A game I didn’t know I was playing until too late. 3.14.2020–still not recovered. #TreatLongCovid

“There’s not a thing I can do for you,” she recalls him telling her. “No medicine. No magic bullet. No nothing.”

#TreatLongCovid #ResearchLongCovid washingtonpost.com/health/2023/05…

Long COVID thoughts:

“I shot some hoops 🏀 today for the first time in forever. I hope that doesn’t cause me to die in my sleep later. I’d hate to wake up tomorrow dead, I have a lot to do. 🙏🏽”

#LongCOVID #pwLC #NotRecovered #ChronicIllness #TreatLongCOVID #COVID …

The #longcovid life cycle:

1. I’m going for a walk.
2. *Crash* I feel like I’m dying. I’ll never get better.
3. I lay on my couch reading long Covid research desperate to get better.
4. I go a week without crashing and gradually feel a little better.
5. I’m going for a walk.

Best Cat Dad Ever.
miahcombat.com/collection/cat…

He wouldn't want it for a week, let alone years
I hope he learns this the hard way
#LongCovid #treatlongcovid

👏👏👏 The Boston Globe
The struggles of #pwME have been underreported for far too long. Appropriate timing with #IIMEC15 happing in UK.

The Philadelphia Inquirer PhillyVoice WHYY News when are we going to see similar reporting in Philly?
#TreatMECFS #TreatLongCovid

What’s scariest to me, is millions of us not getting our health back because we were led down the wrong path for bad reasons. Do better, lives depend on it! 🫳🏽🎤

#LongCOVID #pwLC #ChronicIllness #NotRecovered #TreatLongCOVID #ChronicLyme #COVID #HealthFirst #DoBetter #RootCause

🇺🇸 New Light On A Hidden Struggle

▫Overlooked chronic fatigue sufferers hope to benefit from medical focus on long Covid
▫Amanda Gokee 🇺🇸

#frontpagestoday #USA The Boston Globe

Symptom trajectories of #LongCovid :
• At 6mnths 22.9% not recovered
• At 1yr 18.5% not recovered
• At 2yrs 17.2% not recovered
• 5.2% had worsening health status
“Effective interventions are needed to reduce the burden of post-covid-19 condition”
#TreatLongCovid
Long Covid Support 🌍

If you haven’t filled this out, please do. This is a Long COVID Test Results survey. If you have your tests handy it won’t take too long to fill out. 61 have filled it out already.

#LongCOVID #pwLC #TestResults #NotRecovered #TreatLongCOVID #Survey

docs.google.com/forms/d/1-vv2e…

It’s brutal. #TreatLongCovid

There is not only a moral argument, but an economic one to

1. Invest in biomedical research to cure #LongCovid to help get ppl back to work, and

2. Invest in #CleanAir to prevent further cases and associated ill health

#TreatLongCovid
#CleanAir BillNOW

At 2-year follow up of >1,100 people who had Covid, unvaccinated vs >600 controls
--18% were affected with #LongCovid
The BMJ
bmj.com/content/381/bm…

Day 2: Wireframing with Jeda.ai 's Generative AI 🚀
🎶 Time to have some fun and groove to the music while we revolutionize visual communication! 
#GenerativeAI #Wireframe #Product #UX #Design #GPT4 #ChatGPT #Jedaai #100DaysOfCode

This data is I think one of the most important findings in ME/CFS and ME/CFS-like long Covid research

It shows that the S1 spike protein subunit can cause mitochondrial fragmentation, part of the 'mitochondrial pathogen response'

mdpi.com/2073-4409/12/6…

The nastiest thing about #longcovid or chronic illness post-virus, like #MECFS after EBV, is the average onlooker expects extreme symptoms.

I had no idea that it would be a slow burn that would creep on me for over a year until I'm stuck in bed on a heart monitor.

And so it begins! The “perks” of having #LongCovid : getting a colonoscopy years before I’d typically need one. #IYKYK #TreatLongCovid

Spike protein causing mitochondrial fragmentation … Long COVID looking more unique & specific by the day.

#LongCOVID #pwLC #ChronicIllness #NotRecovered #TreatLongCOVID #SpikeProtein #Unique #LongSpike

What cancer and neurology have that #longCOVID doesn’t is funding. If its funding matched its enormous disease burden, the researchers would follow. And when they come, they will have countless fascinating research questions to work on.

If you’ve done Herpes Drugs (Acyclovir, Famciclovir, Valacyclovir, etc.) while having Long COVID, how did it go?

#LongCOVID #pwLC #ChronicIllness #NotRecovered #TreatLongCOVID #EBV #HerpesDrugs #Poll

23 Points! Now what? #LongCovid
#TreatLongCovid

This. #ResearchLongCovid #TreatLongCovid

They are changing my bp meds too to help regulate my bp & tachycardia more. Really hope this helps.

Happy to have docs listen today & not jump towards dismissal.

Also happy my docs both were wearing n95s. Hell yeah.

4/4

#treatlongcovid
#LongCovid

What a complete sh*thead.

10,9,8,7,6,5,4,3,2,1,0

#TheNicotineTest tweets
with basic information on
NICOTINE PATCHES
used for treatment of
#LongCovid #MECFS #bwLC
have been launched

in English
bit.ly/3qbOebD

in German
bit.ly/3qemZ0e

#LivingWithLongCovid
#TreatLongCovid
#NotRecovered

This was me too. Like slowing sinking into quicksand and unable to notice until it’s too late. #TreatLongCovid #TreatMECFS

1/🧵 Long COVID’s “Disability Roulette”

🔺No longer a mass Death event…
🔺COVID-19 is an ongoing mass #Disability event
🔺You & I might get #LongCOVID
🔺But society is yawning

This thread unpacks science, policy & hope.

No Paywall Boston Globe link:
bit.ly/3OGfSb1

The launch of the information campaign about nicotine patch treatment option for #LongCovid #MECFS with tweets in 11 languages will take place very soon.

10,9,8,7,6,5,4,3,2...

Follow #TheNicotineTest

#livingwithlongcovid
#TreatLongCovid
#NotRecovered
#ChronicIllness

WesElyMD Boston Globe Opinion Thank you very much 🙏 it is so important to insist on raising #awareness , too many pple have their life distroyed by #LongCovid eel , left alone. The children and teenagers with #LC are tomorrow's adults.

#ApresJ20
#LongCovid
#LongCovid Awareness
#TreatLongCovid
#CovidIsNotOver