๐ช๐บ Ilaria Galetti ๐ธ๐ฉ
@iaiaraia
SSc patient advocate Vice Chair of FESCA and GILS, ERN ReCONNET ePAG, Equal access to therapies is my obsession
ID:94573205
04-12-2009 14:55:08
586 Tweets
353 Followers
655 Following
Are you a #Cardiology or #rheumatology physician taking care of #scleroderma patients?
We want to hear your opinion on the definition and consensus from WSF World Scleroderma Foundation & HFA of European Society of Cardiology!
#answer this #survey and #spread it to your network!
forms.gle/pkkARxwnEj3Z1eโฆ
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Get to know our speakers!
Join our European Parliament in November and learn more about the impact of Scleroderma from our renowned speakers: MEP Patrizia Toia, Sue Farrington, Linda Kwakkenbos, ๐ช๐บ Ilaria Galetti ๐ธ๐ฉ and many more!
Register now: fesca-scleroderma.eu/european-parliโฆ
NEW Personal ViewโAlain Lescoat and colleagues discuss parameters and candidate definitions for a conceptual framework of pre-scleroderma; such a paradigm could offer a new preventive medicine perspective in the management of #SystemicSclerosis thelancet.com/journals/lanrhโฆ
Grazie #Giambruno ! Lavorando con turisti tedeschi (90%) dovrei ripetere le sue parole? Giorgia Meloni e Daniela Santanchรจ cosa pensate di chiedere al dott. Giambruno di dettare lโagenda turistica 2024?
Giuseppe Mazzini: grande #patriota italiano che formรฒ la Giovine #Europa
Giuseppe Mazzini: a great Italian #Patriot who created the so called Young #Europe
VOX ๐ช๐ธ Giorgia Meloni Alberto Nรบรฑez Feijรณo
๐ช tomorrow is the D-DAY, are you ready? have you registered to this cool ERN ReCONNET ๐ช๐บ #webinar ? #BTW this is the last one for this season, the NEW #ERNReCONNETwebinar season will start in Sept, so hurry up n don't miss our last event!
Register now to the ERN ReCONNET ๐ช๐บ Good Practice Sharing Initiative that will take place on 12th June 17 CET.
๐Make sure you are registered at this link : bit.ly/3Mxvv3a
Programme below ๐
#EULAR2023 Another room overcrowded when talking on rare CTDs. Here videocapillaroscopy in SSc. I am pretty sure that at #EULAR2024 rare diseases will be on top of the agenda Sue Farrington Silvia Aguilera Francesca Ingegnoli ๐๐ป Fesca ERN ReCONNET ๐ช๐บ
Overcrowded room for SSc abstract session at #EULAR2023 . Here Cosimo Bruni at his top! Sue Farrington Fesca
Attending presentation on update Eular treatment recommendations for SSc lead by Professor Francesco Del Galdo & allanore yannick. ๐ช๐บ Ilaria Galetti ๐ธ๐ฉ & Sue Farrington delighted to be involved as patient reps Fesca
Have you registered yet to our upcoming #webinar on #SystemicSclerosis challenges?
There is still time to registerโก๏ธ bit.ly/42N22HG
CHU de Bordeaux IRCCS Casa Sollievo della Sofferenza Policlinico Umberto I NIGRiR Warszawa Radboudumc Hospital Sant Joan de Dรฉu Barcelona ES University of Tartu
#raredisease #erns #enreconnet