In-person scholarships to join our 2024 Global Learning Conference in Philadelphia, PA, USA close today! Learn more and apply here: ehlers-danlos.com/events/2024-gl… #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder
Nominations are now open for The Ehlers-Danlos Society Community Choice Awards 2024! A celebration of individuals who have made an impact & worked for change for those affected by #EhlersDanlossyndrome or #hypermobilityspectrumdisorder . Nominate here: ehlers-danlos.com/events/2024-gl…
Today is #WorldVoiceDay . A webinar with Imogen Roux on voice, breath, #EhlersDanlossyndrome (EDS) and #hypermobilityspectrumdisorder (HSD) can now be watched on our webinar player ehlers-danlos.org/webinars/
May marks #EhlersDanlosAwarenessMonth + it’s also the month my debut novel comes out. I have Hypermobility Spectrum Disorder + deal w/ chronic pain, fatigue, brain fog + joint dislocations. My main character, Cosima, also has HSD. #HypermobilitySpectrumDisorder #EDS #HSD
Questions of rare disease patients:
#raredisease #raredisease s #ehersdanlossyndrome #ehlersdanlos #eds #hypermobility #hypermobility spectrumdisorder #HSD #genetics #genomics #geneticdisease
Please sign!
petition.parliament.uk/petitions/6373…
#petition #hsd #eds #ehlersdanlossyndrome #Hypermobility #hypermobilityspectrumdisorder #chronicpain #chronicfatigue #uk #medical #medicine #healthcare #NHS
warriorjayjo.com/we-found-the-z… #eds #eds awareness #ehlersdanlossyndrome #hsd #hsd awareness #hypermobility #hypermobility spectrumdisorder #mentalhealthmatters #rise #warriorjayjo #warriortribe #zebras #zebras trong
Dr Hani Hattar discusses how culture influences illness and suffering.
When it comes to pain we need to be aware of culture modulation and these 4 things:
1. Awareness
2. Expression
3. Experiencing
4.Modulation #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder
#GLC2023
A splint is a support or device that is used to restrict motion in a part of the body. Ring splints help limit movement in the finger joints, which are often hypermobile in people with a type of #EhlersDanlossyndrome (EDS) or #hypermobilityspectrumdisorder (HSD).
Ring…
Ehlers-Danlos Syndromes: our overview includes subtypes, clinical features, genetics, key points, & considerations for pregnancy. Plus locators for genetic counseling for your patients ow.ly/gbw350P6IMU #HypermobilitySpectrumDisorder #genetics #raredisease #EDS
A really informative video on #EhlersDanlos Syndrome , one of the top 3 pain conditions in the world. And truly DEBILITATING.
youtu.be/w1lqQzEOMyM
#EDS #EhlersDanlos #Hypermobility #hypermobilityspectrumdisorder #raredisease #raredisease s #gene tics #genomics #gene #tnxb …
End of an epic week at #GLC2023 safe travels to all the international zebras 👋 ✈️ 🦓 #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder
#togetherwedazzle #zebrastrong #EDS #hEDS #HSD
The petition for Scotland is finally up and running. Please sign via the link below. The Ehlers-Danlos Society Ehlers-Danlos Support UK #EDS #HSD #EhlersDanlosSyndrome #hypermobilityspectrumdisorder #hEDS #EnoughIsEnough
Feature on postural orthostatic tachycardia syndrome, (POTS) in today's The Washington Post. #POTS , along with #OrthostaticHypotension are the two most common types of orthostatic intolerance seen in people who have a type of #EhlersDanlossyndrome or #Hypermobilityspectrumdisorder :…
Someone please help out my friend in Canada.
#canada #healthcare #raredisease #raredisease s #ehlersdanlos #ehlersdanlos syndrome #jtube #gastroparesis #gp #gastrointestinal #gidisease #geneticdisease #eds #hypermobility #hypermobility spectrumdisorder
Here's a great guide from @scootaround on all the factors to consider when buying a wheelchair as many of us need with an #EhlersDanlosSyndrome or #HypermobilitySpectrumDisorder :
buff.ly/3yJAndw
#EDS #hEDS #HSD #Fibro #FIbromyalgia #NEISvoid #Disability #Wheelchairs
Great psychological support tips at #GLC2023
🦓 Regain self trust
🦓 Forgive your body for what it can’t do
🦓 Be kind to yourself
And remember….
🦓 Everything is always working out for me
#EhlersDanlosSyndrome #HypermobilitySpectrumDisorder #EDS #hEDS #HSD
