Me and my stripey socks are heading to Westminster to celebrate #RareDiseaseDay2024 with Sophie Sainty to represent Unique and all those affected by rare conditions. Genetic Alliance UK Medics4RareDiseases
Great team at @CBMSO_CSIC_UAM and UAM Autónoma Madrid working in #RareDiseases !!!
#ShareYourColours #RareDiseaseDay2024
“Remembering the strength and resilience of those facing rare diseases today and everyday.. Muhimbili University Ali Kimara Rare Disease Foundation (AKRDF) Lupus Tanzania TAMSA MUHAS
#RareDiseaseDay
#RareDiseaseDay 2024
It is #RareDiseaseDay2024 .
This includes #Hereditary Diffuse #GastricCancer caused by #CDH1 and #CTNNA1 mutations.
Learn more: ccr.cancer.gov/sites/default/…
National Cancer Institute Society of Surgical Oncology NoStomachForCancer Debbie's Dream Foundation: Curing Stomach Cancer
Today is #RareDiseaseDay2024 and I’m celebrating all those who are living their best lives each day!
Happy #RareDiseaseDay2024 from your friendly local geneticists! BCM Department of Molecular and Human Genetics BCMHouston Texas Children's
Lilia is our wonderful, shining, little rare-star.
She was diagnosed with STXBP1, a rare genetic disorder at age 8.
#RareDiseaseDay2024
#RareIsBeautiful
#RareDiseaseDay 2024
Meet my fabulous 3 girls.
Olivia 22.Sophie 20 & Evie 15.🥰
They’re diagnosed with SBIDDS. A very rare genetic condition.
They’re also utterly fabulous😍
There’s always smiles despite the many complex medical & life challenges they face.☺️
#RareDiseaseDay
So great to be back at Teesside University National Horizons Centre for their Rare Disease Day event!
Proud to be representing The Lily Foundation at the event, and giving a talk later about our work funding mitochondrial research and supporting patients 🙌🏼
#LilyRRD24 #RareDiseaseDay2024
To the courageous souls battling rare diseases
Remember that you are not defined by your illness. Your worth and identity go far beyond your diagnosis,
Your courage and strength are an inspiration. Keep shining brightly, for your resilience knows no bounds.
#RareDiseaseDay2024
Today 29.2 is Rare Disease Day to raise awareness for the 300 million people worldwide impacted by a rare disease, such as mitochondrial disease. #RareDiseaseDay2024
#RareDiseaseDay2024
Greka Lab Harvard Medical School Brigham and Women’s Research
Thank you TED Talks for the opportunity to share this idea with the world!
👇👇👇
For #RareDiseaseDay2024
#RareDiseases featured on eNCA - 2 #RareWarriors & their parents were interviewed.
Highlighting our Africa/Europe Cluster of Research Excellence #GenomicsForHealthInAfrica
More #access #equity #genomics
The Guild ARUA SU, Faculty of Medicine and Health Sciences Division of Molecular Biology and Human Genetics
Remember today is:
Rare Disease Day 🩷
This day needs to come around more than every 4 years. Too many suffering, too little research.
Let's hope new technology offers hope for many suffering.
#RareDisease Day2024
#RareDisease #RareDisease Day
My son's disease #ataxiatelangiectasia is genetic.
It randomly happened.
I've two other children who are not affected by it.
It's a heartbreaking diagnosis and even though it was 10 years delayed (experts opinion, not mine) Jonatan gets very little help.
#RareDiseaseDay2024
It’s #RareDiseaseDay2024 This is my son Cammie. He has a rare disease, which is potentially life limiting. He’s intelligent, he works hard, he has a fab job and a superb work ethic. He doesn’t moan, he gets up and gets on! Some illnesses are tough but far from obvious. ❤️❤️❤️
Great to attend the #RareDiseaseDay2024 event at the Houses of Parliament & hear Rt Hon Andrew Stephenson MP talk about the importance of improving treatment & care for rare disease patients SRUK | Scleroderma & Raynaud's UK RAIRDA Genetic Alliance UK
