Dragons’ Den, BBC One, 18 January 2024 - Acu seeds complaint and outcome

'This edition of the programme included a successful pitch for Acu Seeds, a product which applies acupressure to the ear by means of “ear seeds”. Six viewers complained that the pitch included claims that…

🚨 Westminster Hall debate on #MECFS 🚨

Our new Parliamentary Champion, Sajid Javid, will be leading a #WestminsterHall debate on Weds 1 May, 16.30 - 17.30 ahead of #WorldMEDay

Read the full article on our website to find out more
ow.ly/GBl550RoKJ8

#pwME #MyalgicEAction

Introducing the 2024 *updated* entry for #MECFS in Australia’s
RACGP guide for General Practitioners: 👀 let’s review the changes 1/ 🧵
[TW: graded exercise therapy GET,
CBT, the PACE trial]

A strong statement from the ME Association that I’m very happy to see:

“The NHS needs to step up and stop harming patients whose very lives depend on the treatment that should be given to them”

The Hill: 'Sanders’ long COVID funding bill misses opportunity to aid a similar chronic condition'

By Maureen Hanson & Hillary Johnson

'We ask that Sanders specifically name ME/CFS in his bill and include a generous budget for ME/CFS research...'

thehill.com/opinion/461560…

My new story on how dogma around post-acute infection syndromes casts a long shadow. Medical misogyny erased #pwME with enduring fallout, as abuse continues despite recent deaths. History threatens to repeat with #LongCovid
#MECFS #DontLetMEDie
amandafrancey.medium.com/within-four-wa…

Last week I spoke with Guardian columnist George Monbiot about his scathing rebuke of the biopsychosocial brigades and their bogus research into ME/CFS and Long Covid, the so-called 'Science Media Centre,' etc. Here's an edited transcript of our convo: virology.ws/2024/04/23/tri…

#SaveCarlasLife

Late on Saturday we met with Seema Malhotra MP💙 Carla's MP at West Middlesex hospital. She visited Carla, spoke at length with us, Pierre & Caroline about the situation & has written to the hospital CEO expressing her concern. Please thank Seema for her support 💚

.Jessica Rawnsley
.ME Association
From The Times, 17/4/24 - includes substantial quote from Dr Nigel Speight, hon paediatric adviser to The ME Association
#mecfs #LongCovid #MyalgicEncephalomyelitis
If necessary, click on the image to read the full story.

Whatever the intent, the political effect of “low cost” symptom management trials like this (targeting only the most mildly affected #LongCovid patients), is that they act as a smokescreen to hide the lack research into effective treatment. 1/2

„Use her name and explain it, tell the world about it…''

We haven't shared the origins of the idea of #UniteToFight , which was inspired by the unfortunate loss of Lauren ✨ who suffered from ME/CFS.

Out of deep respect for Lauren and her family, we kept it private until…

10th October 2003. Two replies to the Cook/Wessely ‘Scotsman’ spat. McLachlan replied further in January 2004 (already posted). Anyone who was involved in online #MyalgicEncephalomyelitis chat twenty years ago might be familiar with these names. #chronicfatiguesyndrome #mecfs .

Update about Millie:

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie

Myalgic encephalomyelitis (ME), known as Chronic Fatigue Syndrome, is a long-term condition with a range of symptoms, including extreme tiredness and muscle pain.

Ruth Liptrot speaks to the parents of a 23-year-old woman, who suffers from the serious condition.

@TheChronicCollaboration

In our latest episode out now, Daniel had the privilege of interviewing his childhood paediatrician, Dr Nigel Speight. Dr Speight gives a brief history of ME and we discuss the damage to progress that has been done by the Biopsychosocial approach.

Here's today's Channel 5 News segment on #SaveCarlasLife #ExposeMENow - thanks to Steve Topple's steady hand and phone...
youtube.com/watch?v=y_4i7s…