Hello all my lovely Parky friends! I have a question, do any of you have the new infusion pump? If so, may I inbox you? Many thanks 🙂

Trishna Bharadia BA(hons), MFPM(hon) Prof. Karen Woolley Jan Geissler Dr Simon Stones Becaris Publishing Joanne Walker Laura Dormer Dawn Lobban Amica Scientific Envision the Patient never gives up when there is a good narrative to be told! And when there are a group of amazing Co-authors, the hurdles can bring much laughter and joy too! Always a pleasure working with you Trishna Bharadia BA(hons), MFPM(hon)

This has been a labour of love for all of us who worked on this paper as #patientauthorship is something that we feel really strongly about! Do take a moment to have a read! Special thanks to Prof. Karen Woolley for her leadership on this!

onlinelibrary.wiley.com/doi/epdf/10.10…

Behold an MS icon! She is more than a hero. Our oldest MS patient at 96 years young. Full of vitality, resilient, and purveyor of life lessons. #omrf #ms Aaron Boster MD Barry Singer MD 🧠 Gavin Giovannoni, aka Prof G Celia Oreja-Guevara Multiple Sclerosis Neurologist dr Agne Straukiene Dr. Brandon Beaber

In 2016, Aoife Kirwan wrote a blog about disclosing her MS. Today, she looks back on whether she still feels the same way or not.

Read Aoife's blog in full here: ms-society.ie/ms-and-me/look…

Ladies and gentlemen the full special! I’m very proud of this show and lots of people put lots of work into making it look as nice as possible. Please enjoy on my friend and yours, YouTube.com, at 7pm

realtalkms.com/348
Do you know how the difference between chronological aging and biological aging impacts MS? Find out in this week's episode of RealTalk MS #MultipleSclerosis

In a recent webinar Trishna Bharadia BA(hons), MFPM(hon) noted that to help achieve inclusivity in clinical research meaningful patient engagement is required.

We can help connect you to patients & the public to design participant-friendly clinical trials.

Find out more:
nihr.ac.uk/partners-and-i…

Which questionnaire should doctors be using to measure levels of fatigue in patients with #MultipleSclerosis ? Take a look at this plain language summary of a recent study from P Kamudoni et al. ( #MerckHealthcareKGaA ), to find out. doi.org/10.2217/nmt-20…

Excellent work by Kim Kaur🌻 Be Hõsh to raise awareness of drug & alcohol issues in Asian communities, stigma around the topic, the SAFIR* group offering support to South Asian women, and the need for culturally sensitive services 👇🏽
#TherapistsConnect
bbc.co.uk/news/articles/…

realtalkms.com/348
Today, there are more people living with MS who are over the age of 65 than there are people living with MS under the age of 45. That's why this week's episode of RealTalk MS is all about aging with MS. #MultipleSclerosis

Is it possible to have MS when there is no evidence of demyelination on the MRI brain?

In short, yes, you can have MS with a normal MRI. However, the answer is much more complex than a simple yes or no answer ……

#MS_Selfie Q&A 31 => buff.ly/3V3fcNX

When Trishna Bharadia BA(hons), MFPM(hon) is on the faculty, you know you will learn something valuable. This time with ePI (electronic product information) - the hope for ‘patient-informed’, trusted, customised, understandable info. Not too much to ask surely???
#ISMPPAnnual2024

So happy to see Trishna Bharadia BA(hons), MFPM(hon) live in the room at #ISMPPAnnual2024 , reminding everyone that patients must be considered as key stakeholders when developing product information.

Oh oh oh oh ohhhhhhh!!!!!!!!! YAAAAAAAAYYYYYYY!!!!!!!! 🥳🥳🥳 This is so well deserved that even I don’t have enough words to say how much!!!!!!!!! ❤️❤️❤️ This has made me beyond happy!!!!!!!!! #IsmppAnnual2024

ISMPP was thrilled to feature more than 70 posters with the latest member research during #ISMPPAnnual2024 . We're pleased to announce the poster winners for Most Reflective of Meeting Theme, Original Research, Best Visual Communication, and Most Visionary Research. Congrats!

My favourite quote from the incredible Maya Angelou - we must never underestimate the impact of our actions on other people - in med comms, in patient advocacy, and life in general! #ISMPPAnnual2024

Journals haven’t changed much in 160 years… is it time for a complete overhaul?! #ISMPPAnnual2024

Oliver Brant highlighting the need for ‘cultural competence’ (eg, awareness, sensitivity) in design. Highly relevant for ISMPP in #AsiaPacific #Diversity #ISMPPAnnual2024 Envision Pharma Group

Where do #PatientAuthor s come from?
Interesting parallels in therapeutic areas between patient advocacy respondents in PatientView (hot off the press!) and our research on #PatientAuthor
More on #PPI in #publications at #ISMPPAnnual2024