2024 DSF Research Grant applications are now open!

We offer five grant categories! To find out more details about each grant category and apply today, visit bit.ly/3THkqP7!

We want to thank everyone who participated in our Give Up Your Cup fundraiser this year! Funds raised will go towards funding more research and resources for our Dravet families and warriors. 💜

Want to make a last-minute donation? Visit bit.ly/3uzFM8B!

While attending the Rare Disease Summit in Philadelphia, Team DSF met with Dr. Ingo Helbig and Dr. Ethan Goldberg (CHOP Research), whom DSF awarded a landmark $1M grant for a clinco-genomic data project on Dravet syndrome in 2023.

Ethan Goldberg Ingo Helbig Veronica Hood

The first seizure can be shocking, leaving caregivers and healthcare providers unsure of the cause. Raising awareness about Dravet syndrome can enlighten others about this rare condition. 💜

Share this #DravetFact in your feed to reach families seeking knowledge and support. 🦋

We're thrilled to announce that our Executive Director, Mary Anne Meskis, will speak at this year's Rare Disease Summit! 💜

This summit unites stakeholders to advance therapeutic progress, drive commercial strategies, and foster impactful advocacy. bit.ly/2ZRUfNJ

Coalition to Cure CHD2 KdVS Foundation SynGAP Research Fund (SRF) Dravet Syndrome Foundation LGS Foundation International SCN8A Alliance FamilieSCN2A And thx to Helen Chen, PhD for sharing our strategies to tackle Ring14 USA and #UBA5 disease (among others!) - a Mefford Lab team effort! Edith Paola Almanza Fuerte Emily Bonkowski Esmat Fathi Soham Sengupta Christy W. LaFlamme Nitish Chourasia,MD,FAES and X-less Aidan and Athena #MeffLabDreamTeam

#DravetSyndrome is a rare form of #epilepsy . To learn more, visit our friends at Dravet Syndrome Foundation. #RareDiseaseDay2024 #EpilepsyAwareness

Ready to make your coffee count?☕️

Join Team DSF this March and Give Up Your Cup for Dravet syndrome awareness! It's more than just coffee; it's about creating a lasting impact.

Ready to make a difference? Set up your fundraising portal today bit.ly/3uzFM8B!

Join us in raising awareness for epilepsy and seizure-related disorders on International Epilepsy Day 💜 TSC Alliance LGS Foundation Dravet Syndrome Foundation #EpilepsyDay

Stay locked in as we provide coverage of some of the great research happening in the field 🧠🔜

We understand that it can be difficult for caregivers to those with Dravet Syndrome, and many have PTSD.

To all caregivers out there, you are not alone! If you or a loved one are ever in need of support, visit bit.ly/45iZ9A4, a resource page for caregivers. 💜

🚨 Registration is now OPEN for our 6th DSF Biennial Conference! 🚨

Join us in Minneapolis, MN, from June 20 - 22 for a 3-day event dedicated to enhancing the lives of those with #Dravet syndrome: bit.ly/3SQjKIh

Please share‼️Our center for Neurogenetics, is jointly (adult Epilepsy & pediatric neurology) recruiting a neurologist with focus:

➡️ Exclusively genetic epilepsies 🧬

➡️ Peds 👦👧🏿 + adult 👩 👨🏽

➡️ Care 💊+ research 🧐 [academic + industry sponsored]

careers.uth.tmc.edu/us/en/job/2400…

Mutations in the SCN1A gene can result in migraines and childhood epilepsy to more profound and persistent epilepsy syndromes. Dravet syndrome is at the severe end of the spectrum. 🦋

To learn more about Dravet syndrome and the SCN1A gene, visit bit.ly/4ahLtYW.

Thank you to Jade Wong for hosting and to the attendees who participated in Steps Toward A Cure: Honolulu, Hawaii! In Jade's first-ever DSF fundraiser, her event raised over $9,688 for Dravet syndrome!

#StepsTowardACure #Dravet #Dravet Syndrome

From the entire DSF team, we wish you all a happy New Year!

In 2024, we will continue our mission of supporting research, raising funds, and increasing awareness for Dravet syndrome. We look forward to supporting our Dravet families and their warriors this year and beyond. 💜

A heartfelt 💟Thank You💟 from #TeamDSF to each and every member of our incredible community. Your unwavering support, generous donations, and inspiring stories fuel our mission every day. 💜🦋 #dravet #dravet syndrome

THANK YOU to the friends of Dominic in Pitman, NJ who raised over $500 for DSF in his honor through family #caroling this season! ❄️💜

This is a tradition of theirs and they always choose a charitable organization to donate to, and we are honored to be their 2023 recipient!

Congratulations to Team Lainy on being our top fundraising team at this year's #DashForDravet Turkey Trot! Team Lainy raised $6,524.54, bringing us one step closer to a cure. 💜

#CureDravet #DravetAwareness