In our latest blog post, we interviewed communication expert Dr. Theresa Bartolotta to learn how she is leading the charge in communication strategies for #Rettsyndrome patients like her daughter, Lisa. Read the blog here: rettsyndrome.org/comms-spotligh…

There are so many things you can do with our My Rett Ally web app, powered by mejo! Get to know My Rett Ally, made exclusively for our Rett syndrome community, at rettsyndrome.org/myrettally.

With less than 3 months to go until ASCEND 2024 in Colorado, we are excited to announce some of the exciting speakers confirmed for this year's Family Conference! Learn more about these speakers and more at buff.ly/3xbBF3t.

DepYmed recently received clearance from the U.S. FDA to initiate a Phase 1 clinical trial of their drug candidate DPM-1003 for the treatment of Rett syndrome! For more info on DepYmed, all the companies advancing #Rettsyndrome treatments, & their status: buff.ly/3vrZWC7

We are excited to announce that the LOI submission window for this year's IRSF #Rettsyndrome research funding cycle will open on April 15th! The award will fund projects up to $300k for 2 years. More info here: rettsyndrome.org/research/for-r…

In this blog, IRSF’s Government Relations Manager, Katie Busch, shares more about her week on Capitol Hill for Rare Disease Week. Learn about our efforts and how you can join us in advocating for someone you love with Rett here: rettsyndrome.org/rdw2024.

We're thrilled to provide pro bono services to the International International Rett Syndrome Foundation Foundation. It's a privilege to support IRSF in its advocacy efforts, including meetings with members of Congress during Rare Disease Week.

rettsyndrome.org

#RareDiseaseWeek #MakingADifference

This afternoon, during their 2023 financial results call, Taysha Gene Therapies shared interim data from the first two adult participants dosed with their investigational gene therapy TSHA-102 in the REVEAL adolescent and adult study. Read the full press release: buff.ly/4a11JwN

This Thursday night, Acadia Pharmaceuticals will host another session of 'Discovering DAYBUE,' an educational webinar series for caregivers looking to learn more about treatment with DAYBUE, the first FDA-approved treatment for Rett syndrome. More at: buff.ly/48XprIZ.

Early bird pricing for the ASCEND 2024 Rett Syndrome National Summit ends tomorrow! Join us in Colorado this June for the Scientific Meeting, Family Conference, or both! Learn more and register at buff.ly/4buoLgP.

Whether your loved one has recently begun a new medication or has been on one for some time, My Rett Ally empowers you to capture what matters most. Learn more about My Rett Ally, a free tool made exclusively for Rett syndrome caregivers, at buff.ly/46U4xKV.

Missed it live? You can watch this free #CME program with PlatformQ Health on-demand! Discover strategies to develop personalized management plans for patients with #RettSyndrome : bit.ly/4bBtsFF

IRSF CEO Melissa Kennedy sat down with the The American Brain Coalition for their podcast series 'Advocacy Champions: Voices for the Brain.' Listen now to learn more about how you can help IRSF raise awareness and advance research for Rett syndrome. Check it out: buff.ly/49VM7Kt