IBC Research Fdn
@IBCResearch
Web-based, all volunteer non-profit working to improve the lives of those touched by inflammatory breast cancer (IBC) through the power of advocacy & action.
ID:1700732461
http://www.ibcresearch.org 26-08-2013 02:16:02
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You might not be able to be in DC with others from ASCO advocacy but you can send letters & social media msgs to let lawmakers know what matters 2 u. #drugshortages #cancerresearch #telehealthexpansion #access Our lives depend on quality care & access. Speak up!!
Fabulous presentation by Alexa Glencer on ASBrS member survey on management of #IBC . Important not to extrapolate data from other studies to this unique type of #breastcancer , eg axillary surgery de-escalation. #ASBrS24 MD Anderson Cancer Center Anthony Lucci Wendy Woodward MDPhD IBC Research Fdn
The #OncoAlertWeeklyPoll 🚨Results
After the Publication of NATALEE in NEJM We Asked our Colleagues: Do You Consider Ribo+ET in Early #BreastCancer Practice Changing? These were the results:
40% Not Practice Changing
-Most found NO clinical Significance
25% Found it Practice…
Cancer drug shortages should not be a political issue. @repjimbaird Join your colleagues in the House and Senate to swiftly mitigate widespread cancer #drugshortages . Patients’ lives are at stake. #ASCOAdvocacy
Cancer drug shortages should not be a political issue. @sentoddyoung Join your colleagues in the House and Senate to swiftly mitigate widespread cancer #drugshortages . Patients’ lives are at stake. #ASCOAdvocacy
#Drugshortages are impacting thousands of individuals w/ cancer, including individuals with cancer in your state @senatorbraun. Time is not on our side. Please work with your colleagues to mitigate these shortages. #ASCOAdvocacy
Glad to reconnect with this group after missing a few mtgs due to travel. So much can be learned by working with others & sharing #bestpractices . #patientadvocates
‼️ New pub alert 🚨 In Journal of Cancer Survivorship we describe the type and prevalence of survivorship concerns among individuals with #metastatic #cancer .
#Survivorship concerns were higher 📈 for individuals unemployed due to #disability
🔗: tinyurl.com/bdfuzxf2
While in the minority, this mask protects others as well as me. I'm vexed, but know many are at risk. #Kindness & #Concern for others matters. SWOG Cancer Research Network #springmtg
A bit of a disappointment but we MADE IT!! Advocates working together to produce quality research data! Watch out folks, we're just getting started!! AdvocateCollaborative (ACE) ASCO SWOG Cancer Research Network #patientadvocatestrong
Wishing all our doctor friends/colleagues a #HappyNationalDoctorsDay ! We appreciate all you do to keep us going!
Our #TranslationalMedicine link of the week chosen by SWOG Cancer Research Network's Lee Ellis & Jimmy Rae, PhD:
Advances and Challenges in Cancer Immunoprevention and Immune Interception
doi.org/10.1136/jitc-2…
Excited to help our Exec Director celebrate 30 yrs since being dx with #inflammatorybreastcancer ! For 25 yrs we've been working to help others reach milestones!
You can count on Maimah Karmo to bring everyone to their feet with her #calltoaction ! Always good to connect with an #advocacypartner ! Well done! NCBC #bcsm
TY MBC Alliance for helping spread the word about the new, updated website ibcresearch.org !