Thanks for having me on this week Binita Kane I’ve had some lovely feedback from people with the most common themes being Hope, Validation and Understanding. Keep up the good work, the next couple of sessions will be amazing #MakingADifference

If you have #longcovid or #MECFS check out our livestream series. The conversations have been brilliant, I have learned loads from these amazing people 🤩

Harry Leeming and Putrino Lab coming up in the next month, watch this space!

Link ➡️ youtube.com/@LCCWYCD?featu…

📣 WE NEED YOUR HELP!

We are creating a database of individuals who would be willing to be contacted for interviews, comments and articles ✍🏻🗣️ which would be posted on social media platforms & the NHS Voices website. 👇💙

docs.google.com/forms/d/e/1FAI…

Please listen to our friend & colleague Cass CM they/them ASD EDS MDD OA etc

Brave & articulate❤️

This is moving, true & consolidating

Truly exceptional to find the courage determination & strength
& to give so much energy to speak out on behalf of us all❤️

Thank you so much Cass❤️
Key Workers Petition UK

Well done to my wonderful friend CM they/them ASD EDS MDD OA etc for their inspiring stand at the Scottish Covid Inquiry today. Sending you love and hugs for what has sure to have been an exhausting day! ❤️

We are very proud of our founder member Cass for having the energy and tenacity to speak at the Scottish COVID-19 Inquiry on behalf of Scottish Healthcare Workers Coalition. 👏
Check out their awesome video, Cass appears first -

youtube.com/live/Q9KCIBAzy…

Cass describes what we went through so well, it’s left me in tears.
When you are ready, make yourself a cuppa, sit and listen to it, and know you aren’t alone.
Well done Cass, it was awesome. 👏

youtube.com/live/Q9KCIBAzy…

Long Covid SOS Long Covid Support 🌍 LongCovidNurses&MidwivesUK 💙🌈 #TeamLCNMUK #FBLC Long Covid Doctors for Action Long Covid Patient Action Group UK

Wow... this looks like an important UK survey and it's close to our hearts as many of us with #LongCovid have been advocating and engaging in #DisabilityActivism for four plus yrs please share and consider completing ...
Long Covid Advocacy 💙 Long Covid SOS LongCovidNurses&MidwivesUK 💙🌈 #TeamLCNMUK #FBLC Supporting Healthcare Heroes UK

🚨PLEASE RETWEET AND ACT🚨
Last calls for quotations for this BBC World piece on #LongCovid symptoms, treatments, biomarkers, etc. See below and email [email protected] your experience/quotation ASAP.

📣 What is your experience with #LongCovid clinics in England?
E.g.: Are you getting good care? Have you been discharged (we know that doesn’t necessarily mean you were better!)? Have you had difficulty being referred to a clinic? Has your clinic closed? Etc.
#TreatLongCovid

I’ll ask again :

What is happening with #LongCovid clinics ( in England) ?

Long Covid Support 🌍
Nikki S.
crr
Ruairidh Milne

You think Covid is just like a cold & believe the politicians.Try researching yourself- you’ll find it can kill & disable. It’s not a cold for me. ⁦Stephen Griffin⁩ ⁦Professor Stephen Powis⁩ ⁦Clinically Vulnerable Families 💙💜💗⁩ ⁦Independent SAGE⁩ ⁦Dr Claire Taylor⁩ ⁦⁦Daisy Cooper MP 🔶⁩

I hope you have a restful Sunday, thank you for all of the questions, feedback and support for the #podcast ❤️ #LongCovid #pots #MECFS #Symptommanagement #VagusNerve #vagusnervestimulation #onedayatatime #bekind
Available on all usual platforms and here:
livingwithlongcovid.buzzsprout.com

He just spent his 14th birthday entirely alone. Same as his 10th, 11th, 12th & 13th. Imagine that. Didn’t open a gift or card, didn’t see a friend or have a party. I find his birthday harder to cope with than any other day of the year. One day he’s getting the biggest hug ❤️💔❤️

“THE BOY WHO STOPPED”❤️ This is a summary of my Son’s story. #PANS #PANDAS #ChildrensMentalHealthWeek
Thank you for reading ❤️

A little information on this weeks #podcast available on all platforms or use the link; out on Sunday. #longcovid #MECFS #pots #Symptommanagement #vagusnervestimulation #grateful #onedayatatime #bekind
livingwithlongcovid.buzzsprout.com

The children of Greater Manchester deserve clean air. Please support the Clean Cities Campaign - more info here ➡️ cleancitiescampaign.org/gm/

#GMDirtySecret
#cleanair

Save the date!
Live Wednesday 17 April 6pm BST
Fireside chat

Dr Binita Kane & Helen Oakleigh present 'The Long Covid Clinic - What You CAN Do'. In partnership with Long Covid Support.

Micro-pacing for recovery, Binita Kane talks to Robin McNelis Robin McNelis Physiotherapy

#LongCovid

Returning to work with #LongCovid is very different to sustaining working with #LongCovid ie staying at work . Is anyone researching this ?

#LongCovid episodic #disability and the need for reasonable adjustments at #work tandfonline.com/doi/full/10.10…