💻 Join our next ERN-Skin Webinar
📆 28th May 2024, 1:00 pm – 2:00 p m CET
📣 Thymic dysplasia, autoantibodies to type I IFNs, and viral diseases in women with incontinentia pigmenti
👉 Register here: ec.europa.eu/eusurvey/runne…
#ernskin #webinar #europeanreferencenetworks #dysplasia

#EPNS2023

🔴 NOW ON : « Rare neurological disorders in children and the role #EuropeanReferenceNetworks  »

Our coordinator Teresinha Evangelista is presenting our #ERN and focus on the #EURONMD Registry hub which is operational since May 2023!

#EPNS2023 : join us at the #EuropeanReferenceNetworks session this afternoon at 17h15, in the main congress hall!

The ERN Coordinators will speak about rare neurological disorders in children and the role of the ERNs.

⁦ERN-ITHACA⁩ ⁦ern euro_nmd⁩ ⁦MetabERN⁩

Welcome to Utrecht 🇳🇱🧠

Today the 2023 EpiCARE Annual meeting started, and for the next 2 days we will focus on determining the objectives of the network for the next 4 years, sharing and updating each other on good practices and networking.

#EuropeanReferenceNetworks #ERNs

We saw lots of EpiCARE members at #EPNS2023 in Prague 🇨🇿 !

Our network is lucky to be composed of inspiring experts in all epilepsy fields 🧠

#epilepsy #neurotwitter #EuropeanReferenceNetworks #ERNs

ERN-Skin Board Meeting 2023

Open to ePAGs and ERN-Skin Board members

🗓️ 6th November 2023
🕑 9:00 AM - 4:15 PM
📍Location: Hôpital Necker-Enfants Malades, Paris, France

For more information check the event program: ern-skin.eu/ern-skin-meeti…

#ernskin #europeanreferencenetworks

3 #EuropeanReferenceNetworks at the #EAN2023 🧠🤝

European Academy of Neurology ern euro_nmd @ERN_RND 🧠 #neurology

💻ERN-Skin Epidermolysis Bullosa Webinar - 26th September 2023
👉Register here: ern-skin.eu/webinars/

#ernskin #webinar #europeanreferencenetworks #eb #rareskin #epidermolysisbullosa

💻ERN-Skin AIBD Webinar - 27th February 2024, 1:00 pm – 2:00 pm CET
🗓 February, 27th from 1:00 p.m to 2:00 p.m.
📣 Speaker: Prof. Pascal Joly
👉 Register here: ec.europa.eu/eusurvey/runne…

#ernskin #webinar #europeanreferencenetworks #AIBD #rareskin #Bullouspemphigoid #Pemphigus

💻 Join our next ERN-Skin Webinar
📆 30th April 2024, 1:00 pm – 2:00 p m CET
👉 Register here: ec.europa.eu/eusurvey/runne…

#ernskin #webinar #europeanreferencenetworks #DNA #Albinism #photosensitivity

📣 Board meeting: Program Update!
🔹Check out website to discover the latest updates: ern-skin.eu/ern-skin-meeti…

More coming soon!

#rareskin #ernskin #boardmeeting #patients #clinicians #europeanreferencenetworks

Next week: ERN-Skin Epidermolysis Bullosa Webinar

📆 26th Sep 2023 - 1:00 pm - 2:00 pm CET

📣 “Oncogenesis of Cutaneous Squamous Cell Carcinoma in Epidermolysis Bullosa” presented by

👉 Register here: ern-skin.eu/webinars/

#ernskin #webinar #europeanreferencenetworks #eb

What are the actions of the ERN-Skin?

The ERN-Skin focuses on:
- Education & best practice
- Research
- Patient Advocacy
- e-health

👉 More information: ern-skin.eu

#ernskin #rareskin #europeanreferencenetworks #patients #doctors

📣 Wether you are a #skin #ePAG , a chair of a thematic group, #clinician who’s part of the ERN-Skin or just curious about our actions check out the ERN-Skin board meeting key #information sheets:

🔹 Available here: ern-skin.eu/ern-skin-meeti…

#ernskin #EuropeanReferenceNetworks

EpiCARE is at #EAN2023 in Budapest!

Come say hi at booth N16, in the neurohood area 🧠👋🏻

European Academy of Neurology ern euro_nmd @ERN_RND 🧠 #EuropeanReferenceNetworks #Epilepsy #Neurotwitter

The ERN ReCONNET 🇪🇺 Board of Network just ended! An amazing brainstorming with a fantastic group! HaDEA #RareDiseases #ern #europeanreferencenetworks

It is a big honour for all of us to have ⭐️Enrique Terol enrique terol ⭐️ joining the Plenary Meeting of ERN ReCONNET 🇪🇺 talking about the future of #healthcaresystems in Europe. #EuropeanReferenceNetworks #sharecarecure

We are so excited to be in Dublin 🇮🇪 for this amazing congress #IEC2023

Starting tomorrow we will be in the exhibition area, come see us to discuss #rareepilepsies and #europeanreferencenetworks !

#epilepsy ILAE IBE Epilepsy

ERN-Skin webinars will be back in September 2023!
Stay tuned, our calendar is coming soon!

#ernskin #europeanreferencenetworks #doctors #clinicians #rareskin #webinars

Ya está en marcha la VII Jornada de formación y actualización en sarcoma de partes blandas y de los huesos, coordinado por Gloria Marquina, Luis Ortega, Juan Luis Cebrián y Antonio Casado.

#HospitalClínicoSanCarlos #formación #sarcomas #EuropeanReferenceNetworks