“All the big breakthroughs that have happened...it’s been because of a study exactly like this one. It’s the start of something, not the end.” shorturl.at/fwKM0 Thank you to Channel 4 News for showcasing #DecodeME and to The Real M.E. 👩‍🦽🦥♿️🏴󠁧󠁢󠁳󠁣󠁴󠁿📢 and all our other participants.

“I can honestly say, people are working really hard and are committed to completing this research to the highest possible scientific standards, ensuring that our findings are as robust as possible.” Watch back our March webinar w/ Sonya, Chris and Andy ➡️ shorturl.at/imsA6

In case you missed the live version, watch DecodeME on last night’s Channel 4 news. shorturl.at/DOQ59 #DecodeME #MECFS #pwME

Watch DecodeME on Channel 4 news. We are passionate about raising awareness of #MECFS and the need for more research funding. Tune on Channel 4 today at 7pm.

Your continual support and engagement have made a massive difference to us. Thank you for your amazing participation. #DecodeME #MECFS ➡️ youtu.be/d7q4D95tf3o

“You can be reassured that your sample has been treated incredibly well, from receipt to data analysis...”. Thank you to everyone who joined our #DecodeME March webinar and submitted Qs! Watch back now: shorturl.at/cdEQ7 #MECFS #pwME

View our #DecodeME March Webinar now at shorturl.at/EFH89. Thank you to everyone who joined us and submitted questions! #MECFS #pwME

Our March Webinar video, audio and transcript are now available! Go to shorturl.at/kwzOR for an update on #DecodeME extension, project updates, next steps and a Q&A. #MECFS #pwME

See you later for our #DecodeME March Webinar! Email [email protected] with your questions for Sonya, Chris and Andy.

Join us TOMORROW for our #DecodeME March Webinar. Come along for updates on our project’s extension. Have a question you’d like to ask the team on the day? Email [email protected]. If Zoom is full, you can also join us on Facebook live!

“In medicine, there is a double duty: respect the evidence and listen to patients. There is a psychological intervention that could improve the lives of people with ME/CFS: an apology and recognition of the harms they have suffered.” - George Monbiot. Read on below ⬇️

Join us for our #DecodeME March Webinar next Friday for updates on our project’s extension. Email [email protected] with any questions you have for Sonya, Chris and Andy. To sign up: shorturl.at/oCFL0

#DecodeME is extended to August 2025. The extraction of DNA has taken longer than anticipated. We are acutely aware of the urgency to deliver the study results as soon as possible. Read more in our blog shorturl.at/bfsQU #MEcfs

Thanks to Stuart for sharing your story with The Sunday Post + for participating in #DecodeME . Stuart’s experiences are v familiar, “As many as 1.3 million people are affected by ME or similar symptoms across the UK and they are too often overlooked.” - Sonya Chowdhury, AfME CEO

Thank you to everyone who completed the #DecodeME second questionnaire. We have received over 15,200 responses. We will work on analysing the data and will share the findings with you when we can. #MECFS

Thanks to 2nd questionnaire participants! We’ve come to the deadline & our portal is now closed. Thanks for helping us delve deeper into your experiences of #MECFS . If you need to get in touch or change your details, please contact us: 0808 196 8664 or [email protected].

Final day to complete our online 2nd questionnaire! Contribute your lived experiences of #MECFS by completing our 2nd questionnaire. Open to all #DecodeME participants. For more info and FAQ, please go to tinyurl.com/2s4ardxz. Thanks to all who have already taken part.

Just 2 days left! Contribute your lived experiences of #MECFS by completing our 2nd questionnaire. Open to all #DecodeME participants. For more info and FAQ, please go to tinyurl.com/4upc734e.

Just 3 days left! Contribute your lived experiences of #MECFS by completing our 2nd questionnaire. Open to all #DecodeME participants. For more info and FAQ, please go to tinyurl.com/mpeeftfw.

Completing our #DecodeME 2nd questionnaire online? Make sure you scroll to the bottom and click ‘submit’, otherwise we will not be sent your questionnaire response. Don’t miss out on contributing to the world’s largest ever genetic study of #MECFS