Stacey Tinianov (she/her) MPH, BCPA
@coffeemommy
Patient Advocacy & Engagement. Co-Creation & Community Building. ๐ Coffee drinker. Gardener. Wife. Mom. Breast Cancer ๐ @AdvocateCollab
#MakeCancerLessShitty
ID:27935002
http://coffeemommy-at-work.blogspot.com 31-03-2009 18:52:16
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BreastCancer Chat WW #BCCWW Double Whammy Stacey Tinianov (she/her) MPH, BCPA AdvocateCollaborative (ACE) Dee Sparacio Dr Liz O'Riordan Allison Rosen, MS Ivy Elkins Janet Freeman-Daily Katie Coleman Dave deBronkart Liz Salmi Fred Hutch/UW/SC OCOE Thank YOU for your consistent support Julia. I share these experiences because they still happen to black people living with cancer.
We need to talk openly about racism and discrimination in medicine globally.
QUESTION: For those w/ diagnosis or history of cancer, what is (or was) the thing you MOST needed/wanted from your care team during diagnosis, treatment, and survivorship?
I'll go first: to be seen, heard, and held as a whole person - not just a cancer patient
#PatientAdvocacy
Fabulous AdvocateCollaborative (ACE) meeting following SWOG Cancer Research Network & AACR, sharing working group interests, BoD updates, ASCO plans, and intentions for 2024 and beyond. #PatientAdvocacy #ResearchAdvocacy #PolicyAdvocacy #GSD
Excited to see this Terri Coutee & hopeful ASBrS and those at #ASBRS24 will consider using term 'right-sizing' or 'personalizing' w/ dignostics & treatment. 'De-escalation' is a frightening word to some patients, implying they are receiving 'less than' #ASBrS2024 #SurvOnc #bcsm
Whether you're a clinician, researcher, patient, co-survivor, or fellow human, AI & machine learning will continue impact you. Eager to hear Vivek Subbiah, MD and panel discuss impacts of AI on healthcare. (NOTE: there will be no Q&A - but know youโll have ?s๐)
#AACR24 #HealthEquity
Shout out to AdvocateCollaborative (ACE) rockstars patty spears & Allison Rosen, MS for taking the stage to discuss improving trust in science and what doors that may open with participation in clinical trials #AACR24 #PatientAdvocacy #ResearchAdvocacy #CommunityAdvocacy
New AACR President Patricia M. LoRusso Dr. LoRusso gets right to the heart of things, 'I have a feeling many of you are here because of the recent cuts to the NIH budget.'
BINGO! At the same time, advocacy is used to doing amazing things with very little money so... it's possible #AACR24