REFUEL-MS(@REFUEL_MS) 's Twitter Profileg
REFUEL-MS

@REFUEL_MS

REFUEL-MS is a research programme based @KingsIoPPN & others, developing a digital treatment for fatigue in #MultipleSclerosis.

@mssocietyuk @NIHRresearch

ID:1590355157342093316

linkhttps://linktr.ee/refuel_ms calendar_today09-11-2022 14:47:43

60 Tweets

137 Followers

82 Following

REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

We are thrilled to announce that REFUEL-MS has secured 1 of 8 places on the @ukgovofficial 's new Innovative Devices Access Pathway (IDAP) pilot scheme!

You can read more about the scheme here: gov.uk/government/pub…

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Neuro Therapy Network(@NeuroTherapyNet) 's Twitter Profile Photo

REFUEL-MS is looking for people living with MS to take part in a series of videos demonstrating simple balance exercises. These will be included in the REFUEL-MS app aimed at reducing MS-related fatigue. Further info and contact details if you’re interested ⬇️

REFUEL-MS is looking for people living with MS to take part in a series of videos demonstrating simple balance exercises. These will be included in the REFUEL-MS app aimed at reducing MS-related fatigue. Further info and contact details if you’re interested ⬇️
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Journal of Neurology, Neurosurgery and Psychiatry(@JNNP_BMJ) 's Twitter Profile Photo

Treating fatigue with CBT in relapsing remitting MS? Fatigue is a disabling MS symptom and very common. This study shows 6-week CBT with booster sessions to be superior to standard care alone in treating fatigue in MS

bit.ly/45VwpgB Marie Blanchère olivier heinzlef

Treating fatigue with CBT in relapsing remitting MS? Fatigue is a disabling MS symptom and very common. This study shows 6-week CBT with booster sessions to be superior to standard care alone in treating fatigue in MS bit.ly/45VwpgB @blancheremarie1 @OHeinzlef
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National MS Society(@mssociety) 's Twitter Profile Photo

'She reads and learns about MS on her own time. She comes to my appointments with me and helps me advocate for myself. She comforts me when I’m feeling unsure or afraid of the future. I don’t know how I would do any of this without her.'

~Holly,

'She reads and learns about MS on her own time. She comes to my appointments with me and helps me advocate for myself. She comforts me when I’m feeling unsure or afraid of the future. I don’t know how I would do any of this without her.' ~Holly, #ThisIsMS #CouplesWithMS
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thenerveofmymultiplesclerosis(@thenerveofmyms) 's Twitter Profile Photo

🚀 We're back in-person for 2024! Save these dates:

🌸 9 Mar: 'Benefits Empowerment Workshop' - Intl Women's Day special.
🌿 27 Apr: 'Health & Wellbeing Workshop' for MS Awareness.
💪 13 Jul: 'Shades of Strength Week Launch'.

Stay tuned for locations! 📍

🚀 We're back in-person for 2024! Save these dates: 🌸 9 Mar: 'Benefits Empowerment Workshop' - Intl Women's Day special. 🌿 27 Apr: 'Health & Wellbeing Workshop' for MS Awareness. 💪 13 Jul: 'Shades of Strength Week Launch'. Stay tuned for locations! 📍 #Empowerment…
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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

We’re developing a treatment to help reduce fatigue in multiple sclerosis – interested in joining our team as a research assistant? Apply now!
kcl.ac.uk/jobs/082066-re…

Rona Moss-Morris

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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

And that’s a wrap!

We feel so lucky to have been a part of this wonderful MS community this year, and we're so excited to continue in 2024💗

And that’s a wrap! We feel so lucky to have been a part of this wonderful MS community this year, and we're so excited to continue in 2024💗 #msfatigue #msresearch #refuelms
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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

A very Merry Christmas and a Happy New Year from the REFUEL-MS team🧡

We've come to the end of the working year and what a year it's been! We want to thank everyone who's been involved in the REFUEL-MS journey so far, and bring on 2024⭐

A very Merry Christmas and a Happy New Year from the REFUEL-MS team🧡 We've come to the end of the working year and what a year it's been! We want to thank everyone who's been involved in the REFUEL-MS journey so far, and bring on 2024⭐ #msresearch #msfatigue #refuelms
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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

We talk about 'co-production' a lot in our research, but what actually is it?

Check out our latest post demystifying co-production, exploring why and how we're using it for REFUEL-MS 🧡

instagram.com/p/C0RzwtQMsGs/…



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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

After one whole year of REFUEL-MS, we've just launched our first newsletter!

Hear about all our progress so far, and what's still yet to come.

Sign-up here: refuel-ms.com/contact-9

After one whole year of REFUEL-MS, we've just launched our first newsletter! Hear about all our progress so far, and what's still yet to come. Sign-up here: refuel-ms.com/contact-9 #refuelms #msfatigue #msresearch #multiplesclerosis
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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

Fantastic to brainstorm with healthcare professionals yesterday and discuss the development of the REFUEL-MS app. Thank you to everyone who came to the workshop and shared their expertise!

Fantastic to brainstorm with healthcare professionals yesterday and discuss the development of the REFUEL-MS app. Thank you to everyone who came to the workshop and shared their expertise! #onestepcloser #refuelms #msfatigue #multiplesclerosis #msresearch
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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

Our team is pressing on with intervention development and working out what will be in the first version of the REFUEL-MS app. Thanks to all who have been involved and given input so far!

Our team is pressing on with intervention development and working out what will be in the first version of the REFUEL-MS app. Thanks to all who have been involved and given input so far! #keepingon #refuelms #multiplesclerosis #msresearch
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REFUEL-MS(@REFUEL_MS) 's Twitter Profile Photo

Happy Diwali from the REFUEL-MS team! Our research assistant Nimmy Nimmy Sidhu is looking forward to celebrating a time of light, togetherness & family this weekend. Wishing everyone a happy weekend❤️

Happy Diwali from the REFUEL-MS team! Our research assistant Nimmy @nimrethsidhu is looking forward to celebrating a time of light, togetherness & family this weekend. Wishing everyone a happy weekend❤️ #MeetTheTeam #Diwali #RefuelMS #MultipleSclerosis
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IJMSC(@IJMSCtweets) 's Twitter Profile Photo

Hiba Adan: “It's becoming obvious there's not of voices in . We're making conscious effort to do things to show everyone's voice, knowledge & experiences are valued.” REFUEL-MS is interviewing ethnic minority, +, severe & indivs.

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