Take our quick quiz and leave your score in the comments! Learn more about the differences between TAPS and acute TTTS here: bit.ly/3dRyMaJ #tapssupport #tapsisreal
The Well Bee Study aims to investigate the impact of a complicated monochorionic multiple pregnancy on the quality of life of their families.
More: twinrun.nl/en/well-bee-st… #twinrunnl #wellbeestudy #twinresearch #tapssupport #twinpregnancy #twinparents TAPS Support @fetallumc
What is TAPS in Twins? Twin Anemia Polycythemia Sequence, or TAPS as it’s better known, is a rare disease affecting twins sharing a placenta. Learn more on our website: bit.ly/32AXytG #tapssupport #tapsisreal
Mariet zegt:Voor mij is dit de eerste marathon die ik loop (vermoedelijk ook de enige gelet op mijn leeftijd) om mijn bewondering en waardering voor het LUMC te onderstrepen. Doneer: twinrun.nl/mariet-loopt-d…
#tapssupport #twinrunnl #tweelingen #tweelingoma #marathon TAPS Support
Screening for TAPS means that we collect more data, and create registries to find out more about it. Research is important so that we can have the best treatments, and options for parents and children. #tapssupport #tapsisreal bit.ly/3mG2OCy
The Twin Run is the major fundraiser for TAPS Support, supporting the LUMC Fetal Therapy team and twin research. Donate here: twinrun.nl/donate/ . #twinrun #twinresearch #fetaltherapy TAPS Support Fetal Therapy LUMC, Leiden
1 in 8 spontaneous TAPS donors is born deaf with ANSD. Meet Piper and Jemma in this video, and share the special moment that her cochlear implant was turned on. bit.ly/3nkjH5M #tapssupport #tapsisreal
The Twin Run is the major fundraiser for TAPS Support, supporting the LUMC Fetal Therapy team and twin research. Donate here: twinrun.nl/donate/ . #twinrun #twinresearch #fetaltherapy
@fetallumc
The Twin Run is the major fundraiser for TAPS Support, supporting the LUMC Fetal Therapy team and twin research. Donate here: twinrun.nl/donate/ . #twinrun #twinresearch #fetaltherapy Fetal Therapy LUMC, Leiden
Sometimes with TTTS, SFGR and TAPS there's more than meets the eye. The Well Bee Study aims to develop ways to better help families.
More: twinrun.nl/en/well-bee-st…
#twinrunnl #wellbeestudy #twinresearch #tapssupport #twinpregnancy #twinparents @fetallumc TAPS Support
Als oma van een tweeling wil ik graag geld inzamelen voor tweelingonderzoek in het LUMC. Lees hier meer over ons verhaal: twinrun.nl/mariet-loopt-d…
#twinrunnl #tapssupport #twinresearch #leidenmarathon Fetal Therapy LUMC, Leiden twinrunnl
Have you had to have your records changed? Ever corrected your doctor on what your diagnosis was?
Join the conversation here: bit.ly/3dqdeTR #tapstalkstuesdays #tapssupport #tapsisreal
Presence of TAPS complicating TTTS and presence of post-laser TAPS do not seem to be associated with worse perinatal outcomes including postnatal-ultrasound detected cerebral injury using three different TAPS criteria. bit.ly/3Q7viTD #tapssupport #tapsisreal
Mariet says: To put our admiration into action I am running this year For me this is the first marathon I run to underline my admiration and appreciation for LUMC.
More:
twinrun.nl/mariet-loopt-d…
#tapssupport #twinrun #marathon #twingrandma twinrunnl #@FetalLumc
TAPS screening is controversial, but without it, and creating central registries to pool data, we can't learn more about it. It's time to update guidelines, and cooperate to learn more about this rare disease. #tapssupport #tapsisreal bit.ly/3E9rVFv
What is the difference between Acute TTTS vs TAPS? There are many myths about TAPS out there (so many that a paper was written about it!). One of the most commonly asked questions is what the difference between acute TTTS and TAPS bit.ly/3pzaaJV #tapssupport #tapsisreal
Today starts an intensive 3 day congress with the EFCNI Parent Organisation Summit in Munich, Germany. Our founder Stephanie is attending.
#EFCNIPOS #POS2024 #EFCNIwecare #tapssupport @EFCNI
