Jenny Lynch-Wilson(@JennyLynchWils) 's Twitter Profileg
Jenny Lynch-Wilson

@JennyLynchWils

Wife, mother, smallholder, ILD Specialist Nurse, Cymraes

ID:916980791292424192

calendar_today08-10-2017 10:57:12

531 Tweets

166 Followers

250 Following

EU-PFF(@EU_IPFF) 's Twitter Profile Photo

After a recap of the most relevant takeaways and insights of day 2, the first session of the final day of the European SUMMIT24 with Vincent Cottin and Marlies Wijsenbeek-Lourens delved into the latest research in the field of ! Exciting start to the final day!

After a recap of the most relevant takeaways and insights of day 2, the first session of the final day of the European #PFSUMMIT24 with Vincent Cottin and Marlies Wijsenbeek-Lourens delved into the latest research in the field of #PF! Exciting start to the final day!
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Marium Naqvi(@RespPharmacist) 's Twitter Profile Photo

Day 3 starts with Steve Jones chairing an outstanding session on latest research in . Vincent Cottin gives insights on new drugs in development & need for new drugs to demonstrate efficacy against current drugs so greater patient numbers are required

Day 3 starts with @ActionPFsteve chairing an outstanding session on latest research in #pulmonaryfibrosis. @OrphaLung gives insights on new drugs in development & need for new drugs to demonstrate efficacy against current drugs so greater patient numbers are required #PFsummit24
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Steve Jones(@ActionPFsteve) 's Twitter Profile Photo

Liam Galvin EU-PFF CEO chairs an exciting round table at the PF Summit on ‘clinical trials: exploring opportunities and insights’ with patient advocates, researchers and clinicians and pharma representatives.

Liam Galvin EU-PFF CEO chairs an exciting round table at the PF Summit on ‘clinical trials: exploring opportunities and insights’ with patient advocates, researchers and clinicians and pharma representatives. #pfSummit24 #curepf
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EU-PFF(@EU_IPFF) 's Twitter Profile Photo

The different types of PF and their impact on the body and lungs. This was the focus of the PF Puzzle: Unraveling the Various Faces of , with Steve Jones, Elisabetta Renzoni, Wim Wuyts, Ilaria Galetti and Lucilla Piccari. SUMMIT24

The different types of PF and their impact on the body and lungs. This was the focus of the PF Puzzle: Unraveling the Various Faces of #PF, with Steve Jones, Elisabetta Renzoni, Wim Wuyts, Ilaria Galetti and Lucilla Piccari. #PFSUMMIT24
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Steve Jones(@ActionPFsteve) 's Twitter Profile Photo

Jean-Michel Fourrier talking at the Policy Engagement Policy Roundtable at 3rd European PF Patients Summit. - patients need to partner with clinicians to influence policy ‘we need to demand more and be less shy!

@jmifourrier talking at the Policy Engagement Policy Roundtable at 3rd European PF Patients Summit. - patients need to partner with clinicians to influence policy ‘we need to demand more and be less shy!#pfsummit24 #curepf
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EU-PFF(@EU_IPFF) 's Twitter Profile Photo

In the Patient Engagement Policy roundtable, chaired by Colin Edwards, Bradley Price , matt johnson, Jean-Michel Fourrier, Emmanuelle Clerisme-Beaty&@fratommy75 discussed the importance of including patients in health care decisions especially in the context of research

In the Patient Engagement Policy roundtable, chaired by @ColinEdwards767, @BradleyJPrice , @mattbolzjohn, @jmifourrier, Emmanuelle Clerisme-Beaty&@fratommy75 discussed the importance of including patients in health care decisions especially in the context of research #PFSUMMIT24
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EU-PFF(@EU_IPFF) 's Twitter Profile Photo

In the session 'Understanding Pulmonary Health and Genetic Factors', today at the EU PFF Summit 2024, Dr Maria Molina Molina, Clare (Hodkinson) Beckett, Moises Selma and Wendy Adams talked about the role of genetics in and the current state of research.

In the session 'Understanding Pulmonary Health and Genetic Factors', today at the EU PFF Summit 2024, Dr Maria Molina Molina, @weeClareB, Moises Selma and @ActionPFwendy talked about the role of genetics in #pulmonaryfibrosis and the current state of research. #PFSUMMIT24
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Marium Naqvi(@RespPharmacist) 's Twitter Profile Photo

Bradley Price EU-PFF patientMpower Eamonn Costello Jenny Lynch-Wilson At dinner, a patient with was telling me about home monitoring & using an app. He told me the technology company really listened to him & cared about his views/thoughts. I asked what the app was called and was unsurprised when he said patientMpower

@BradleyJPrice @EU_IPFF @patientMpower @eamonncostello @JennyLynchWils At dinner, a patient with #pulmonaryfibrosis was telling me about home monitoring & using an app. He told me the technology company really listened to him & cared about his views/thoughts. I asked what the app was called and was unsurprised when he said @patientMpower
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Bradley Price(@BradleyJPrice) 's Twitter Profile Photo

Pilar Rivera-Ortega on the importance to rethink how we look at endpoints in ILD trials - move to looking at “feels, functions, survives” with a shift towards more emphasis on collecting and reporting patient experience measures

@PilarRiveraOrt1 on the importance to rethink how we look at endpoints in ILD trials - move to looking at “feels, functions, survives” with a shift towards more emphasis on collecting and reporting patient experience measures #PFSUMMIT24
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Bradley Price(@BradleyJPrice) 's Twitter Profile Photo

A strong rallying cry from Steve Jones to open : we need a timed pathway for PF diagnosis to put the disease on equal footing with cancer

A strong rallying cry from @ActionPFsteve to open #PFSUMMIT24: we need a timed pathway for PF diagnosis to put the disease on equal footing with cancer
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Liam Galvin(@IPFthurles) 's Twitter Profile Photo

1st session of starts with a look at supportive care - opening with Matt Cullen from ILFA Ireland, a patient & advocate sharing his experience & wise words

1st session of #pfsummit24 starts with a look at supportive care - opening with Matt Cullen from @ILFA_Ireland, a patient & advocate sharing his experience & wise words
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Marium Naqvi(@RespPharmacist) 's Twitter Profile Photo

Prof. Anne-Marie Russell 🎗️♀️⚕️ considers supported self-management, the integrated respiratory pathway, the blended approach to care with the & the Delphi study suggestion of essential components of supportive care for

@anmari_russell considers supported self-management, the integrated respiratory pathway, the blended approach to care with the #MDT & the Delphi study suggestion of essential components of supportive care for #pulmonaryfibrosis #PFsummit24
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Marium Naqvi(@RespPharmacist) 's Twitter Profile Photo

John Solheim chairs the session on navigating supportive care for - rightfully unapologetic about coughing 💪🏼 John compares AI understanding of supportive care versus the human touch

John Solheim chairs the session on navigating supportive care for #pulmonaryfibrosis - rightfully unapologetic about coughing 💪🏼 John compares AI understanding of supportive care versus the human touch #PFsummit24
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Marium Naqvi(@RespPharmacist) 's Twitter Profile Photo

Really excited for the EU-PFF patient summit 2024. An incredible opportunity to learn from patients, carers and healthcare professionals as well as ILD partner organisations. And fully appreciative of sunny Barcelona ♥️

Really excited for the @EU_IPFF patient summit 2024. An incredible opportunity to learn from patients, carers and healthcare professionals as well as ILD partner organisations. And fully appreciative of sunny Barcelona ♥️
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Marium Naqvi(@RespPharmacist) 's Twitter Profile Photo

We need a time bound patient care pathway and lobby to raise awareness. We need to raise our global voice for patients with . The time is now

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Prof. Anne-Marie Russell 🎗️♀️⚕️(@anmari_russell) 's Twitter Profile Photo

And we are off EU-PFF SUMMIT24 Fantastic program and unique opportunities for patients their families clinicians and industry to come together to improve care for

And we are off @EU_IPFF #PFSUMMIT24 Fantastic program and unique opportunities for patients their families clinicians and industry to come together to improve care for #PF
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