Aortic Dissection Awareness UK & Ireland
@AorticDissectUK
The national patient charity for #AorticDissection. Raising awareness, providing support, improving care, enabling research. Registered charity number: 1198617
ID:4736801963
http://www.aorticdissectionawareness.org 07-01-2016 18:08:16
2,6K Tweets
2,8K Followers
1,9K Following
So great to see the tremendous patient-family leadership THINK AORTA Global to #ThinkAorta , in 🇨🇦 & 🌐!
Patients & families are at the heart (and #aorta ) of optimal care, and collaboration & advocacy are 🔑 to a better, patient-centered future.
#AATS2024 Global ARCH Gareth Owens
Our friends at Heart Research UK are running this survey on food shopping for patients with heart disease. If you are a patient or you shop for a patient with heart disease, please fill it in.
surveymonkey.com/r/F3D5XHP
New insights from IRAD into recurrent acute #Aortic Dissection emphasise the need for life-long care of #Aortic patients. #THINKAORTA #AortaEd UK-AS
From little acorns, mighty oaks grow. Today, the life-saving #THINKAORTA campaign we developed in partnership with Royal College of Emergency Medicine SCTS UK & Heart Research UK launches across Canada ❤️. emma redfern
For the first time, we have good data on #AorticDissection in England backed by a robust methodology... and it's turning what we thought we knew on its head. Great work by Arun Pherwani and the NCIP team to answer questions the national patient charity has been asking for years.
Acute aortic dissection incidence in England is rising, as NVR Clinical Lead Prof Arun Pherwani highlighted in his CX Symposium presentation using cardiac & vascular NCIP data. Read a summary in this Vascular News post vascularnews.com/new-data-highl… Arun Pherwani Vascular Society #CX2024
Today Riccardo Giuseppe Abbasciano presented our NIHR Research DECIDE-TAD research program with Uni of Leicester Cardiovascular Sciences at the world's most prestigious #Aortic symposium #Aortic 2024. Read more about our work in cascade screening of families at risk of TAD here: AATS AATS ED #AortaEd aorticdissectionawareness.org/research/proje…
Dr Sato at Al found cooling speed was predictive of temporary neurological deficit after proximal aortic repair under circulatory arrest #EACTS2023 EACTS Maral Ouzounian Payam Akhyari Kim de la Cruz, MD FACS FACC FCCP Grayson Wheatley Joseph Coselli, MD Aortic Dissection Awareness UK & Ireland Aorta guy Eric E. Roselli
Announcing our 1st joint webinar with Marfan Trust, at which Rosalie Magboo of Barts Health will give a patient-friendly presentation of her research into the psychosocial aspects of an aortovascular diagnosis in #Marfan syndrome. #AortaEd UK-AS aorticdissectionawareness.org/events/heads-m…
Today we remember our patient member Sharon Sewell, as her funeral is held at Derby Cathedral. Our thoughts are with Sharon's family and friends. It was our privilege to know her and to provide support for her #AorticDissection journey. RIP Sharon.💔 aorticdissectionawareness.org/news/tributes-…
Great to see our friend & fellow #AorticDissection survivor Catriona feature as the first Terumo Aortic Patient Journey on the new section of their website. #PatientVoice #THINKAORTA
All of us here at the national patient charity are totally inspired by the record-breaking challenge Mike has set himself for this summer and his hardcore training regime. #THINKAORTA #LiveLaughGraft
10 years of patient advocacy has resulted in the medical profession producing a raft of expert guidance on the diagnosis and management of #AorticDissection . Aortic Dissection Awareness UK & Ireland has brought together current guidelines here, for ease of reference: #AortaEd aorticdissectionawareness.org/healthcare-pro…
A new episode of A Cut Above is out now! 🎙🎧
Following our joint publication of the highly anticipated Aortic Disease Guidelines, our hosts Can Gollmann-Tepeköylü and @Miia_ll speak with Martin Czerny and Martin Grabenwöger.
📲 Available to download on all major platforms.
Today we were thrilled to welcome the 1,000th member to our #AorticDissection Buddies private online peer support group Aortic Dissection Buddies UK & Ireland. Full story here: aorticdissectionawareness.org/news/charitys-…
The family of Sharon Goddard are sharing her story to raise awareness of the need to #THINKAORTA , so that deaths due to misdiagnosis and delay in #AorticDissection can be prevented in future. #AortaEd RCEMLearning UK-AS SCTS UK Vascular Society aorticdissectionawareness.org/patients-and-f…