Natalie Frankish
@DO_Scotland
Policy & Engagement Manager for Scotland
Genetic Alliance UK & Rare Disease UK Views my Own
ID:1545791478
25-06-2013 14:02:50
1,4K Tweets
532 Followers
1,0K Following
We were delighted to receive a £20k grant from the National Lottery Community Fund to support our Office for Rare Conditions 💜As the only project of it's kind in Scotland, the Office for Rare Conditions Glasgow is leading the way to improve the management of patients with rare conditions.
The National Lottery Community Fund
Spinal Muscular Atrophy impacts around 70 babies a year in the UK. If we screened for SMA; treatments are transformative. At #FMQ I urged Scotland to be part of a future newborn screening pilot for SMA in the UK. I look forward to discussing with Neil Gray MSP #EveryMomentMatters
Hear about our Rare Disease Day event in Scotland. Thank you to Institute of Genetics and Cancer for hosting the event.
Following our Scotland #RareDisease Day event, the Public Health Minister in #Scotland , Jenni Minto MSP shares an open letter to the community.
'I would like to take this opportunity to update you on Scotland’s position with regards to #RareDisease policy'
👉ow.ly/Ghni50QJoKI
We are so proud of this programme. Go and watch it now.
Thank you ITN Business for all your hard work to bring this to life.
Genetic Alliance UK Natalie Frankish Office for Rare Conditions Glasgow Our seat looks great in it 😍 ^Em
Taking our famous #RareDiseaseDay frame on tour today! Looking forward to seeing everyone at Office for Rare Conditions Glasgow Genetic Alliance UK
