Rett-perheiden päivä Heurekassa! 🤩
#teamjaakkola #rettinoireyhtymä #perhe #vertaistuki #rettsyndrome #kommunikointi
October is #RettSyndromeAwarenessMonth
DYK💜Rett syndrome #RTT is often misdiagnosed as #autism , #CerebralPalsy or non-specific developmental delay. Researchers are empowering RTTfamilies to be involved as partners in research
More info International Rett Syndrome Foundation 🔗rettsyndrome.org/about-rett-syn…💜
Congrats to Rand Pecknold and Quinnipiac Men's Ice Hockey for their 1st NCAA Hockey Championship! Forever grateful for their support of International Rett Syndrome Foundation and everything they have done for the Rett community!
🧬 We are delighted to announce our #coty for 2023: Reverse Rett, a patient advocacy and research organisation focused on delivering treatments and a cure for #RettSyndrome .
🤝 Throughout the year, we'll host many fundraising events, so help us to help them to make a difference.
For anyone sticking it out to the very end of SfN, stop by and see Amanda Vanderplow, PhD present a project that I’m super excited about! International Rett Syndrome Foundation Loyola University Chicago
It's pretty cool that PharmaTher Holdings Ltd. (OTCQB: PHRRF) (CSE:PHRM) received
5 FDA orphan drug destinations for #ketamine
1. #RettSyndrome
2. Ischemia-reperfusion injury
3. Status Epilepticus
4. #ALS
5. Complex Regional Pain Syndrome
$PHRRF $PHRM
Penn Neurosurgery welcomes Daniel Connolly, a 7th year MD-PhD student who begins his #Neurosurgery rotation today. Earlier this year, he defended his thesis on the molecular basis of #RettSyndrome , Joe Zhou Lab.
#RettRedefined just a reminder. Many of our girls and boys are nonverbal but that just means they do not speak with their mouth. They are EXTREMELY speaking with their EYES. #RettSyndrome .
Just a sweet photo of my sister Jess (who has Down syndrome) with my son (who has Rett syndrome) and my husband (Victor Meldrew syndrome 🙂) taken by another of my sisters this morning #boyswithrett #DownSyndrome #rettsyndrome #victormeldrew #holdinghands
#RettRedefined just a reminder. Many of our girls and boys are nonverbal but that just means they do not speak with their mouth. They are EXTREMELY speaking with their EYES. #RettSyndrome .
Tonight the Leaning Tower of Pisa is illuminated to raise awareness for rare diseases Reverse Rett International Rett Syndrome Foundation CDKL5 Alliance - Stronger Together CDKL5 - IFCR ITA CDKL5 IVLC - C.F. 92049350157 Dan Lavery
Did you know February is #RareDiseaseMonth ? Join us in raising awareness for #RareDiseases ! First up: Rett syndrome by Dr. Christopher Beatty.
NORD International Rett Syndrome Foundation Nationwide Children's Hospital Anup Patel, M.D.
Today we wore purple to raise awareness for #rettsyndrome and also to show support for families in our community for Peel Children's Aid Society #DressPurpleDay . 💜💟 Dufferin-Peel Catholic District School Board #WeAreCalledToLove
Privilege to be Scottish Parliament for British Neuroscience Association Reception examining how Research in Scotland is key to future health.
1/3 people in Scotland affected by mental illness/year.
But research *is* working + enhancing knowledge.
#dignity #dementia #RettSyndrome #science #research
