The results of the ASPEN trial will be available within the next few months. Can't wait to share them with you #bronchiectasis
openres.ersjournals.com/content/early/…

We can’t wait to see the results of this trial

Glad to be back in Dundee to present my work from NHLI Royal Brompton and Harefield on AI and PCD diagnosis BEAT-PCD (ERS CRC)

Want to learn about Paediatric and Adult #PCD clinical cases?

Head over to the BEAT-PCD (ERS CRC) website training page to access recordings of our latest expert talks! 👇

beat-pcd.squarespace.com/training-schoo…

Yin Ting Lam

HYDIN is the 5th most common PCD gene in our clinics but often missed due to difficult diagnosis. rdcu.be/dEFjT

I'm writing a SciComm piece on motile cilia. Tweet your best movies of mammalian airway cilia, amphibian GRP cilia, or mouse nodal cilia (or DM me) and I might use them. Images of flow at these sites are also welcome. #cilia Society for Developmental Biology The Mill Lab Peter Walentek Reiter Lab

The BEAT-PCD Biobank Project survey will close next week so please register your interest to get involved forms.office.com/e/58eLYJeqed

🤝Join us at #WBConf24 and select 1 parallel track among the 6 tracks proposed

📅 6 July - 08.30-12.30
Register now: world-bronchiectasis-conference.org/2024/

In collaboration with ACPRC ARNS 💙 BEAT-PCD (ERS CRC) Child-BEAR-Net

#Physiotherapy #Nurse #PCD #Bronchiectasis #Paediatric #NTM

A ton of great folks are convening at the FASEB Biology of Cilia and Flagella get-together May 12-16. Come join us! Now's the last chance to submit an abstract for consideration for a talk:
events.faseb.org/event/895c8ffa…

#WBConf24
🎉Deadline for submission has been extended
📢 The new deadline is 10 April 2024!
Submit your abstract now ➡️ world-bronchiectasis-conference.org/2024/?page_id=…
📚Topics: #AATD #AirwaysClearance #Bronchiectasis #COPD #CF #NTM + many more!
📅4-6 July 2024
🌍Dundee, Scotland

The issue 8 of the BEAT-PCD Newsletter is available on our website beat-pcd.squarespace.com/news-and-events

Tonight’s webinar at 17:00 CET: Nasal nitric oxide measurement in children for the diagnosis of primary ciliary dyskinesia: an ERS technical standard.

Register: ersnet.org/events/nasal-n…

It's #RareDiseaseDay and we're celebrating all things rare here at PCD Support UK!
We would for you to join in and #ShareYourRare and help us raise awareness for #primaryciliarydyskinesia .
📷Tag us in your photos, videos and stories about living with a rare condition.

#DidYouKnow that a rare disease is defined as a condition which affects less than 1 in 2,000 people?
Primary Ciliary Dyskinesia (PCD) is a rare genetic disease affecting 1 in 7,500 people in the UK. (making it rare!)

Have your social media pledge cards ready? Downloadable in 8 languages from our website, show your support for Rare Disease Day now! Get them here: rarediseaseday.org/downloads/ #RareDiseaseDay #ShareYourColours #Awareness #LightUpForRare

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

There are over 300 M people worldwide living with a rare disease.
we support #RareDiseaseDay by gathering experts to share new research and data about #RespiratoryRareDiseases keeping a focus on patients’ wellbeing and quality of life.