis and Treatment, this August! Join me in Santa Fe to connect with #NIHRecover #ChronicFatigue #MECFS research leaders. keysym.us/KSLongCOVID24 #KSLongCOVID24
I had the privilege to be an author on 'Development of a Definition of Postacute Sequelae of SARS-CoV-2 Infection' published in JAMA led by tanayott (tony) thaweethai part of the #NIHRECOVER initiative to get answers regarding #longCovid .
jamanetwork.com/journals/jama/β¦
CWRU School of Medicine Case Western Reserve University (CWRU) Postdocs
Dysautonomia Intl. charlos NIH Hey NIHRECOVER my kid has had long covid for 1,231 days and counting. #MyKidAintBetter
Important finding from the #NIHRECOVER study on #LongCovid and obstructive sleep apnea. NYU Langone Health
My son Alex ran 18 miles today.
He had Long Covid in 2020, with severed POTS until he got an experimental stem cell transplant that fall. He had a headache for 7 straight months, a rhr of 125, couldn't walk half a mile.
Why isn't the #nihrecover trialing stem cells in LC?
Thought I would give #NIHRECOVER another go. This is what I got. Please check back in if I get COVID again in the future. WTAF
#LongCovid NIH fail
'VUMC receives $28 million to lead national study of COVID-diabetes link'
CODAβs goal is to gain a deeper understanding of the link between COVID-19 and diabetes that can guide future treatment interventions and public health approaches.
newswise.com/coronavirus/vu⦠#nihrecover
Researchers are making progress in defining Long COVID! An #NIHRECOVER study identified and grouped symptoms among adults.
They also found that Long COVID was more common in those unvaccinated at the time of infection.
Source: ow.ly/GJLS50PE8le
Explore emerging #NIHRecover #ChronicFatigue #MECFS research with field leaders Keystone Symposia Long COVID and Post Acute Sequalae of SARS CoV 2 (PASC): Pathogenesis and Treatment, this August in Santa Fe! keysym.us/KSLongCOVID24 #KSLongCOVID24
NIH NHLBI If #NIH Recover funded the #Nanoneedle as an #MECFS biomarker along with the other dozen biomarkers #NIH would have 1/2 of #LongCovid solved and be chasing clinical trials using those markers.
#NIH is treating #LongCovid and #MECFS with gendered prejudice.
We can all see it. /2
Image 1 - day 6 of trial. Note butterfly rash. I was def in an autoimmune flare (I have a UCTD dx). Image 2 - tonight day 27 treatment ended 2 nights ago I am 4 lbs lighter, my breasts are deflated (meaning Iβm not retaining water)
#NIHRecover #RecoverVITAL #Paxlovid #LongCovid
For more about the Committee see: recovercovid.org/leadership
#LCF #NIHRECOVER #HealthcareLeadership
Mostly good news. Perfect? No. Fast? Absolutely not. Moving in the right direction? Definitely.
By the way, other than ivabradine and IVIG currently in #NIHRecover trials, we have a number of other drugs that have been used for autonomic dysfunction for decades. I list them inβ¦
We were honored to host ADM Rachel Levine for roundtable discussions on #NIHRECOVER and listen to #longcovid patients, researchers and caregivers. Kudos to Kristine Erlandson as site PI and Sarah Jolley, MD, MSc who leads the Long COVID clinic. Proud to be part of the robust research ecosystem CU Anschutz Medical Campus!
Dr. Monica M. Bertagnolli @NIH CDC THE GOOD NEWS:
-If truly 'additional', $515m USD #NIHRECOVER funding shows some #LongCOVID prioritization in tough NIH budget moment
-Press release in Dr. Monica M. Bertagnolli name, when could have buried on NIH website. Shows some key stakeholder attention & deliberate leadership choice 4/x
ποΈπ #DYK people hospitalized with COVID could experience these symptoms? Visit recovercovid.org/research-summaβ¦ to keep up with what RECOVER researchers are learning!
#Atlanta #Emory #Morehouse #KPGA #Emory Hope #Atlanta VAMC #COVID #LongCOVID #NIHRECOVER
.CCTSI and CU Anschutz Medical Campus were honored to host
ADM Rachel Levine to discuss #LongCovid and #NIHRECOVER . A special thank you to RECOVER Colorado patients who joined caregivers and researchers to share their experiences.
Explore emerging #NIHRecover #ChronicFatigue #MECFS research with field leaders Keystone Symposia Long COVID and Post Acute Sequalae of SARS CoV 2 (PASC): Pathogenesis and Treatment, this August in Santa Fe! keysym.us/KSLongCOVID24 #KSLongCOVID24