Young Epilepsy(@youngepilepsy) 's Twitter Profileg
Young Epilepsy

@youngepilepsy

Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible.

ID:193047113

linkhttps://www.youngepilepsy.org.uk/ calendar_today20-09-2010 20:56:47

20,8K Tweets

17,8K Followers

1,6K Following

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Every child with epilepsy deserves to be safe & included at school. Join our petition to ensure every child with epilepsy has an Individual Healthcare Plan for full participation in school life. Sign today & let's demand change: bit.ly/44aoA75

Every child with epilepsy deserves to be safe & included at school. Join our petition to ensure every child with epilepsy has an Individual Healthcare Plan for full participation in school life. Sign today & let's demand change: bit.ly/44aoA75 #UnderstandMyEpilepsy
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Today we are hosting an event with Roald Dahl Charity nurses, focusing on epilepsy treatment for young people.

We know the vital role specialist nurses play in young people and their families lives.

We proudly support an event investing in the understanding of .

Today we are hosting an event with @RoaldDahlFund nurses, focusing on epilepsy treatment for young people. We know the vital role specialist nurses play in young people and their families lives. We proudly support an event investing in the understanding of #epilepsycare.
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Out now! Our Ketogenic Diet in Infants with Epilepsy (KIWE) webinar is available to watch on YouTube.

Discover the intrepid findings of the KIWE Project, exploring unique ways to reduce seizures in infants.
youtu.be/VbAnpt3W-go

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Join us tonight at 6pm for an informative session on the genic diet in management! Our webinar covers the science behind the diet, benefits for infants with epilepsy, & a parent's experience. Don't miss out! Register: youngepilepsy.org.uk/what-we-do/hea…

Join us tonight at 6pm for an informative session on the #ketogenic diet in #epilepsy management! Our webinar covers the science behind the #keto diet, benefits for infants with epilepsy, & a parent's experience. Don't miss out! Register: youngepilepsy.org.uk/what-we-do/hea… #EpilepsyResearch
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📣 FIRST Project wants to hear about your experiences of treating prolonged convulsive seizures outside hospital. Caregivers of children/adolescents with , share your experiences by taking a short survey at paediatricepilepsy-caregiversurvey.com. Your voice matters!

📣 FIRST Project wants to hear about your experiences of treating prolonged convulsive seizures outside hospital. Caregivers of children/adolescents with #epilepsy, share your experiences by taking a short survey at paediatricepilepsy-caregiversurvey.com. Your voice matters!
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Young Epilepsy have been working in partnership with Desitin Pharma Ltd and ChangeMed Ltd to produce the latest version of our guide to anti-seizure medicines booklet. If you’d like to request a copy visit – youngepilepsy.org.uk/anti-seizure-m…

Young Epilepsy have been working in partnership with Desitin Pharma Ltd and ChangeMed Ltd to produce the latest version of our guide to anti-seizure medicines booklet. If you’d like to request a copy visit – youngepilepsy.org.uk/anti-seizure-m… #EpilepsyAwareness #SeizureMedicines
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Celebrate with 'Me, My Brother, and Epilepsy' by Mariska Peck & Elly Nichol. A heartwarming e-book on sibling bond amidst .
Watch here: youtu.be/pXs1x7Gk0ic

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📢 Exciting news! Our latest research on physical activity in children with has now been published. Discover the findings and insights that can make a difference in the lives of young individuals with epilepsy. Download full report here: youngepilepsy.org.uk/reports/accele…

📢 Exciting news! Our latest research on physical activity in children with #epilepsy has now been published. Discover the findings and insights that can make a difference in the lives of young individuals with epilepsy. Download full report here: youngepilepsy.org.uk/reports/accele…
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Keto diet could help treat childhood epilepsy, study finds.
Read more here - standard.co.uk/news/health/ke…

Make sure to join our Keto webinar on 17 April - youngepilepsy.org.uk/what-we-do/hea…

standard.co.uk/news/health/ke…

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Friendly reminder that we're proud to partner with Shout!

Shout’s trained volunteers can help with issues including anxiety, stress, loneliness or depression and are available 24/7

Simply text PURPLE to 85258

rb.gy/8j49v

Friendly reminder that we're proud to partner with Shout! Shout’s trained volunteers can help with issues including anxiety, stress, loneliness or depression and are available 24/7 Simply text PURPLE to 85258 rb.gy/8j49v
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Eccleston Lane Ends(@ecclaneends) 's Twitter Profile Photo

Wearing purple in school today, to raise awareness of epilepsy and the barriers that people living with this condition face. The children have also had an assembly and discussions about this condition to aid their understanding Epilepsy Young Epilepsy

Wearing purple in school today, to raise awareness of epilepsy and the barriers that people living with this condition face. The children have also had an assembly and discussions about this condition to aid their understanding @epilepsy @youngepilepsy #kindness #inclusion
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My Family Our Needs(@weareMFON) 's Twitter Profile Photo

💜As we mark 2024, we're proud to share an updated collaboration with Young Epilepsy which shines a light on what epilepsy is, the symptoms and what help is available for children. Get involved this : lnkd.in/eXWTCAmK bit.ly/3VvOb83

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Roald Dahl Charity(@RoaldDahlFund) 's Twitter Profile Photo

Today is Purple Day!
Did you know over 80 Roald Dahl Epilepsy Nurse Specialists provide vital support for children and young people with epilepsy across the UK?

Today is Purple Day! Did you know over 80 Roald Dahl Epilepsy Nurse Specialists provide vital support for children and young people with epilepsy across the UK? #PurpleDay #EpilepsyAwareness #RoaldDahlNurses
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🎉 Today is Purple Day! Over 60 schools, 30 community groups, & 10+ businesses unite, raising £26k through the 26 miles in 26 days challenge with 100+ fundraisers! Let's raise awareness & challenge stigma together! 💜

🎉 Today is Purple Day! Over 60 schools, 30 community groups, & 10+ businesses unite, raising £26k through the 26 miles in 26 days challenge with 100+ fundraisers! Let's raise awareness & challenge stigma together! 💜 #PurpleDay #TeamPossible #EpilepsyAwareness
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Faye Waddams(@fairyfaye1986) 's Twitter Profile Photo

My boy deciding that for he is not wearing his pe top, he is going in to school in Purple to start the conversation. Super proud of him. Not all hero’s wear capes 💜💜 @sudepaction Young Epilepsy Epilepsy Action Epilepsy Society Epilepsy Research Institute

My boy deciding that for #purpleday he is not wearing his pe top, he is going in to school in Purple to start the conversation. Super proud of him. Not all hero’s wear capes 💜💜 @sudepaction @youngepilepsy @epilepsyaction @epilepsysociety @EpilepsyInst
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Steve Crossman(@Steve_Crossman) 's Twitter Profile Photo

And here’s a link to the show that Jay has done with Ian and Chris, also always nice to hear Young Epilepsy getting a shout out!

podcasts.apple.com/gb/podcast/its…

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Thank you to Jay bothroyd for sharing his story!

Jay Bothroyd's Premiere Football Experience tickets are on-sale now: youngepilepsy.org.uk/jay-bothroyds-…

(TW: some graphic descriptions in the article)

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