LobularBCUK
@LobularBCUK
Lobular Breast Cancer UK is a patient advocacy charity working to improve outcomes for people affected by lobular breast cancer.
ID:1233382509221679105
http://www.lobularbreastcancer.org.uk 28-02-2020 13:24:54
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Can you help get the remaining signatures needed & ensure women with #TripleNegativeBreastCancer get the treatment they need? Just over 5,000 more needed. action.breastcancernow.org/enhertu-emerge…
Breast Cancer Now
#TNBC
We’re delighted to be collaborating with researchers at Oxford Brookes, dmuleicester & University of Aberdeen to develop support resources to help with #Lobular recurrence. Find out how you can get involved if you have had a #Lobular diagnosis at buff.ly/3xmq7dP
Out now on 'So Now I've Got Breast Cancer' - Everything you need to know about Radiotherapy with Jo and Naman from Rad Chat
Listen now apple.co/4aLsUf4
Plus there's the weekly poem from Donna Ashworth
BreastCancer Chat WW #BCCWW LobularBCUK Breast Cancer Now
Powerful film from Breast Cancer Now about #SecondaryBreastCancer featuring LBCUK’s wonderful Ruth Warden who has secondary #LobularBreastCancer . We love you Ruth ❤️ #SecondaryLobular
Are you interested in helping to develop a new resource to support people in recognising and reporting signs and symptoms of #LobularBreastCancer recurrence and to address fears related to recurrence? Find out more at buff.ly/3xmq7dP Oxford Brookes #BreastCancerRecurrence
Thank you to this collaboration, including the incredible & compassionate work being conducted by Christine Desmedt & KarenVanBaelen for #LobularBreastCancer , to increase understanding of #metastatic disease through #RapidAutopsy programmes.
Great podcast on #LobularBreastCancer . Thank you for sharing and Adrian Lee for remembering incredible advocate Leigh Pate.
Fabulous to see researcher Christine Desmedt, pathologist Anne Vincent-Salomon and oncologist Alicia Okines The Royal Marsden NHS Foundation Trust leading the #Lobular voice at #EBCC2024 #ILC ELBCC
Thank you to the researchers, health professionals & patient advocates representing the #LobularBreastCancer voice at #EBCC2024 ELBCC Lobular Breast Cancer IRL #LivingWithLobular Alicia Okines from The Royal Marsden NHS Foundation Trust
Thank you to researchers Rachael Natrajan and Sarah Nash, and Consultant Oncologist Prof Elly Sawyer for info on their research into aggressive Lobular tumours buff.ly/3TCXl1o Natrajan Lab ICR King's College London
Anwen (centre) had no symptoms when diagnosed with #Lobular BreastCancer . Find out more about her story & how she is working with her family to raise awareness of & funds for #Lobular , especially in Welsh rural areas. buff.ly/3T64gOS Rhwydwaith Canser | Cancer Network
Please sign this petition to enable thousands of women with incurable HER2-low #secondary #BreastCancer to access the drug #Enhertu , rejected for use in England, Wales & NI but available in Scotland.
Recent research shows many #Lobular tumours are HER2-low.
#EnhertuEmergency
METUPUK is disappointed with the decision to not recommend Enhertu in England. Patients are waiting for a deal to be reached, but time is short
Together with Breast Cancer Now we are promoting the #EnhertuNow petition.
Please sign & share buff.ly/3wFo4Bn
Really important that these forms of #Lobular CarcinomaInSitu are known about. Thank you Liz.
The latest research indicates that if #Pleomorphic #LCIS is present then invasive #Lobular is already present in most cases. Ask your medical team for further supplementary imaging.
Hot off the press The Breast Online - our summary of highlights in metastatic breast cancer in 2023: recent practice changing publications, approvals and some unanswered clinical questions
thebreastonline.com/article/S0960-…