I've battled emphysema, mechanical lung disease from ankylosing spondylitis (AS), and problems related to a connective tissue disease since childhood. I was forced to taper off analgesics at the end of 2017 and experienced destabilization as a result. A #RealPainStories 🧵
1) #RealPainStories #MedicalTrauma
In addition to having several chronic pain conditions my daughter has a heart condition & a seizure disorder.
She had been established with a PM for 4 yrs until he sold his practice.
After the practice sold she was discharged
I just got my #ChronicPain diagnosed and my recommended treatment plan is 6 weeks of physical therapy, nsaids, TaiChi, acupuncture, massage, and swimming
I can't afford any of these treatments if my insurance doesn't pay
#RealPainStories #PainAwarenessMonth National Pain Advocacy Center
Jed Finley National Pain Advocacy Center #realpain stories #realpain . Pre fusion C1 to T1. L2L3 post fusion L4 to S1 with Fibro and Adhesive arachnoiditis nerve damage to membrane of central nervous system. The hardest thing to deal with is hardly any specialist understands what AA is nor willing to learn what it is
National Pain Advocacy Center Thank you National Pain Advocacy Center for everything. All the #RealPainStories were so beautiful to see.
I have an idea in honor of #NDEAM & #DEHEM21 - #RealPainStories InAcademia
To be in #ChronicPain in an ableist academy is a nightmare.
Disabled in Higher Ed - #DisInHigherEd Disabled Academic Collective
Tinu Abayomi-Paul - Empress of Twerk National Pain Advocacy Center I look forward to joining the next #DisabledBlackTalk . Our #RealPainStories bring together racism and ableism at times.
I am so sad too. My #ADHD and #PTSD have come together and I am just numb. Last night the cop made a point to say I was a victim & it is echoing in my soul 😔
You deserve so much better, @daynise77. Support from hospice should not be gate-kept to the diagnoses that they accept. Healthcare in America is broken.
National Pain Advocacy Center HealthAdvocateX APHA Disability #RealPainStories #PainAwarenessMonth
Quoted Tweet:
Since it's #PainAwarenessMonth I decided to share my #RealPainStories .
It started as a child, ive always been in pain. No one believed me and said it was just growing pains. Would always complain on my knees hurting and couldn't do any sports.
Y'all never get to see the day-to-day me.
I asked my friend, Denice, to snap this today when she was over to take my trash out. No posing, no premise, nothing to show but my boring experience in an acute 7-9 pain flare.
Intractable pain isn't always a grimace.
#RealPainStories
In 2009 I had to stop my Masters program. Brain fog & #Chronicpain was just too much. I also have #Dyslexia & most didn’t think I’d graduate high school. But I did graduate with a Masters Diploma.
#RealPainStory #PainAwarenessMonth
#ShineALightOnFibro
#Fibro
#RealPainStories
We are the only human beings on the planet that are treated so inhumanely for having a medical condition #chronic #pain
#Discriminated against, #shamed , treated as #criminals for asking for pain relief. Denied choices, forced tapered off #opioids & left to die
#RealPainStories
I'm just tired of the pain. #RealPainStories #PainAwarenessMonth National Pain Advocacy Center
I hate how if you are chronically ill you can only get good care when you self advocate, but often we are too sick to self advocate because we haven't received any care! #MedicalNeglect #RealPainStories
Bev Schechtman I have pts I'm advocating for in their 60s & 70s going to the streets. The stories I'm told are nothing shy of HORRIFYING.
September is #PainAwarenessMonth . National Pain Advocacy Center is helping us to share our #RealPainStories . I’m making a thread to share my own story, and I hope others will do the same.
I moved to Pahrump, NV, in 2007. It was a fresh start, but never would I imagine like this…
Pain, what pain? Haven't you heard already, it's all in your head? #RealPainStories #PainAwarenessMonth National Pain Advocacy Center
Benjamin Rubin Meembeam MoogieMonster Ellen Faith 🥳James The Pain Community Appreciate your interest
See #RealPainStory #MedicalTrauma #RealPainStories for how the #OverdoseCrisis & RX Shame & Blaming has impacted people with Painful Incurable Diseases & Injuries
twitter.com/hope411adcock/…
I have made peace for the fact my friends won't wish me on my birthday till i upload a story 🥲
#RealPainStories