Why is #clinicalresearch so important to Liverpool University Hospitals NHS FT? Because it’s important to our patients! Helping each other to improve treatment options and health outcomes. Happy #InternationalClinicalTrialsDay & thank you! NIHR Clinical Research Network North West Coast TTP Network UK TTP Registry Complement Kidney TMA UK
Great to hear this news. Very welcomed from an aTTP patient perspective. TTP Network UK TTP Registry Rare Disease UK #patientvoice
Novel hypothesis explaining different risk alleles for iTTP in European and Ancient Asian populations. Building on the excellent work of Prof. Matsumoto published in Blood. Blood Journal PROFILE H2020 AP-HP UK TTP Registry JTH EDUC8 Network flora peyvandi HemaSphere Journal (IF = 9.1)
Welcome new SoCalTMA followers! We look forward to exciting collaboration, education and research.
We thank all those dedicated to #TMA disorders around the world including USTMA Alliance and Consortium aHUS America Complement Kidney TMA UK Atypical HUS India aHUS Alliance Action UK TTP Registry Preeclampsia Fndn
Thanks to all UK #TTP treaters UK TTP Registry and Blood Journal for sharing this valuable data informing ‘real world’ use of Caplacizumab with the wider TTP Network- helping to guide best practice in rare disease
#Raredisease iTTP is a thrombotic microangiopathy caused by the autoantibody-mediated absence or severe deficiency of ADAMTS13, a plasma metalloprotease necessary for cleavage of the ultralarge multimers of von Willebrand factor
Pip Nicolson Andrew Doyle UK TTP Registry TTP Network Has haematology embraced iTTP as an acronym? Are we worried about further increasing confusion with ITP? It’s bad enough with CMML/CML/CLL..
Great look at the real-world experience/outcomes of #caplacizumab use in a large UK cohort - 4 pediatric cases also described
Blood Journal UK TTP Registry
ashpublications.org/blood/article/…
Launched today GOV.UK have set out priorities for #RareDisease including quicker diagnosis, coordination of care & access to treatment. #TTP #bleedingdisorders haemnet Haemophilia Nurses' Association UK 🇬🇧 Haemophilia Society UK TTP Registry TTP Network gov.uk/government/pub…
Andrew Doyle UK TTP Registry TTP Network Good work Dr Doyle! Really helpful information with which to counsel (and treat!) patients with iTTP