BexGoneWest(@BexGoneWest) 's Twitter Profile Photo

Ok, day 7 of and I hope you'll forgive me a personal one. My daughter's epilepsy (caused by 2 rare genetic conditions) is presently out of control. As much as I know SUDEP is rare, it leaks into my head in the early hours when cradling my gorgeous girl

Ok, day 7 of #RealCarersWeek and I hope you'll forgive me a personal one. My daughter's epilepsy (caused by 2 rare genetic conditions) is presently out of control. As much as I know SUDEP is rare, it leaks into my head in the early hours when cradling my gorgeous girl
#CarersWeek
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MuMster74(@MuMster74) 's Twitter Profile Photo




Today I am for day procedure.
I should be spending more time in recovery than expected, but I have to get back to caring for my son asap!
Care plan tweaked to allow this to happen, as safely as possible.
My procedure is vital for my health. 🙏

#RealCarersWeek
#UnpaidCarer
#ImOne
Today I am for day procedure. 
I should be spending more time in recovery than expected, but I have to get back to caring for my son asap!
Care plan tweaked to allow this to happen, as safely as possible.
My procedure is vital for my health. 🙏
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Clare(@CaringCourage) 's Twitter Profile Photo

Some meds that we give daily. Some are controlled drugs. Titrated. The injections are for a portacath. District & hospital nurses don't have this training. are highly skilled . I save the govt 100's of 1000's.

#CarersWeek #RealCarersWeek Some meds that we give daily. Some are controlled drugs. Titrated. The injections are for a portacath. District & hospital nurses don't have this training. #UnpaidCarers are highly skilled #IAmNotEconomicallyInactive. I save the govt 100's of 1000's.
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Aisling McNiffe 🇵🇸 #Striving #VoteYesNo(@McNiffecent) 's Twitter Profile Photo



There are many charities who help carers/ families of children with life limiting illnesses & ⁦Little Blue Heroes Foundation⁩ are one such charity. Here is a photo of Shane, Jack’s Garda buddy who recently dropped in to say hi & our lovely nurses came in for a photo too!

#RealCarersWeek 

There are many charities who help carers/ families of children with life limiting illnesses & ⁦@LilBlueHeroes⁩ are one such charity. Here is a photo of Shane, Jack’s Garda buddy who recently dropped in to say hi & our lovely nurses came in for a photo too!
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Tracy 💜 ☮️📸 ✍🏼🏠 🇳🇴(@AddressingLife) 's Twitter Profile Photo

It’s in the UK; next week here in Ireland. aka:

I want to highlight what happens when the long-term caring role ends after many years. The carer is left with no career, income, savings or pension; now aged, physically & emotionally broken. Then what?

It’s #CarersWeek in the UK; next week here in Ireland. aka: #RealCarersWeek

I want to highlight what happens when the long-term caring role ends after many years. The carer is left with no career, income, savings or pension; now aged, physically & emotionally broken. Then what?
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Sam Smith-Higgins(@SamSmithHiggins) 's Twitter Profile Photo

I’m a carer. This is our local park. I’m not angered by it. It makes me laugh. It was put there by well meaning people, but 2 years on, it’s underfunded, unsupported and only the strongest few flowers thrive. The rest of us are lost in the long grass.

I’m a carer. This is our local park. I’m not angered by it. It makes me laugh. It was put there by well meaning people, but 2 years on, it’s underfunded, unsupported and only the strongest few flowers thrive. The rest of us are lost in the long grass. #RealCarersWeek
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Aisling McNiffe 🇵🇸 #Striving #VoteYesNo(@McNiffecent) 's Twitter Profile Photo



Last day. Just want to say how helpful it is when people with disabilities are considered. Easy access, beach wheelchair along with a changingplaces.ie makes life so much easier & more enjoyable. ⁦Access For All Ireland⁩ ⁦A day in my wheels⁩ ⁦

#RealCarersWeek 

Last day. Just want to say how helpful it is when people with disabilities are considered. Easy access, beach wheelchair along with a changingplaces.ie makes life so much easier & more enjoyable. ⁦@AccessForAll7⁩ ⁦@adayinmywheels⁩ ⁦#inclusion
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MuMster74(@MuMster74) 's Twitter Profile Photo

My bio says it all really!
I work unpaid round the clock.
This is my job.
I do not volunteer.
I love my son, and my commitment to him is until death.
This does not mean I wouldn't welcome a little respite now and again.
My tired, is tired 🙇🏼‍♀️


My bio says it all really!
I work unpaid round the clock.
This is my job.
I do not volunteer.
I love my son, and my commitment to him is until death.
This does not mean I wouldn't welcome a little respite now and again.
My tired, is tired 🙇🏼‍♀️
#RealCarersWeek
#UnpaidCarers
#ImOne
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Holly Bunty(@hollybunty) 's Twitter Profile Photo

👛'It destroyed us.' 👛

The words of a parent
on the excessive travel costs
of visiting her very unwell child,
for 180 days,
at a regional specialist centre in Belfast.

▶️'We only eat off bargain shelves.'


It doesn't have to be this be like this.
👁‍🗨⤵️

👛'It destroyed us.' 👛

The words of a parent #carer
on the excessive travel costs
of visiting her very unwell child, 
for 180 days, 
at a regional specialist centre in Belfast.

 ▶️'We only eat off bargain shelves.'
#RealCarersWeek

It doesn't have to be this be like this.
👁‍🗨⤵️
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Barbara Keeley 💙 🇺🇦(@KeeleyMP) 's Twitter Profile Photo

I spoke at a House of Commons debate on the challenges facing unpaid carers for .

The debate was an opportunity to offer carers more than just recognition. But the Government is choosing apathy over action. Carers are fed up with warm words.



1/8

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Shubhanna Hussain(@Shubhanna) 's Twitter Profile Photo

I'm not sure if many young carers in Scotland will be aware of this. But if you have a Young Carer Package linked to your Young Scot card then log into your account and you should be able to claim your £50 Tesco voucher - Every little helps😅

I'm not sure if many young carers in Scotland will be aware of this. But if you have a Young Carer Package linked to your @YoungScot card then log into your account and you should be able to claim your £50 Tesco voucher - Every little helps😅
#CarersWeek2023 
#RealCarersWeek
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Janis Griffiths(@griffiths_janis) 's Twitter Profile Photo


So tired of repeating myself over and over again to prevent actual harm to my loved one. It's easy enough to care for him if you listen and follow the rules.

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Rachel George 💙(@ordinaryhopes) 's Twitter Profile Photo

After a day of caring alone, discovered at 8:40pm that son needed a shower & his sling and wheelchair cushions washed. Much hoisting and physical effort needed.

I rarely mention this side of life but too many think carers just drink tea & assist with shopping.

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