Global Family Group Collaboration,March 12th. #histiocytosis #Awareness #rare #global #viral #socialmedia #collaboration #Wednesdayvibe #March Histiocytosis Assoc Lili Kyriacou HLH (Maire) Ferdeor11 ECHO - european histiocytosis ECD Global Alliance Histiocyte Society Histio UK ericsjourneyfoundation AILE Onlus - HLH airi

Two weeks left to apply!

Apply today!: histio.org/resource-overv…

The application is open until March 22nd.

Check out our latest work on the effect of JAK inhibitors in pre-clinical models of hemophagocytic lymphohistiocytosis (HLH)!!

Here is the link to our article: ashpublications.org/blood/article-…

stjude.org/media-resource…

Registration for the first webinar in our 2024 series is still open!  Join us this Thursday, March 7, 2024 at 11:00am Eastern Time (US) for this session hosted by the Rare Histiocytic Disorders Steering Committee. 

us02web.zoom.us/webinar/regist…

Join us for the first in our 2024 webinar series, hosted by the Rare Histiocytic Disorders Steering Committee. Presentations include:
-Radiotherapy treatment of histiocytoses
-NRTK1 histiocytosis
-Primary CNS histiocytosis
Register here: us02web.zoom.us/webinar/regist…

Save the dates for our upcoming 2024 educational webinars. Topics will be related to LCH, HLH and Rare Histiocytoses. Registration opening soon! #Webinar #SaveTheDate #Histiocytosis

Hey Histio Community! This week Deanna hands the blog over to our Secretariat Kathy Wisniewski to speak on the research grants that we awarded at the end of 2023.

Take a deep dive into the grants and their potential impact here: histio.org/2023-histiocyt…

We are meeting at St. Jude to discuss histiocytic disorders; treatment challenges, on going clinical trials, inspiring stories from survivors, and much more! #NACHOworkshop #histiocytosis #HLH #LCH #stjude

Very meaningful discussions happening now at the North American Consortium for Histiocytosis (NACHO) workshop at St. Jude Children’s Research Hospital! #NACHO #Histiocytosisassociation #rarediseases #stjude

youtube.com/watch?v=EUSlux…

Raise Awareness Month for Histiocytosis in Greece! Thank you Histiocyte Society! #histiocytosis #raiseawareness #viral #socialmedia Histiocytosis Assoc Histiocyte Society Histio UK ECHO - european histiocytosis HRTrust UK Erdheim-Chester Ferdeor11 AILE Onlus - HLH Lili Kyriacou HLH (Maire) airi

What are natural history studies, and how do they relate to clinical trials and registries?

Learn all about this in our online course, ' #RareDisease Drug Development: What Patients and Advocates Need to Know.'

Start learning here: bit.ly/460MKjR

Register Now: us02web.zoom.us/webinar/regist…

Register for this live webcast today!

practicepointcme.com/AccountSignIn?…

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as Dr. Scott Canna and Dr. Alexei Grom discuss diverse mechanisms and clinical presentations in patients with suspected MAS, approaches for the timely diagnosis of MAS, and considerations for appropriate treatment and management strategies. (2/3)

Practice Point Communications, is proud to present Expert Insights on MAS: sJIA/AOSD and Macrophage Activation Syndrome: an Interactive Case-Based Discussion.  Register for this dynamic and interactive live session, (1/3)

International Patient Advocacy Group Collaboration on October 23’and 24. Together we will find a cure! Histio Hellas Histiocytosis Assoc

#HSMtg2023 Kumar: not everything meeting HLH-2004 criteria is HLH. Think about other possibilities (viral infxn, lymphoma) Histiocyte Society

Thank you once again to Histio UK for their generous sponsorship of #HSMtg2023 . No-one should die of Histiocytosis.

1st day of the Histiocyte Society Meeting! Welcome to Greece!
#histiocytosis #Conference #Awareness #viral #socialmedia AILE Onlus - HLH ECD Global Alliance Histiocyte Society Histiocytosis Assoc Lili Kyriacou HLH (Maire) Histio UK ECHO - european histiocytosis HRTrust UK Ferdeor11 ericsjourneyfoundation airi