Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

A new Peer Mentor Program is now available for bereaved parents in Australia. If you are bereaved & want to contribute to parents whose children died from a condition, we invite you to this info session on Wed 26 Jun, 10.45am AEST:
bit.ly/3yClGwc

A new Peer Mentor Program is now available for bereaved parents in Australia. If you are bereaved & want to contribute to parents whose children died from a #childhooddementia condition, we invite you to this info session on Wed 26 Jun, 10.45am AEST:
bit.ly/3yClGwc
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Lafora Initiative(@laforainitiativ) 's Twitter Profile Photo

It may look like Angelina is beating the odds with but she is still having natural progression

No child should suffer like this. If you can help give us a voice, please reach out to me. ❤️ Niki (Ange's mum)

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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

We love Renee's intro to her kids. She's one of the parents raising awareness to create change. Sadly, Hudson, Holly and Austin all have caused by Niemann-Pick disease type C. You can see Renee’s full interview here: bit.ly/3SuyYRz

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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

They’re all terminal. They all progressively rob kids of their cognitive and physical abilities. Bringing these disorders together makes them impossible to ignore. You can see a stationary list here: bit.ly/3uHAJmN

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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

There is no language for the grief as a child loses their life to dementia bit by bit. Noah died when he was only 8. Please donate to our appeal for children with dementia. childhooddementia.org/takes

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Laura De Paoli(@lozzieology) 's Twitter Profile Photo

Today is Childhood Dementia Awareness day so my colleagues and I at Wicking took part in the campaign run by the Childhood Dementia Initiative.
The goal? To make impossible to ignore.
childhooddementia.org/faceit

Today is Childhood Dementia Awareness day so my colleagues and I at Wicking took part in the #FACEit campaign run by the Childhood Dementia Initiative.
The goal? To make #childhooddementia impossible to ignore. 
childhooddementia.org/faceit
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Chelsea's Hope Lafora Children Research Fund(@Chelseashopela1) 's Twitter Profile Photo

is a neurodegenerative affecting children. Symptoms onset around puberty & include , , ataxia & difficulty talking/walking/eating. It's genetic & currently terminal. But we have for a cure! 💜

#LaforaDisease is a neurodegenerative #RareDisease affecting children. Symptoms onset around puberty & include #Epilepsy, #ChildhoodDementia, ataxia & difficulty talking/walking/eating. It's genetic & currently terminal. But we have #Hope for a cure! 💜
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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

We're seeking a new Education Lead to run our Education Projects and Community of Practice. Pleas share with anyone you think make be interested! childhooddementia.org/join-us#job

We're seeking a new Education Lead to run our Education Projects and Community of Practice. Pleas share with anyone you think make be interested! childhooddementia.org/join-us#job #childhooddementia #education
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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

It’s hard to think about for kids, right? But parents shared they wished they'd found it earlier. These quotes are from our report ‘We don’t fit’ on families’ experiences with Australia's health care & support services: bit.ly/3MHXifV

It’s hard to think about #palliativecare for kids, right? But parents shared they wished they'd found it earlier. These quotes are from our report ‘We don’t fit’ on families’ experiences with Australia's health care & support services: bit.ly/3MHXifV #childhooddementia
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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

This is Mark Butler MP, Australia’s Federal Minister for Health and Aged Care, inviting families to take part in important new research. The purpose is to learn about the broad impacts of childhood dementia.
More information is here: bit.ly/3vSLh2S

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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

This is Angelina (centre) who has childhood dementia, her mum Niki (left), and our CEO Megan (right) after meeting today with the Honourable Anne Stanley MP, who spent time to really understand the urgent need for change. Anne Stanley MP

This is Angelina (centre) who has childhood dementia, her mum Niki (left), and our CEO Megan (right) after meeting today with the Honourable Anne Stanley MP, who spent time to really understand the urgent need for change. #advocacy #childhooddementia @AnneWerriwa
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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

Can you help us reach families about this important research? Researchers at UNSW and Sydney Children's Hospitals Network are seeking parents / primary carers for this important research. More information is here: childhooddementia.org/news/insight-r…

Can you help us reach families about this important research?  Researchers at @UNSW  and @SCHNkids are seeking parents / primary carers for this important research. More information is here: childhooddementia.org/news/insight-r… 
#research #childhooddementia
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Childhood Dementia Initiative(@Child_Dementia) 's Twitter Profile Photo

We invite Western Australian families impacted by to take part in this special in Perth on 27 March. The focus: experiences accessing health care and support services. bit.ly/49Us8fX

We invite Western Australian families impacted by #childhooddementia to take part in this special #consultation in Perth on 27 March. The focus: experiences accessing health care and support services. bit.ly/49Us8fX  #childhooddementia  #listening #longtable
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