Catch our SVP of Corporate and Commercial Strategy, Dan Brennan and Innovation Manager, Martin Skov, at the 2024 MGFA National Patient Conference in Florida from 28-30 April.
myasthenia.org/Events/2024-na…
#Biotech #NeuromuscularDisease

20th day of the year and 7th infusion day of the year (so far) ✌️💜💉
#MyastheniaGravis #RareDisease #neuromusculardisease

Did you see our email update late last week? If not, read it here: conta.cc/4b9eFkq

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy

Great to see this out finally, nice to play out part in this work defining TNNI1-related disease, which may be treatable with small molecules that alter sarcomere function #myotwitter #neuromusculardisease

Congress of the Australasian Neuromuscular Network is this May in Melbourne, with invited speaker Prof Chris Weihl Weihl Lab, join us for a wonderful meeting of basic and clinical myology #myotwitter #neuromusculardisease #myology #neurogenetics

VictorianMuscleNetwork Centre for Muscle Research

Last week we had the pleasure of hosting representatives from several #NeuromuscularDisease patient advocacy groups, Cure SMA, HereditaryNeuropathy, SMA-Europe and Myasthenia Gravis Foundation of America, at #NMDPharma headquarters in Aarhus, Denmark. Thank you to all for taking the time to share & inspire us.

Sunflowers growing in Wyken during The Big Sunflower Project 2023.
#TheBigSunflowerProject #Sunflowers #GrowASunflower #Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy #Centronuclear Myopathies #NeuromuscularDisease #RareDisease #RareDisease s

Sunflower growing in Calgary, Canada during The Big Sunflower Project 2023.
#TheBigSunflowerProject #Sunflowers #GrowASunflower #Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy #Centronuclear Myopathies #NeuromuscularDisease #RareDisease #RareDisease s

Finished my Ultomiris infusion on little sleep but it went ok. IVIG helps but this medication I've been on almost 3 years keeps me stable. Good job everyone. We did it 💪🌈
#myastheniagravis #neuromusculardisease

Make sure to stop by the silent auction today and make a difference with a bid! ✨

#SilentAuction #AmericanNeuromuscularFoundation #ANF #Donate #Neuromuscular Medicine #Neuromuscular Disease #Neuromuscular

#inclusionbodymyositis #neuromusculardisease #IBM #indeelift
Must have for caregiver & patient

.Personalised Medicine Centre This week as part of the PMC 10th Anniversary, we are celebrating Shu-Dong Zhang Roanne Lecky Dumonceaux lab and Gavin McCluskey in the fields of: #Bioinformatics , #Type2Diabetes , #NeuromuscularDisease , and #MotorNeuroneDisease

Kudos to ⁦Drs. Leon-Astudillo, Dy, Prero, ElMallah, Treat and ⁦Caroline Okorie, MD,MPH (she/her)⁩ ⁦Sandeep Puranik MD FAAP ATSF⁩ #pedspulm #neuromusculardisease review ⁦ATSPeds⁩ ⁦Pediatric Pulmonology⁩ #atseducationcommittee ⁦Molly Hayes⁩ ⁦⁦Başak Çoruh⁩ onlinelibrary.wiley.com/doi/full/10.10…

Today is #NationalPatientRecognitionDay 🧡

We want to use this opportunity to recognize all patients fighting rare neuromuscular diseases (NMDs) & wish them well.

The #AmericanNeuromuscularFoundation continues to strengthen the global effort to cure NMDs!

#NeuromuscularDisease

I’m looking forward to meeting more snowflakes in person. 🙌 ❄️ ❤️ #myastheniagravis #miasteniagrave #mg #snowflakedisease #neuromuscular disease #neuromuscular #neurology #autoimmunedisease #chronicillness #raredisease #disabled #disability

Individuals with NMD commonly have a weak and/or ineffective cough that can lead to serious respiratory infections, pneumonia, and hospitalization. There are solutions to make a cough stronger and more effective. Learn more at breathewithmd.org/cough.html.

#NeuromuscularDisease

Individuals living with NMD and their loved ones may enroll in our online course, 'Breathing Muscle Weakness 101, through May 3.
Learn more and enroll at breathewithmd.org/mentoring.html.

#BreathingMuscleWeakness #NeuromuscularDisease #MuscularDystrophy

1/4 Thrilled to announce that our team at U Calgary UCalgary Science is making strides in understanding the molecular mechanisms behind heart and neuromuscular diseases. This research could pave the way for new treatments! 🧬🔬 #MedicalResearch #HeartDisease #NeuromuscularDisease

✨FREE PHYSIOTHERAPY CAMP✨
We are organising a free physiotherapy camp from 11th to 16th March.

#physiotherapycamp #free #musculardystrophy #neuromusculardisease

Packed room #neuromusculardisease #ALS #NIV management CHEST CHEST Sleep Medicine Network - #HMV section - clinical guidelines