Our Co-EiC Dr. Pam Roach and editorial board member Dr. Carrie McAiney connecting at the CCNA-CCNV CCNA Partners Forum and Science Days 2024 in Montreal. A great event for researchers, people living with dementia, care partners, community, and scientific organizations 🤝

Great to see Tom Faulkner 1st first author paper out on young-onset #dementia !! Well done Tom, great to have moved from ARC North West Coast intern to PhD student!
Dementia Young Dementia Network

journals.sagepub.com/eprint/XKGSETF…

Pleased to announce the new Dementia position statement on Indigenous health & ethical publishing. Open access editorial also out today explaining our rationale.

Thanks to the whole team at Dementia and at Sage for the unwavering support!! 👏🏽👏🏽

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This is what @diversealz chatting about: How engaging in creative activities outside of standardized interventions helps family members of persons with Dementia by Fabian Hutmacher et al via Dementia (2021): journals.sagepub.com/doi/10.1177/14… Open access #diversealz

🗞 First paper of 2024 published - take a look at our latest systematic review on the experiences of caring for someone with #dementia and a learning disability #LD in Dementia :
journals.sagepub.com/doi/10.1177/14…

News from the journal: all submissions describing research and work with Indigenous communities must include an Indigenous engagement section. More information here 👇🏽

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Dementia co-editor Pam Roach is attending International Indigenous Dementia Research Network - say hi if you see her! #IIDRN23 #IIDRNconference23

Economics evidence can support better decision making. But there are challenges moving from evidence to better policy and practice. That’s what Gloria Wong & I discuss here doi.org/10.1177/147130… plus possible work-arounds. Part of STRiDE Dementia Project special issue in Dementia

In a new Dementia paper, GIM co-author Dr. Rashmi Sharma & colleagues describe findings from the Decision-Making in Alzheimer's Research (DMAR) Project. Read “Supportive care decision-making processes of persons with dementia and their caregivers.” pubmed.ncbi.nlm.nih.gov/37656956/

Despite the last institution closing in 1996, inter-generational trauma from the residential school system continues to impact the health and wellbeing of Indigenous communities today.
CCNA-CCNV #NDTR

publichealthreviews.biomedcentral.com/counter/pdf/10…

ncbi.nlm.nih.gov/pmc/articles/P…

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New paper in Dementia led by Heather Yemm - not open access but postprint will be in our Uni repositories or DM for pdf! See journals.sagepub.com/doi/pdf/10.117…

Our young onset #dementia ID cards can be used by people living with the condition & their family members & friends. They can be useful if you ever find yourself in a situation when you may little a bit of help from others. Request our ID cards here: youngdementianetwork.org/resources/youn…

📞 During the #COVID19 pandemic, face-to-face research became problematic.

This paper from Kate Gridley explores experiences of researchers who collected quantitative data over the telephone from people with dementia during the first lockdowns in England

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✍🏾The art of friendliness: Organiser perspectives on curating dementia friendly cultural events
James Rupert Fletcher Dr David Dobson Dr MaoHui Deng in Dementia on what makes events 'dementia friendly'
Creative Manchester UoM School of Social Sciences UoM Humanities
journals.sagepub.com/doi/10.1177/14…

Dementia UK has published a new advice leaflet offering information and tips around supporting children and adolescents when a parent has young onset #dementia . Request or download the leaflet via their website: dementiauk.org/about-dementia… Dementia UK

if you're a professional and would like to find out more about Lewy body #dementia , do sign up for Lewy Body Society's free online webinar. There will be a series of short presentations about Lewy body dementia, which affects around 10% of younger people with dementia.

Jo Beardsworth & Emma Jardine, whose husbands have young onset dementia, have joined together to create a podcast called “I didn't sign up for this” to raise awareness of the condition, the challenges they face & help others not feel alone., Listen here:
jomjx.podbean.com/?dm_i=7E41,3BL…

At the Alzheimer's Association, diversity, equity and inclusion are vital to our mission. This month, we’re celebrating Alzheimer’s & Brain Awareness Month and #PrideMonth . 🌈 Thank you to all of our LGBTQ+ champions in the fight to #ENDALZ !

👨‍⚕️👩‍⚕️How did carers use emotion-focused coping styles during the #COVID19 pandemic? A new paper co-authored by Kate Gridley and Yvonne Birks finds that while some enjoyed the extra time together, others experienced conflict and reductions in quality of life journals.sagepub.com/doi/pdf/10.117…

June is Alzheimer’s & Brain Awareness Month! RETWEET to raise awareness for the more than 6 million Americans living with Alzheimer's and their family and friends who love them. 💜 Take action at alz.org/abam. #ENDALZ