Patient-reported outcomes are invaluable tools, but may impose a burden on patients; Olalekan Lee Aiyegbusi and colleagues provide a set of 19 recommendations to reduce respondent burden.
#PROs Lee Aiyegbusi Mel Calvert CPROR
nature.com/articles/s4159…

NEW PUBLICATION!!!! Our team at CPROR along with other colleagues have produced a list of recommendations to address respondent burden associated with #PRO assessment.
To read our paper, click on this link --> rdcu.be/dzXrp
⬇️⬇️⬇️ Institute of Applied Health Research Lee Aiyegbusi Mel Calvert

Well done Konrad Maruszczyk PhD candidate CPROR Institute of Applied Health Research Mel Calvert Dr Christel McMullan 🎾 🇨🇵 🇮🇪 🇪🇺

6/ At the core of all our work is the aim to improve clinical trials for the benefit of patients. Thanks to our incredible patient partners Andrew Kightley Dr. Dawn Richards, PhD Richard Stephens & Lesley Roberts for co-designing a dose-finding trial lay summary toolkit with us! tinyurl.com/bdhx7trs

1/ NEW early phase dose-finding reporting guidelines for trial protocols (SPIRIT-DEFINE) and trial reports (CONSORT-DEFINE) to enhance transparency and reproducibility. The BMJ

SPIRIT-DEFINE: bmj.com/content/383/bm…
CONSORT-DEFINE: bmj.com/content/383/bm…

Delighted to share that our systematic review on the effects of disease modifying therapies in multiple sclerosis has been published👇
Mel Calvert Lee Aiyegbusi CPROR

sciencedirect.com/science/articl…

Our patient partners are so talented!
A little overwhelmed when we received this poem from one of our patient partners... #PatientAndPublicInvolvement Long COVID Physio Long Covid SOS Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @LongCovid CPROR Institute of Applied Health Research
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***NEW PUBLICATION*** Development and testing of an #ePRO solution for patients with inflammatory diseases in an early phase trial CPROR Institute of Applied Health Research UK Research and Innovation Innovate UK #electronicPRO #patientreportedoutcomes

NEW PUBLICATION! Konrad Maruszczyk reports results from #qualitative itvs with stakeholders on #PROs providing evidence of longer term tolerability & effectiveness in target population #PatientReportedOutcomes Mel Calvert Lee Aiyegbusi Tom Keeley sciencedirect.com/science/articl…

New Review: Olalekan Lee Aiyegbusi, Mel Calvert & colleagues (including patient partners) synthesize a checklist of key considerations for conducting patient and public involvement & engagement in research.
#TLCStudy #PPIE #LongCovid @CPROR_UoB Institute of Applied Health Research
nature.com/articles/s4159…

Our @TLCstudy latest paper on Patient & Public Involvement in Health Research has just been published! Huge thanks to our patient partners!
CPROR Institute of Applied Health Research Nature Medicine Long Covid SOS Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

To read/download it, please click here ⬇️⬇️⬇️
rdcu.be/dhkO2

Dive into how #PatientReportedOutcomes are a “powerful tool to amplify the patient voice” in clinical care with Dr. Claire Snyder from Johns Hopkins Kimmel Cancer Center Johns Hopkins Bloomberg School of Public Health and presented at #ASCO23 .

ASCO vjoncology.com/video/bd9uuv0h…

As Pride Month draws to a close, we spoke to Neil Bertelsen to explore the role of HIV patients in the birth of modern patient advocacy and how this changed the regulatory landscape for the better.

hubs.li/Q01WFQKt0

Superb networking and exchanging thoughts and new ideas at our Institute of Applied Health Research Away Day with KK Cheng and Tracy Roberts #weareIAHR

Are you passionate about promoting equality, diversity and inclusion ( #EDI ) in research and searching for a new opportunity? We're looking for you!

Apply by 3 July to join our team as an EDI Project Officer and drive EDI initiatives within our BRC: beta.jobs.nhs.uk/candidate/joba…

Please join if you can. Patient generated data to inform the tolerability of drug products… exploring single item overall side effect impact with some fantastic experts in the #PRO field

Lovely day in Sheffield at #UKPROMS many thanks to the organisers @jillcarton1 @ScHARRSheffield

🎉Congratulations to Prof Alastair Denniston on receipt of his prestigious NIHR Research Incubator award! 🙌
Prof Denniston will lead an Incubator focused on how #AI & other digital technologies should be regulated for use in #Healthcare
➡️Press release: bit.ly/42zBPvD

*** New publication*** Usability of #ePRO platform with #cancer sufferers➡️huge potential for communicating with clinicians!
Now need to test feasibility in clinic! #patientreportedoutcomes CPROR Mel Calvert Dr Sarah Hughes Lee Aiyegbusi Institute of Applied Health Research

cell.com/heliyon/pdf/S2…

Register and join us June 27 at 11am ET. FDA 8th Annual COA-CCT Workshop.
#OCEOutcomes23
fda.zoomgov.com/webinar/regist…