Mycetoma Research Center
@MycetomaRC
MRC was established in 1991 under the umbrella of University of Khartoum to provide medical care, research, education and prevention of mycetoma.
ID:1051755719823937536
http://www.mycetoma.edu.sd 15-10-2018 08:44:39
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The DNDi@20 free medical camp kicked off today at St. Comboni Kacheliba Girls Primary School in West Pokot County.
We have partnered with FIND,
Rotary District 9212, Kenya Medical Research Institute , Ministry of Health , Action Against Hunger, Kenya to screen for #mycetoma , #leishmaniasis , non-communicable diseases among others.
๐๐พMei Trueba & Ffion Staniland, 4th-year medical student BSMS, presented their research at International Labour Organization Regulating Decent Work Conference
Their presentation explored whether (and how) import bans can be an effective tool for improving working conditions ๐๐พ #ResearchWithImpact
The worldโs first randomized double-blind clinical trial on fungal #mycetoma was completed last year in ๐ธ๐ฉSudan by Mycetoma Research Center, partners & Drugs for Neglected Diseases initiative.
Current treatments are costly, ineffective, & have serious side effects. More in this Inter Press Service story. bit.ly/41kKcL8
. #NTDs affect over 1.7 billion of the world's poorest & most vulnerable people.
We must prioritize #innovation for the prevention, diagnosis & treatment of NTDs to achieve a healthier, more equitable world for all. #BestScienceForAll #WorldHealthDay
Treatment for #mycetoma is costly for patients. Some of the factors that come to play include:
โ๏ธ Complexity of the studies with low patience prevalence.
โ๏ธ Remote, hard to reach areas
โ๏ธ Lengthy, health seeking pathway
โ๏ธ High burden on health systems
โ๏ธ Disability/amputation.
'For decades, people affected by #mycetoma have been largely ignored by medical research.'
Dr. Borna Nyaoke-Anoke in The Telegraph article on the risk of pandemics from fungal pathogens. Mycetoma is a fungal disease that slowly eats away at flesh. #beatNTDs bit.ly/3Kp56n6
Dr. Sucheta Waghmare MD, New York University, Dallas Smith, Mycotic Diseases Branch, CDC, Corrinne Joseph Tendo, School of Global Public Health, NYU, and @profahfahal at the first World Health Organization (WHO) Global Meeting on #skinNTDs .
#Mycetoma is a devastating, slow-growing infection transmitted by a thorn prick that leads to deformities & disability.
Drugs for Neglected Diseases initiative and partners have been running the world's first clinical trial on Fosravuconazole treatment with Mycetoma Research Center, Eisai US and other partners. #SkinNTDs
Drug discovery takes years & tougher for neglected tropical disease like #Mycetoma - 12 yrs: 2013 to 2025 drug registration - and coat $8 million. At start it was not even recognized as World Health Organization (WHO) #NTD Mycetoma Research Center Drugs for Neglected Diseases initiative life changing for patients #SkinNTDs #beatNTDs
.wwjvdsande and Professor Ahmed Hassan Fahal at the first World Health Organization (WHO) Global Meeting on #skinNTDs .