Luca Sangiorgi presenta la Joint Action Jardin - azione congiunta per favorire l’integrazione degli ERNs nei sistemi sanitari europei European Commission European Reference Network on Rare Bone Diseases ERN ReCONNET 🇪🇺 JARDIN_Joint-Action

Il dottor Luca Sangiorgi, coordinatore di European Reference Network on Rare Bone Diseases, presenta il funzionamento operativo dalle reti ERN e la Joint Action Jardin ERN ReCONNET 🇪🇺 European Commission EU Health - #HealthUnion Ministero della Salute

La seconda sessione del workshop “L’assistenza transfrontaliera:quali diritti per i pazienti e quale cooperazione tra gli stati membri dell’EU” è dedicata agli ERNs. Apre la sessione Stefano Vettorazzi #DGSANTE European Commission EU Health - #HealthUnion ERN ReCONNET 🇪🇺

📢 How much #DYK about the ERN ReCONNET 🇪🇺 #webinars ?
🤔 Want to know all the details n calendar info?
👍 Then check Prof. Cutolo 🆕short video ⤵️
🎞️ youtu.be/FlGmgEHmiXI
🔗All registration links n info👉reconnet.ern-net.eu/webinar/

✅ NEW ERN ReCONNET 🇪🇺 endorsed event: #EWRR
🤔Why it is important? Prof. Cutolo Ospedale San Martino Genova shared with us his opinion and presents the #workshop
🎞️Videos were kindly recorded in EN n IT to tackle the language barrier issue n try to be more inclusive!
🔗bit.ly/4chMIsd

🤩ERN ReCONNET 🇪🇺 latest #webinar on Juvenile Onset #SystemicSclerosis w Dr Földvari n Dr Marrani is NOW available on our 🎞️YouTube playlist bit.ly/3saCUOg
🔗Direct link bit.ly/3TuCb4h
✍️Webinars registration bit.ly/3DxXDhi
⚙️SSc bit.ly/3PAm70r

💫ERN ReCONNET 🇪🇺🆕 #webinar !
💡Mixed Connective Tissue Disease (MCTD)
👩‍⚕️Prof Triggianese Policlinico Tor Vergata n Prof Ornowska NIGRiR Warszawa moderator Prof Olesińska
🎯Audience: HCPs, patients, caregivers
✍️Registration:bit.ly/3IVL9mc
⚙️MCTD resources:bit.ly/3TQyHdI

Mark your calendar! The next Beyond Borders Breakfast Debate webinar is soon approaching:
🎯Facilitating access to healthcare in cross-border regions
📅Date: 21st March 2024
⏰Time: 10:00–11:00 CET
💻Online
👉Register now: europa.eu/!MxRpxj
#HealthUnion

🆕ERN ReCONNET 🇪🇺 #webinar to celebrate the #WorldYoungRheumaticAwarenessDay 🤩
👨‍⚕️Guest speakers: Dr Földvari n Dr Marrani
🎯HCPs
📌JSSc is considered an orphan disease w an estimated prevalence of ONLY 3 cases per 1,000,000 children!
✍️Register here bit.ly/3VcsYjz

⭐️ERN ReCONNET 🇪🇺 for the 1st time joins the World Young Rheumatic Diseases Day (WORD Day) n launches its🆕Transition of Care Task Force led by Prof Simonini Fondazione Meyer n Prof Tadej Avcin UKC Ljubljana
🎯Identify the unmet needs n gaps in this community.Don't forget our upcoming webinar!
bit.ly/4acml5z

🔴 Live from the ' #RareDiseases in the #EU 🇪🇺: Joint Action shaping the future of #ERNs '
🔗Direct link where you will find additional info such as full program
eesc.europa.eu/en/agenda/our-…
European Commission HaDEA JARDIN_Joint-Action

🤩 ERN ReCONNET 🇪🇺 is happy to take part to the
JARDIN_Joint-Action KoM to shape the future of #ERNs
⭐️This event is organized by the European Economic and Social Committee  w the Directorate-General for Health and Food Safety ( #DGSANTE ) of the European Commission!
🔗 bit.ly/48ehXRz

💚💗💙 Awareness never stops!
🆕ERN ReCONNET 🇪🇺 #webinar : 1⃣0⃣Qs in #RelapsingPolychondritis (RP) with Prof Simona Rednic moderated by Prof Oliver Sander
🗓️March 6⃣th 4pm
🎯Patients caregivers family members
Registration👉bit.ly/3uPx9qJ
ℹ️ on RP👉bit.ly/3sxN37s

✅ ERN ReCONNET 🇪🇺 endorsed events: Why it is important? Prof. Cervera Hospital Sant Joan de Déu Barcelona ES n Dr Reig Generalitat de Catalunya shared w us their perspective.
🎞️ Videos were kindly recorded in English n Catalan to tackle the language barrier issue n try to be more inclusive!
🔗 bit.ly/3T1hSLn

The conference will conclude the 3 day Joint Action #JARDIN kick-off meeting on the integration of #ERNs into National Health Systems: raise the awareness of the Joint Action and #rarediseases .

💻bit.ly/4a0EmDo
📄bit.ly/4c0Xu5O
🔎bit.ly/49GWm5Y

🚨 𝐋𝐚𝐬𝐭 𝐜𝐡𝐚𝐧𝐜𝐞 𝐭𝐨 𝐜𝐨𝐦𝐩𝐥𝐞𝐭𝐞 𝐭𝐡𝐞 𝐬𝐮𝐫𝐯𝐞𝐲❗

🚪 The #RarERNPath #SLE survey is closing today!

🦋 If you live with lupus in Europe, don't miss out on this opportunity to tell your story and help the European lupus community!

💗💡Thank you Prof. Savino Sciascia n the Torino team for your support!
ERN ReCONNET 🇪🇺...more than just a Network!
#RDD2024

💚💗💙 love from Pisa 💡for the #RareDiseaseDay
🥰 the #PisaTower light up for #RDD is always stunning 🤩
ERN ReCONNET 🇪🇺 virtually hugs 🫂 all the rare community around the world! We are in this together
European Commission HaDEA Marta Mosca Rosaria (Sara) Talarico Diana Marinello

On #RareDiseaseDay , discover 11 new projects in the field of rare diseases that are funded by #HorizonEurope .
hadea.ec.europa.eu/news/rare-dise…

💚💗💙 Happy Rare Disease Day from the ERN ReCONNET 🇪🇺!
🤝 This year for the 1st time #PisaTower n the facade of the IRCCS Casa Sollievo della Sofferenza hospital in San Giovanni Rotondo (Foggia) joins the forces to color this unique day 🌈
🔗 bit.ly/3UYCu9D