Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profileg
Aortic Dissection Awareness UK & Ireland

@AorticDissectUK

The national patient charity for #AorticDissection. Raising awareness, providing support, improving care, enabling research. Registered charity number: 1198617

ID:4736801963

linkhttp://www.aorticdissectionawareness.org calendar_today07-01-2016 18:08:16

2,6K Tweets

2,8K Followers

1,9K Following

Dominique Vervoort(@DVervoort94) 's Twitter Profile Photo

So great to see the tremendous patient-family leadership THINK AORTA Global to , in 🇨🇦 & 🌐!

Patients & families are at the heart (and ) of optimal care, and collaboration & advocacy are 🔑 to a better, patient-centered future.

Global ARCH Gareth Owens

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Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profile Photo

Our friends at Heart Research UK are running this survey on food shopping for patients with heart disease. If you are a patient or you shop for a patient with heart disease, please fill it in.
surveymonkey.com/r/F3D5XHP

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THINK AORTA Global(@THINK__AORTA) 's Twitter Profile Photo

has a special visitor. Griff Barnes died of a ruptured in 2023. His children made these memorial pebbles & sent them around the world for Griff's Last Adventure. We are honoured to have Griff at Booth 322 as we launch Canada - thinkaorta.ca.

#AATS2024 has a special visitor. Griff Barnes died of a ruptured #Aorta in 2023. His children made these memorial pebbles & sent them around the world for Griff's Last Adventure. We are honoured to have Griff at Booth 322 as we launch #THINKAORTA Canada - thinkaorta.ca.
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Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profile Photo

For the first time, we have good data on in England backed by a robust methodology... and it's turning what we thought we knew on its head. Great work by Arun Pherwani and the NCIP team to answer questions the national patient charity has been asking for years.

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VSQIP(@VSQIP_news) 's Twitter Profile Photo

Acute aortic dissection incidence in England is rising, as NVR Clinical Lead Prof Arun Pherwani highlighted in his CX Symposium presentation using cardiac & vascular NCIP data. Read a summary in this Vascular News post vascularnews.com/new-data-highl… Arun Pherwani Vascular Society

Acute aortic dissection incidence in England is rising, as NVR Clinical Lead Prof Arun Pherwani highlighted in his CX Symposium presentation using cardiac & vascular NCIP data. Read a summary in this @VascularNews post vascularnews.com/new-data-highl… @adpherwani @VSGBI #CX2024
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Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profile Photo

Today Riccardo Giuseppe Abbasciano presented our NIHR Research DECIDE-TAD research program with Uni of Leicester Cardiovascular Sciences at the world's most prestigious symposium 2024. Read more about our work in cascade screening of families at risk of TAD here: AATS AATS ED aorticdissectionawareness.org/research/proje…

Today @RAbbasciano presented our @NIHRresearch DECIDE-TAD research program with @UoLCVS at the world's most prestigious #Aortic symposium #Aortic2024. Read more about our work in cascade screening of families at risk of TAD here: @AATSHQ @AATSED #AortaEd aorticdissectionawareness.org/research/proje…
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Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profile Photo

Announcing our 1st joint webinar with Marfan Trust, at which Rosalie Magboo of Barts Health will give a patient-friendly presentation of her research into the psychosocial aspects of an aortovascular diagnosis in syndrome. UK-AS aorticdissectionawareness.org/events/heads-m…

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Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profile Photo

Today we remember our patient member Sharon Sewell, as her funeral is held at Derby Cathedral. Our thoughts are with Sharon's family and friends. It was our privilege to know her and to provide support for her journey. RIP Sharon.💔 aorticdissectionawareness.org/news/tributes-…

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Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profile Photo

All of us here at the national patient charity are totally inspired by the record-breaking challenge Mike has set himself for this summer and his hardcore training regime.

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THINK AORTA Global(@THINK__AORTA) 's Twitter Profile Photo

10 years of patient advocacy has resulted in the medical profession producing a raft of expert guidance on the diagnosis and management of . Aortic Dissection Awareness UK & Ireland has brought together current guidelines here, for ease of reference: aorticdissectionawareness.org/healthcare-pro…

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EACTS(@EACTS) 's Twitter Profile Photo

A new episode of A Cut Above is out now! 🎙🎧

Following our joint publication of the highly anticipated Aortic Disease Guidelines, our hosts Can Gollmann-Tepeköylü and @Miia_ll speak with Martin Czerny and Martin Grabenwöger.

📲 Available to download on all major platforms.

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Aortic Dissection Awareness UK & Ireland(@AorticDissectUK) 's Twitter Profile Photo

Today we were thrilled to welcome the 1,000th member to our Buddies private online peer support group Aortic Dissection Buddies UK & Ireland. Full story here: aorticdissectionawareness.org/news/charitys-…

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THINK AORTA Global(@THINK__AORTA) 's Twitter Profile Photo

The family of Sharon Goddard are sharing her story to raise awareness of the need to , so that deaths due to misdiagnosis and delay in can be prevented in future. RCEMLearning UK-AS SCTS UK Vascular Society aorticdissectionawareness.org/patients-and-f…

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TheMarfanFoundation(@MarfanFdn) 's Twitter Profile Photo

Explaining a condition can be exhausting. What do you wish everyone knew about Marfan, making your life just a little easier? We'd love to hear your answer.

Explaining a condition can be exhausting. What do you wish everyone knew about Marfan, making your life just a little easier? We'd love to hear your answer.
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