Experienced a very unexpected recurrence earlier this year. Praying, praising, crying, laughing, resting and smiling my way through. Romans 8:28
#malignantphyllodestumor #phyllodestumor #rarecancer #raredisease #metastatic

What a start to 2024. Guideline for Phyllodes tumors. And very nice Data research published.
New website online today.
English: phyllodestumor.org
Dutch: phyllodes.nl

2 of my friends shaved their heads in support of my cancer journey. #malignantphyllodestumor #phyllodestumor #rarecancer #raredisease #metastatic #stage4

Did you know that the new website is in Dutch and English? phyllodestumor.org

Maakt jij het mede mogelijk samen Marloes en Marco. Op maar de 30000 euro voor phyllodes tumoren onderzoek en kennis delen.

Heb jij al de nieuwe website gezien over phyllodes tumoren sarcomen.nl/en/phyllodes/

Dutch Phyllodes Group /Contactgroep Phyllodes represent.
Pink/Yellow🎗️

After days of excessive shedding, I took control I got my head shaved and I like it! #malignantphyllodestumor #phyllodestumor #rarebreastcancer #rarecancer #metastatic #beforeandafter

De nieuwe website staat online. Bedankt aan de website werkgroep.

Some self-care to end the week before round 2 of AIM chemotherapy. Facial ✅. Mani/Pedi ✅ Hair ✅ #malignantphyllodestumor #phyllodestumor #rarebreastcamcer #rarecancer #metastatic #stage4

if it turns cancerous CHEMO DOESN'T WORK. #phyllodestumor

Finished Round 1 of AIM chemotherapy. Went better than I expected. Main side effects were fatigue, lots of bloating & dry mouth. Walking laps around the hospital floor & having a lot of support & encouragement helped!
#malignantphyllodestumor #phyllodestumor #rarecancer

Hou vol hou vast #CAS Dutch Phyllodes Group /Contactgroep Phyllodes

Treatment guidelines from #JulieBillarMD from #MayoClinicAZ on benign, borderline, and malignant #PhyllodesTumor Mayo Clinic Interactive Surgery Symposium #MayoISS24

Wang et al. published #CaseStudy of benign #PhyllodesTumor (PT) measuring 30 × 20 × 15 cm3 with #malignant features. Atypical PT accompanied with silent venous thromboembolism. Patient surgically treated, along with anticoagulation therapy.
doi.org/10.1002/cnr2.1…
#CancerReports

#JulieBillarMD speaking on #PhyllodesTumor Mayo Clinic Interactive Surgery Symposium. LR not reduced with wider margin or with final margin of + vs -. #MayoISS24

Report of Two Cases with Simultaneously Detected Tubular Carcinoma and Phyllodes Tumor of the Breast

You can see the free full text of the research by Burak İlhan et al.

Link : cms.galenos.com.tr/Uploads/Articl…

#Breast #phyllodestumor #surgery #tubularcarcinoma

Predictive Factors of Early Recurrence in Patients with Phyllodes Tumor of the Breast

You can see the free full text of the research by Bharadhwaj Ravindhran et al

Link : cms.galenos.com.tr/Uploads/Articl…

#Aftercare #localneoplasm #recurrence #phyllodestumor

Previous at Spagn conference in Rome.
Visiting doctors in the USA next week for collaboration in the field of phyllodes.

Een nieuwe richtlijn voor #phyllodes ! De drijvende kracht is Dutch Phyllodes Group /Contactgroep Phyllodes die samen met artsen van Antoni van Leeuwenhoek deze belangrijke stap gerealiseerd hebben. Hulde! Geef je op via: phyllodes.nl #wvdzk